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Disability
While there is widespread agreement that disability is a major concern in every society in the world today, there is considerable controversy about the definition, measurement, demography, healthcare requirements, costs, politics, and personal, familial, and societal consequences of disability. In 2000, the U.S. Census Bureau counted 49.5 million Americans with some type of long-lasting health condition or disability (19.5% of the nation's total noninstitutionalized population). Many individuals (12% of the population) had multiple disabilities, and more than 4% reported a mental disability. Experts think that the rate of mental illness could well be underreported. On a global basis, the World Health Organization WHO estimates that there are 600 million disabled people in the world. The United Nations (UN) estimate is 650 million. Recent global estimates conclude that by 2020, depression will be the number two cause of disability in the world. The World Bank and other international financial institutions have taken a recent interest in disability because they see it as a major threat to economic development. Indeed, there is general agreement among experts that disability is more common in developing than in developed nations.
Disability Definitions
Disability definitions, which are culturally specific and contested, are used to signify a particular relationship of the individual to bodily norms, social role performance, and society in general. Disability is a condition where individuals are identified as not meeting the potential expected of them by society (expressed through social and cultural norms). People are judged to be disabled because of limitations in their physical and/or mental functioning, lack of social support networks, inability to perform normative social roles, and/or living in a barrier-laden environment that prevents them from fully participating in society. In this context, disability results from a maladaptive interaction between individuals and their environments. The result is often dependency, isolation, and poverty.
Disability definitions are culturally grounded. For example, in the United States, disabilities are typically determined by physicians according to diagnostic categories such as spinal cord injury, multiple sclerosis (MS), and depression. While members of some cultures will say that impotence, infertility, and diabetes are disabilities, according to the medical model, they are seldom classified as such.
Disability definitions are also strongly influenced by politics, ideology, and social policy. Physical disabilities are more likely to be diagnosed and reported than mental illness because of stigma and the added cost burden on governments and private health insurers to cover mental health services. The full effects of these differences are expressed in U.S. social policy and law. A search of federal statutory definitions of disability in the U.S. Code in 2005 revealed that disability was defined 67 times in different ways depending on whether the statute dealt with Veterans Affairs, developmental disabilities, the Fair Housing Act, Social Security Disability Insurance (SSDI), assistive technology, or employment-based legislation. In addition, the interpretation of these definitions is often constricted or relaxed depending on the state of the economy and the availability of government resources.
Underlying these different definitions and determination of disability is a clash of paradigms used to conceptualize disability. The medical model views disability generally as a problem of the person caused by disease, trauma, or other health conditions and resulting in the need for individual medical care. Individuals are diagnosed and are generally referred to in terms of their primary medical diagnosis. Much of the medical and health services research conducted within this paradigm focuses on functional limitations, return to work, independence, and the performance of social roles.
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- Access to Care
- Access to Healthcare
- Access, Models of
- Critical Access Hospitals (CAHs)
- Cultural Competency
- Direct-to-Consumer Advertising (DTCA)
- E-Health
- E-Prescribing
- Ethnic and Racial Barriers to Healthcare
- Geographic Barriers to Healthcare
- Health Communication
- Health Literacy
- Health Professional Shortage Areas (HPSAs)
- Healthcare Web Sites
- Hospital Closures
- Inner-City Healthcare
- Medical Travel
- National Health Service Corps (NHSC)
- Patient Dumping
- Patient Transfers
- Rural Health
- Safety Net
- Telemedicine
- Transportation
- Accreditation, Associations, Foundations, and Research Organizations
- Accreditation
- Associations
- AARP
- AcademyHealth
- America's Health Insurance Plans (AHIP)
- American Academy of Family Physicians (AAFP)
- American Academy of Pediatrics (AAP)
- American Association of Colleges of Nursing (AACN)
- American Association of Preferred Provider Organizations (AAPPO)
- American College of Healthcare Executives (ACHE)
- American Health Care Association (AHCA)
- American Health Planning Association (AHPA)
- American Hospital Association (AHA)
- American Medical Association (AMA)
- American Nurses Association (ANA)
- American Osteopathic Association (AOA)
- American Public Health Association (APHA)
- American Society of Health Economics (ASHE)
- Association of American Medical Colleges (AAMC)
- Association of University Programs in Health Administration (AUPHA)
- Healthcare Financial Management Association (HFMA)
- Institute for Healthcare Improvement (IHI)
- International Health Economics Association (IHEA)
- National Alliance for the Mentally Ill (NAMI)
- National Association of Health Data Organizations (NAHDO)
- National Association of State Medicaid Directors (NASMD)
- National Center for Assisted Living (NCAL)
- National Citizens' Coalition for Nursing Home Reform (NCCNHR)
- National Coalition on Health Care (NCHC)
- National Commission for Quality Long-Term Care (NCQLTC)
- National Health Policy Forum (NHPF)
- National Medical Association (NMA)
- National Quality Forum (NQF)
- University HealthSystem Consortium (UHC)
- Business Coalitions
- Foundations
- Research Organizations
- Biographies of Current and Past Leaders - Current Leaders
- Current Leaders
- Aday, Lu Ann
- Aiken, Linda H.
- Altman, Drew E.
- Andersen, Ronald M.
- Arrow, Kenneth J.
- Berwick, Donald M.
- Brook, Robert H.
- Chassin, Mark R.
- Clancy, Carolyn M.
- Culyer, Anthony J.
- Davis, Karen
- Drummond, Michael
- Ellwood, Paul M.
- Enthoven, Alain C.
- Evans, Robert G.
- Feder, Judith
- Fuchs, Victor R.
- Ginsburg, Paul B.
- Grossman, Michael
- Kane, Robert L.
- Katz, Sidney
- Lee, Philip R.
- Lomas, Jonathan
- Luft, Harold S.
- Marmor, Theodore R.
- Maynard, Alan
- Mechanic, David
- Naylor, C. David
- Newhouse, Joseph P.
- O'Leary, Dennis S.
- Pauly, Mark V.
- Reinhardt, Uwe E.
- Relman, Arnold S.
- Rice, Dorothy P.
- Roos, Leslie L.
- Roos, Noralou P.
- Rosenbaum, Sara
- Sackett, David L.
- Scott, W. Richard
- Shortell, Stephen M.
- Starfield, Barbara
- Starr, Paul
- Stevens, Rosemary A.
- Tarlov, Alvin R.
- Ware, John E.
- Wennberg, John E.
- White, Kerr L.
- Wilensky, Gail R.
- Past Leaders
- Anderson, Odin W.
- Cochrane, Archibald L.
- Codman, Ernest Amory
- Cohen, Wilbur J.
- Davis, Michael M.
- Donabedian, Avedis
- Eisenberg, John M.
- Farr, William
- Flexner, Abraham
- Ginzberg, Eli
- Kimball, Justin Ford
- McNerney, Walter J.
- Nightingale, Florence
- Roemer, Milton I.
- Rorem, C. Rufus
- Shapiro, Sam
- Sheps, Cecil G.
- Thompson, John Devereaux
- Williams, Alan H.
- Current Leaders
- Cost of Care, Economics, Finance, and Payment Mechanisms
- Administrative Costs
- Capitation
- Charity Care
- Committee on the Costs of Medical Care (CCMC)
- Compensation Differentials
- Cost Containment Strategies
- Cost of Healthcare
- Cost Shifting
- Cost-Benefit and Cost-Effectiveness Analyses
- Current Procedural Terminology (CPT)
- Diagnosis Related Groups (DRGs)
- Economic Barriers to Healthcare
- Economic Recessions
- Economic Spillover
- Economies of Scale
- Fee-for-Service
- Flat-of-the-Curve Medicine
- Health Economics
- Healthcare Financial Management
- Healthcare Markets
- Inflation in Healthcare
- Long-Term Care Costs in the United States
- Market Failure
- Pay-for-Performance
- Payment Mechanisms
- Pharmacoeconomics
- Prospective Payment
- Resource-Based Relative Value Scale (RBRVS)
- Supplier-Induced Demand
- U.S. National Health Expenditures
- Uncompensated Healthcare
- Disease, Disability, Health, and Health Behavior
- Activities of Daily Living (ADL)
- Acute and Chronic Diseases
- Adverse Drug Events
- Chronic-Care Model
- Diabetes
- Disability
- Disease
- Emerging Diseases
- Genetics
- Health
- Health Indicators, Leading
- Iatrogenic Disease
- Infectious Diseases
- International Classification of Diseases (ICD)
- Life Expectancy
- Medical Sociology
- Medicalization
- Mental Health
- Morbidity
- Mortality
- Mortality, Major Causes in the United States
- Obesity
- Pain
- Prescription and Generic Drug Use
- Tobacco Use
- Government and International Healthcare Organizations
- International Organizations
- Canadian Association for Health Services and Policy Research (CAHSPR)
- Canadian Health Services Research Foundation (CHSRF)
- Canadian Institute of Health Services and Policy Research (IHSPR)
- Pan American Health Organization (PAHO)
- United Kingdom's National Health Service (NHS)
- United Kingdom's National Institute for Health and Clinical Excellence (NICE)
- World Health Organization (WHO)
- U.S. Government Organizations
- Agency for Healthcare Research and Quality (AHRQ)
- Centers for Disease Control and Prevention (CDC)
- Centers for Medicare and Medicaid Services (CMS)
- Congressional Budget Office (CBO)
- Health Resources and Services Administration (HRSA)
- Indian Health Service (IHS)
- Medicare Payment Advisory Commission (MedPAC)
- National Center for Health Statistics (NCHS)
- National Guideline Clearinghouse (NGC)
- National Information Center on Health Services Research and Health Care Technology (NICHSR)
- National Institutes of Health (NIH)
- Substance Abuse and Mental Health Services Administration (SAMHSA)
- TRICARE, Military Health System
- U.S. Department of Veterans Affairs (VA)
- U.S. Food and Drug Administration (FDA)
- U.S. Government Accountability Office (GAO)
- International Organizations
- Health Insurance
- Adverse Selection
- Blue Cross and Blue Shield
- Carve-Outs
- Coinsurance, Copays, and Deductibles
- Consumer-Directed Health Plans (CDHPs)
- Crowd-Out
- Employee Health Benefits
- Flexible Spending Accounts (FSAs)
- Health Insurance
- Health Insurance Coverage
- Health Savings Accounts (HSAs)
- Medicaid
- Medicare
- Medicare Part D Prescription Drug Benefit
- Moral Hazard
- RAND Health Insurance Experiment
- Selective Contracting
- Single-Payer System
- State Children's Health Insurance Program (SCHIP)
- State-Based Health Insurance Initiatives
- Tax Subsidy of Employer-Sponsored Health Insurance
- Health Professionals and Healthcare Organizations
- Academic Medical Centers
- Allied Health Professionals
- Ambulatory Care
- Case Management
- Chiropractors
- Community Health Centers (CHCs)
- Community Mental Health Centers (CMHCs)
- Complementary and Alternative Medicine
- Dentists and Dental Care
- Disease Management
- Diversity in Healthcare Management
- Emergency Medical Services (EMS)
- Eye Care Services
- Federally Qualified Health Centers (FQHCs)
- Free Clinics
- General Practice
- Health Maintenance Organizations (HMOs)
- Health Systems Agencies (HSAs)
- Health Workforce
- Healthcare Organization Theory
- Home Health Care
- Hospice
- Hospital Emergency Departments
- Hospitalists
- Hospitals
- Intensive-Care Units
- Intermediate-Care Facilities (ICFs)
- Long-Term Care
- Managed Care
- Medical Group Practice
- Multihospital Healthcare Systems
- Nonprofit Healthcare Organizations
- Nurse Practitioners (NPs)
- Nurses
- Nursing Homes
- Pharmaceutical Industry
- Pharmacy
- Physician Assistants
- Physician Workforce Issues
- Physicians
- Physicians, Osteopathic
- Preferred Provider Organizations (PPOs)
- Primary Care
- Primary-Care Case Management (PCCM)
- Primary-Care Physicians
- Skilled-Nursing Facilities
- Health Services Research
- Data Sources in Conducting Health Services Research
- Health Services Research at the Veterans Health Administration (VHA)
- Health Services Research in Australia
- Health Services Research in Canada
- Health Services Research in Dentistry and Oral Health
- Health Services Research in Eastern Europe
- Health Services Research in Germany
- Health Services Research in Sub-Saharan Africa
- Health Services Research in the People's Republic of China
- Health Services Research in the United Kingdom
- Health Services Research Journals
- Health Services Research, Definition
- Health Services Research, Origins
- Laws, Regulations, and Ethics
- Measurement, Data Sources and Coding, and Research Methods
- Case-Mix Adjustment
- Causal Analysis
- Clinical Decision Support
- Cohort Studies
- Community-Based Participatory Research (CBPR)
- Computers
- Cross-Sectional Studies
- Data Privacy
- Data Security
- Diagnostic and Statistical Manual of Mental Disorders (DSM)
- Electronic Clinical Records
- Evidence-Based Medicine (EBM)
- General Health Questionnaire
- Geographic Information Systems (GIS)
- Health Informatics
- Health Surveys
- Healthcare Cost and Utilization Project (HCUP)
- Healthcare Effectiveness Data and Information Set (HEDIS)
- Healthcare Informatics Research
- Measurement in Health Services Research
- Meta-Analysis
- Minimum Data Set (MDS) for Nursing Home Resident Assessment
- National Practitioner Data Bank (NPDB)
- ORYX Performance Measurement System
- Provider-Based Research Networks (PBRNs)
- Quality of Well-Being Scale (QWB)
- Randomized Controlled Trials (RCTs)
- Satisfaction Surveys
- Severity Adjustment
- Short-Form Health Surveys (SF-36, -12, -8)
- Outcomes of Care
- Policy Issues, Healthcare Reform, and International Comparisons
- Comparing Health Systems
- Competition in Healthcare
- Equity, Efficiency, and Effectiveness in Healthcare
- Focused Factories
- For-Profit Versus Not-for-Profit Healthcare
- Forces Changing Healthcare
- Health Disparities
- Healthcare Reform
- International Health Systems
- National Health Insurance
- National Healthcare Disparities Report (NHDR)
- Public Policy
- Rationing Healthcare
- Technology Assessment
- Public Health
- Quality and Safety of Care
- Accreditation
- Benchmarking
- Clinical Practice Guidelines
- Continuum of Care
- Credentialing
- Geographic Variations in Healthcare
- International Classification for Patient Safety (ICPS)
- Malpractice
- Medical Errors
- National Healthcare Quality Report (NHQR)
- National Patient Safety Goals (NPSG)
- Nursing Home Quality
- Patient Safety
- Patient-Centered Care
- Quality Enhancement Research Initiative (QUERI) of the Veterans Health Administration (VHA)
- Quality Improvement Organizations (QIOs)
- Quality Indicators
- Quality Management
- Quality of Healthcare
- Quality of Life, Health-Related (HRQOL)
- Quality-Adjusted Life Years (QALYs)
- Structure-Process-Outcome Quality Measures
- Timeliness of Healthcare
- Special and Vulnerable Groups
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