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Trust is the foundation for relationships between caregivers and the individuals they support. Most caregivers who provide support for persons with disabilities, older people, and children provide services in an atmosphere of mutual respect. However, there can be violence in this caregiving relationship, and most people with disabilities who experience domestic violence are abused by direct caregivers. Violence in a caregiving relationship is often perpetrated by the caregiver; it can also be directed against the caregiver by the person receiving care.

There are both formal and informal caregivers. Formal caregivers are those who are typically paid to provide a defined service in home, community, or institutional settings (e.g., nursing homes, group homes, state institutions). Some types of care they provide include medical care (e.g., medication management), home health services (e.g., bathing, dressing, eating), community-based support services (e.g., supported employment, recreation, shopping), transportation, and respite care. Informal caregivers are friends and family members who are not paid (although some do get paid under some circumstances) to provide care and/or support. These caregivers provide many of the same types of services as formal caregivers.

Risk Factors for People Who Utilize Caregiver Services

People who utilize caregiver services may have a high level of vulnerability for abuse for several reasons. Individuals who receive caregiving are often dependent on their caregivers for basic needs, including particularly personal activities, such as bathing, dressing, or toileting. This dependency may prevent a person from recognizing or reporting abuse. In circumstances involving informal care, a person requiring caregiving may also feel guilty, thus overlooking instances of violence and feeling such violence is deserved. Further, the person receiving services might believe that he or she has no other means to receive care and fear that reporting violence would result in either institutional-ization or increased violence from the caregiver. People who utilize formal caregiving services may interact with multiple caregivers and may not see the same caregiver twice, thus never building a relationship of trust with the caregiver. This person may also fear increased violence and worry about losing his or her care provider agency if he or she complains. In both instances, the caregiver may control the means of reporting violence by limiting the person's access to telephones or other means of communication.

Caregiver Perpetrators

There are numerous factors associated with the perpetration of violence by caregivers to people in their care. These factors vary depending on whether the support services are provided by formal or informal caregivers. While most professional caregivers provide excellent services and support, there are some work-related issues that may increase the potential for abuse. Formal caregivers are frequently underpaid, receive little training, receive no direct supervision, and are provided little employment support. For caregivers working with individuals in their homes or in community settings, there can be intense isolation. The job duties of formal caregivers can be highly stressful. Agencies that employ caregivers experience high rates of staff turnover and have high vacancy rates, resulting in higher levels of stress in caregivers. Because of the shortage of staff in these caregiver roles, some agencies do not screen their potential employees well and risk hiring those with violent backgrounds.

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