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Minimum Data Set (MDS) for Nursing Home Resident Assessment
The provision of appropriate care in nursing facilities requires comprehensive knowledge of residents' strengths, weaknesses, and problems. As one feature of the Omnibus Budget Reconciliation Act of 1987 (OBRA 87), the U.S. Congress sought to ensure the availability of such information by mandating a national resident assessment system, including a uniform set of items and definitions for assessing all residents in nursing facilities in the United States. The need for uniform resident assessment in long-term care had been long recognized. A 1986 study by the national Institute of Medicine (IOM) focused on how to improve nursing home regulation and identified uniform resident assessment as a cornerstone of any effort to improve quality. Indeed, this recommendation, along with a host of others in the Institute's report, formed the basis for many of the nursing home reform provisions in OBRA 87, requiring each certified nursing facility to conduct a comprehensive, accurate, standardized, reproducible assessment of each resident's functional capacities.
In 1988, the Health Care Financing Administration (HCFA) (now the Centers for Medicare and Medicaid Services [CMS]) contracted with the Research Triangle Institute, the Hebrew Rehabilitation Center for the Aged, Brown University, and the University of Michigan to develop and evaluate a uniform resident assessment system. The resident assessment instrument that emerged was designed as a minimum data set (MDS) of items, definitions, and response categories aimed at providing a comprehensive assessment. In addition, the resident assessment protocols (RAPs), which are part of the resident assessment instrument (RAI), provide guidelines for more in-depth assessment of 18 conditions that affect the functional well-being of nursing home residents (e.g., falls, urinary incontinence, cognition difficulties, and use of restraints).
Development of the Instrument
In developing the RAI, more than 60 prior assessment instruments that had been developed for screening, admission, and research purposes were reviewed for comprehensiveness and to identify common domains, items, definitions, responses, and scoring patterns. These were used to develop multiple instrument drafts, all of which underwent extensive review by literally hundreds of experts representing all the professions that work with nursing home residents. The resulting instrument contains more than 300 data elements, many of which measure the traditional domains of functioning, personal-care activities, and the amount of “hands-on” and supervision time associated with each personal-care area, as well as basic demographic factors. Other domains covered in the MDS include (a) decision making; (b) behavioral problems; (c) symptoms, diagnoses, and conditions; (d) social interaction and regulations; (e) skin care needs; and (f) services received. Newest of all were data elements about the residents' lifelong behavioral styles and preferences, as well as documentation of the existence and type of an advance directive.
Field Testing
As with all research instruments, extensive field testing and reliability testing were undertaken. Numerous sets of independent reliability trials were undertaken during the development processes. The results of these reliability studies clearly demonstrated that when MDS data are gathered in a research context, it is possible to obtain reliability levels that make the data useful for research purposes. The MDS items met traditional standards of good reliability in key areas of functional status such as cognition, activities of daily living (ADL) performance, continence, and disease diagnoses.
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