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Community-Based Participatory Research
Community-based participatory research (CBPR) in public health is a collaborative approach to research that equitably involves diverse partners, including community members, organizational representatives, and academic researchers, in all aspects of the research process. All partners contribute their expertise and share responsibility and ownership to enhance understanding of a topic of importance to the community, and to translate the knowledge gained into action to improve community health and well-being. Through research findings that can guide interventions and policy change, CBPR can contribute substantially to epidemiology's key functions of identifying and understanding the distribution and determinants of health and disease, and applying this knowledge to improve the public's health.
CBPR is an established approach to inquiry rooted in several research traditions across multiple disciplines, including participatory research and participatory action research. Common to these approaches is an emphasis on engaging community and academic partners in understanding and improving community well-being. CBPR is increasingly applied in epidemiological research and is well suited for investigating complex relationships between the social, economic, physical, and biological environments, and how they interact to influence health across multiple levels. Because CBPR is grounded in equitable collaboration between community members and academic researchers, CBPR is particularly relevant to the investigation of health disparities rooted in racial, economic, and social inequality.
As an approach to research rather than a particular research design or method, CBPR can be applied to a wide range of research efforts, including observational research, exposure assessment, risk assessment, intervention research and evaluation, and as a guide to policy development. CBPR draws on the full range of study designs, including cross-sectional, longitudinal, experimental, and quasi-experimental, and may include both quantitative and qualitative methods of data collection and analysis.
CBPR can also form the foundation for comprehensive etiologic research and intervention research investigation of a particular health issue over time. For example, an ongoing community-academic partnership effort to examine and address exposure to environmental triggers of childhood asthma in Detroit, Michigan, as described by Parker et al. (2003), included prioritizing the health issue, successful competition for multiyear federal funding, a laboratory study of allergens and asthma, an epidemiological study of air quality and health indicators, and an intervention to reduce environmental triggers for childhood asthma at the household, neighborhood, and policy levels.
What distinguishes CBPR methodologically from other approaches to research is the engagement of the community as coinvestigator in determining what is being studied, how, by whom, and for what purpose. CBPR provides a framework for applying traditional and innovative research methods in ways that involve partners equitably, address power and cultural differences, maximize strengths and resources of partners, and build individual, organizational, and community capacity. Participatory approaches can enhance research quality and applicability and contribute to innovation in research methods. See Viswanathan et al. (2004) for a systematic review of existing evidence on the conduct and evaluation of CBPR, commissioned by the Agency for Healthcare Research and Quality.
Principles of Community-Based Participatory Research
CBPR entails a shared commitment to conducting research based on a set of principles and procedures developed by each specific partnership and intended to promote equitable engagement of all partners. The process of developing shared guidelines for practice forms the foundation of a particular CBPR partnership and guides the design, conduct, and application of the research. While no one strategy is applicable to all CBPR endeavors, there are core underlying principles derived from theory and practice that inform the conduct of CBPR. The following principles or key elements synthesized by Israel and colleagues together comprise a set of goals toward which research partnerships may strive within a CBPR orientation, with the potential for enhancing the quality and application of the research.
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- Behavioral and Social Science
- Acculturation
- Bioterrorism
- Community Health
- Community Trial
- Community-Based Participatory Research
- Cultural Sensitivity
- Demography
- Determinants of Health Model
- Ecological Fallacy
- Epidemiology in Developing Countries
- EuroQoL EQ-5D Questionnaire
- Functional Status
- Genocide
- Geographical and Social Influences on Health
- Health Behavior
- Health Belief Model
- Health Communication
- Health Communication in Developing Countries
- Health Disparities
- Health Literacy
- Health, Definitions of
- Life Course Approach
- Locus of Control
- Medical Anthropology
- Network Analysis
- Participatory Action Research
- Poverty and Health
- Quality of Life, Quantification of
- Quality of Well-Being Scale (QWB)
- Race and Ethnicity, Measurement Issues With
- Race Bridging
- Rural Health Issues
- Self-Efficacy
- SF-36® Health Survey
- Social Capital and Health
- Social Epidemiology
- Social Hierarchy and Health
- Social Marketing
- Social-Cognitive Theory
- Socioeconomic Classification
- Spirituality and Health
- Targeting and Tailoring
- Theory of Planned Behavior
- Transtheoretical Model
- Urban Health Issues
- Urban Sprawl
- Branches of Epidemiology
- Applied Epidemiology
- Chronic Disease Epidemiology
- Clinical Epidemiology
- Descriptive and Analytic Epidemiology
- Disability Epidemiology
- Disaster Epidemiology
- Eco-Epidemiology
- Environmental and Occupational Epidemiology
- Field Epidemiology
- Genetic Epidemiology
- Injury Epidemiology
- Maternal and Child Health Epidemiology
- Molecular Epidemiology
- Neuroepidemiology
- Nutritional Epidemiology
- Pharmacoepidemiology
- Psychiatric Epidemiology
- Reproductive Epidemiology
- Social Epidemiology
- Veterinary Epidemiology
- Diseases and Conditions
- Alzheimer's Disease
- Anxiety Disorders
- Arthritis
- Asthma
- Autism
- Avian Flu
- Bipolar Disorder
- Bloodborne Diseases
- Cancer
- Cardiovascular Disease
- Diabetes
- Foodborne Diseases
- Gulf War Syndrome
- Hepatitis
- HIV/AIDS
- Hypertension
- Influenza
- Insect-Borne Disease
- Malaria
- Measles
- Oral Health
- Osteoporosis
- Parasitic Diseases
- Plague
- Polio
- Post-Traumatic Stress Disorder
- Schizophrenia
- Severe Acute Respiratory Syndrome (SARS)
- Sexually Transmitted Diseases
- Sick Building Syndrome
- Sleep Disorders
- Smallpox
- Suicide
- Toxic Shock Syndrome
- Tuberculosis
- Vector-Borne Disease
- Vehicle-Related Injuries
- Vitamin Deficiency Diseases
- Waterborne Diseases
- Yellow Fever
- Zoonotic Disease
- Epidemiological Concepts
- Attack Rate
- Attributable Fractions
- Biomarkers
- Birth Cohort Analysis
- Birth Defects
- Case Definition
- Case Reports and Case Series
- Case-Cohort Studies
- Case-Fatality Rate
- Cohort Effects
- Community Trial
- Competencies in Applied Epidemiology for Public Health Agencies
- Cumulative Incidence
- Direct Standardization
- Disease Eradication
- Effect Modification and Interaction
- Effectiveness
- Efficacy
- Emerging Infections
- Epidemic
- Etiology of Disease
- Exposure Assessment
- Fertility, Measures of
- Fetal Death, Measures of
- Gestational Age
- Health, Definitions of
- Herd Immunity
- Hill's Considerations for Causal Inference
- Incidence
- Indirect Standardization
- Koch's Postulates
- Life Course Approach
- Life Expectancy
- Life Tables
- Malnutrition, Measurement of
- Mediating Variable
- Migrant Studies
- Mortality Rates
- Natural Experiment
- Notifiable Disease
- Outbreak Investigation
- Population Pyramid
- Preclinical Phase of Disease
- Preterm Birth
- Prevalence
- Prevention: Primary, Secondary, and Tertiary
- Public Health Surveillance
- Qualitative Methods in Epidemiology
- Quarantine and Isolation
- Screening
- Sensitivity and Specificity
- Sentinel Health Event
- Syndemics
- Epidemiologic Data
- Administrative Data
- American Cancer Society Cohort Studies
- Behavioral Risk Factor Surveillance System
- Biomedical Informatics
- Birth Certificate
- Cancer Registries
- Death Certificate
- Framingham Heart Study
- Global Burden of Disease Project
- Harvard Six Cities Study
- Health Plan Employer Data and Information Set
- Healthcare Cost and Utilization Project
- Healthy People 2010
- Honolulu Heart Program
- Illicit Drug Use, Acquiring Information on
- Medical Expenditure Panel Survey
- Monitoring the Future Survey
- National Ambulatory Medical Care Survey
- National Death Index
- National Health and Nutrition Examination Survey
- National Health Care Survey
- National Health Interview Survey
- National Immunization Survey
- National Maternal and Infant Health Survey
- National Mortality Followback Survey
- National Survey of Family Growth
- Physicians' Health Study
- Pregnancy Risk Assessment and Monitoring System
- Relational Database
- Rochester Epidemiology Project
- Sampling Techniques
- Secondary Data
- Spreadsheet
- Youth Risk Behavior Surveillance System
- Ethics
- Genetics
- Association, Genetic
- Chromosome
- Epigenetics
- Family Studies in Genetics
- Gene
- Gene-Environment Interaction
- Genetic Counseling
- Genetic Disorders
- Genetic Epidemiology
- Genetic Markers
- Genomics
- Genotype
- Hardy-Weinberg Law
- Heritability
- Human Genome Project
- Icelandic Genetics Database
- Linkage Analysis
- Molecular Epidemiology
- Multifactorial Inheritance
- Mutation
- Newborn Screening Programs
- Phenotype
- Teratogen
- Twin Studies
- Health Care Economics and Management
- Biomedical Informatics
- EuroQoL EQ-5D Questionnaire
- Evidence-Based Medicine
- Formulary, Drug
- Functional Status
- Health Care Delivery
- Health Care Services Utilization
- Health Economics
- International Classification of Diseases
- International Classification of Functioning, Disability, and Health
- Managed Care
- Medicaid
- Medicare
- Partner Notification
- Quality of Life, Quantification of
- Quality of Well-Being Scale (QWB)
- SF-36® Health Survey
- Health Risks and Health Behaviors
- Agent Orange
- Alcohol Use
- Allergen
- Asbestos
- Bioterrorism
- Child Abuse
- Cholesterol
- Circumcision, Male
- Diabetes
- Drug Abuse and Dependence, Epidemiology of
- Eating Disorders
- Emerging Infections
- Firearms
- Foodborne Diseases
- Harm Reduction
- Hormone Replacement Therapy
- Intimate Partner Violence
- Lead
- Love Canal
- Malnutrition, Measurement of
- Mercury
- Obesity
- Oral Contraceptives
- Pain
- Physical Activity and Health
- Pollution
- Poverty and Health
- Radiation
- Sexual Risk Behavior
- Sick Building Syndrome
- Social Capital and Health
- Social Hierarchy and Health
- Socioeconomic Classification
- Spirituality and Health
- Stress
- Teratogen
- Thalidomide
- Tobacco
- Urban Health Issues
- Urban Sprawl
- Vehicle-Related Injuries
- Violence as a Public Health Issue
- Vitamin Deficiency Diseases
- War
- Waterborne Diseases
- Zoonotic Disease
- History and Biography
- Budd, William
- Doll, Richard
- Ehrlich, Paul
- Epidemiology, History of
- Eugenics
- Farr, William
- Frost, Wade Hampton
- Genocide
- Goldberger, Joseph
- Graunt, John
- Hamilton, Alice
- Hill, Austin Bradford
- Jenner, Edward
- Keys, Ancel
- Koch, Robert
- Lind, James
- Lister, Joseph
- Nightingale, Florence
- Pasteur, Louis
- Public Health, History of
- Reed, Walter
- Ricketts, Howard
- Rush, Benjamin
- Snow, John
- Tukey, John
- Tuskegee Study
- Infrastructure of Epidemiology and Public Health
- American College of Epidemiology
- American Public Health Association
- Association of Schools of Public Health
- Centers for Disease Control and Prevention
- Council of State and Territorial Epidemiologists
- European Public Health Alliance
- European Union Public Health Programs
- Food and Drug Administration
- Governmental Role in Public Health
- Healthy People 2010
- Institutional Review Board
- Journals, Epidemiological
- Journals, Public Health
- National Center for Health Statistics
- National Institutes of Health
- Pan American Health Organization
- Peer Review Process
- Public Health Agency of Canada
- Publication Bias
- Society for Epidemiologic Research
- Surgeon General, U.S.
- U.S. Public Health Service
- United Nations Children's Fund
- World Health Organization
- Medical Care and Research
- Allergen
- Apgar Score
- Barker Hypothesis
- Birth Defects
- Body Mass Index (BMI)
- Carcinogen
- Case Reports and Case Series
- Clinical Epidemiology
- Clinical Trials
- Community Health
- Community Trial
- Comorbidity
- Complementary and Alternative Medicine
- Effectiveness
- Efficacy
- Emerging Infections
- Etiology of Disease
- Evidence-Based Medicine
- Gestational Age
- Intent-to-Treat Analysis
- International Classification of Diseases
- International Classification of Functioning, Disability, and Health
- Latency and Incubation Periods
- Life Course Approach
- Malnutrition, Measurement of
- Medical Anthropology
- Organ Donation
- Pain
- Placebo Effect
- Preclinical Phase of Disease
- Preterm Birth
- Public Health Nursing
- Quarantine and Isolation
- Screening
- Vaccination
- Specific Populations
- African American Health Issues
- Aging, Epidemiology of
- American Indian Health Issues
- Asian American/Pacific Islander Health Issues
- Breastfeeding
- Child and Adolescent Health
- Epidemiology in Developing Countries
- Hormone Replacement Therapy
- Immigrant and Refugee Health Issues
- Latino Health Issues
- Maternal and Child Health Epidemiology
- Men's Health Issues
- Oral Contraceptives
- Race and Ethnicity, Measurement Issues With
- Race Bridging
- Rural Health Issues
- Sexual Minorities, Health Issues of
- Urban Health Issues
- Women's Health Issues
- Statistics and Research Methods
- F Test
- p Value
- Additive and Multiplicative Models
- Analysis of Covariance
- Analysis of Variance
- Bar Chart
- Bayes's Theorem
- Bayesian Approach to Statistics
- Bias
- Binomial Variable
- Birth Cohort Analysis
- Box-and-Whisker Plot
- Capture-Recapture Method
- Categorical Data, Analysis of
- Causal Diagrams
- Causation and Causal Inference
- Censored Data
- Central Limit Theorem
- Chi-Square Test
- Classification and Regression Tree Models
- Cluster Analysis
- Coefficient of Determination
- Cohort Effects
- Collinearity
- Community Trial
- Community-Based Participatory Research
- Confidence Interval
- Confounding
- Control Group
- Control Variable
- Convenience Sample
- Cox Model
- Critical Value
- Cumulative Incidence
- Data Management
- Data Transformations
- Decision Analysis
- Degrees of Freedom
- Dependent and Independent Variables
- Diffusion of Innovations
- Discriminant Analysis
- Dose-Response Relationship
- Doubling Time
- Dummy Coding
- Dummy Variable
- Ecological Fallacy
- Economic Evaluation
- Effect Modification and Interaction
- Factor Analysis
- Fisher's Exact Test
- Geographical and Spatial Analysis
- Graphical Presentation of Data
- Halo Effect
- Hawthorne Effect
- Hazard Rate
- Healthy Worker Effect
- Hill's Considerations for Causal Inference
- Histogram
- Hypothesis Testing
- Inferential and Descriptive Statistics
- Intent-to-Treat Analysis
- Internet Data Collection
- Interquartile Range
- Interrater Reliability
- Intervention Studies
- Interview Techniques
- Kaplan-Meier Method
- Kappa
- Kurtosis
- Latent Class Models
- Life Tables
- Likelihood Ratio
- Likert Scale
- Log-Rank Test
- Logistic Regression
- Longitudinal Research Design
- Matching
- Measurement
- Measures of Association
- Measures of Central Tendency
- Measures of Variability
- Meta-Analysis
- Missing Data Methods
- Multilevel Modeling
- Multiple Comparison Procedures
- Multivariate Analysis of Variance
- Natural Experiment
- Network Analysis
- Nonparametric Statistics
- Normal Distribution
- Null and Alternative Hypotheses
- Observational Studies
- Overmatching
- Panel Data
- Participatory Action Research
- Pearson Correlation Coefficient
- Percentiles
- Person-Time Units
- Pie Chart
- Placebo Effect
- Point Estimate
- Probability Sample
- Program Evaluation
- Propensity Score
- Proportion
- Qualitative Methods in Epidemiology
- Quasi Experiments
- Questionnaire Design
- Race Bridging
- Random Variable
- Random-Digit Dialing
- Randomization
- Rate
- Ratio
- Receiver Operating Characteristic (ROC) Curve
- Regression
- Relational Database
- Reliability
- Response Rate
- Robust Statistics
- Sample Size Calculations and Statistical Power
- Sampling Distribution
- Sampling Techniques
- Scatterplot
- Secondary Data
- Sensitivity and Specificity
- Sequential Analysis
- Simpson's Paradox
- Skewness
- Spreadsheet
- Stem-and-Leaf Plot
- Stratified Methods
- Structural Equation Modeling
- Study Design
- Survival Analysis
- Target Population
- Time Series
- Type I and Type II Errors
- Unit of Analysis
- Validity
- Volunteer Effect
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