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The Sickness Impact Profile (SIP) is one of the first generic health status measures made available for use in clinical and research settings. It contains 136 items that describe functional limitations in 12 categories: ambulation, mobility, body care and movement, communication, alertness behavior, emotional behavior, social interaction, sleep and rest, eating, work, home management, and recreation and pastimes. Each item is written in the first person, in the present tense, and describes everyday activities of daily living. Respondents endorse only those items that describe their current level of functioning. Users can calculate a total score, two domain scores (physical and psychosocial), or individual scores for each of the 12 categories. Higher scores are reflective of a greater degree of dysfunction. A 68-item short form (SIP68) has been developed; evidence suggests that its psychometric properties are comparable to those of the 136-item SIP.

In the context of medical decision making, the SIP can be used to quantify and compare the physical and psychosocial burden of various medical conditions and treatment modalities. Conclusions based on this type of information can be used by healthcare consumers, providers, and advocates to make informed decisions about medical interventions, funding priorities, and service allocation. The items of the SIP focus on observable behavior; therefore, changes in responses may be evident even if there is no corresponding change in the underlying disease process. The SIP has been used with a variety of medical populations to assess sickness-related dysfunction. This entry reviews the development and validation of the SIP and the SIP68 and the psychometric properties of each and provides an overview of the manner in which the SIP has been used in research in the field of medical decision making.

Development

The authors of the SIP sought to create a behaviorally based measure of sickness-related dysfunction that could be used for evaluation, program planning, policy formation, and cost-effectiveness analysis. Development of the SIP began in 1972 with an effort to collect statements describing impairment in various aspects of functioning from patients, caregivers, healthy individuals, and healthcare professionals. Additional statements were gathered by literature review. A series of field experiments were conducted to reduce the number of statements, group the items by category, and assign weighted values to each item for scoring purposes. All items were subjected to rigorous methodological evaluation to ensure adequate reliability and validity and sensitivity to change and to assess the comparability of alternative administration procedures. Efforts were made to ensure that individuals representing various levels of illness and all sociodemographic groups were included. The SIP can be self-administered or interviewer administered. It takes approximately 20 to 30 minutes to administer and 5 to 10 minutes to complete the scoring procedures. Scores range from 0 to 100 and are calculated by tallying the weighted values associated with each endorsed item, dividing by the total possible score, and multiplying by 100. The SIP is available for use in several languages/cultures, including British, Chicano-Spanish, Danish, Dutch, French, German, Italian, Norwegian, and Swedish.

The SIP68 was published in 1994 in an effort to overcome one of the major criticisms of the SIP, its length. Other short forms have been developed but are typically specific to a condition of interest (e.g., arthritis, back pain, stroke). Using principal components analysis, researchers determined which SIP items contributed most to respondents' scores. The 68 items that emerged from this analysis comprise six categories: somatic autonomy, mobility control, psychological autonomy and communication, social behavior, emotional stability, and mobility range. These categories can be collapsed into three dimensions: physical, psychological, and social. Scoring of the SIP68 differs from that of the SIP in that the items are not differentially weighted. Total, subscale, and dimension scores are calculated by summing the endorsed items. Total scores range from 0 to 68; ranges for subscale and dimension scores depend on the number of items per scale. Because of divergent scoring procedures, the two questionnaires cannot be directly compared.

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