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Hospice is a multidisciplinary approach to caring for individuals who have a terminal illness or condition. It is based on a philosophy that affirms life and advocates self-determination. The family is considered the unit of care and the hospice team of professionals provides medical, emotional, and spiritual assistance to patients as well as to their families and friends. Typically a team includes physicians, nurses, chaplains, social workers, counselors, nursing assistants, holistic practitioners, trained volunteers, and administrative and clerical staff. Services may be provided in an inpatient setting, long-term care facility, or the patient's home.

History

The word hospice is derived from the Latin hospitium, an inn for travelers usually maintained by members of a religious order. Jeanne Gamier, founder of the Dames de Calaire in Lyon, France, first used the name with reference to the care of dying patients in 1842. In 1879 the Irish Sisters of Charity opened Our Lady's Hospice in Dublin, and in 1905 they established St. Joseph's Hospice in London. The founder of the modern hospice movement was Cicely Saunders, a physician, who started St. Christopher's Hospice in London in 1967. She was inspired by a patient, David Tasma, with inoperable cancer. The two discussed how the care of dying patients might best be done in a setting specifically created for it, and when Tasma died, he left Saunders money to establish such a place. During the next several years the hospice concept spread throughout the world. In 1974, hospice care was introduced in the United States at Yale University in New Haven, Connecticut.

Administration and Funding

Types

Hospice services are provided in a variety of settings and have multiple avenues of funding. They may be part of a home health agency, have a freestanding facility or space in a local hospital, or be provided to patients in their homes or wherever they may be staying. Hospices may rarely be staffed by volunteers but are usually operated by paid specialists.

Admission

To be admitted to a hospice program, a patient must obtain a physician's order. This order can be requested by anyone, including the patient, a family member, or a health-care provider. Any physician can write such an order as long as it states that in the physician's best medical judgment, the patient has 6 months or less to live, regardless of age or diagnosis. Hospice care will be continued as long as the patient lives, provided a progressive decline can be demonstrated.

Funding

Once admitted to the hospice program, most patients are eligible for funding under the Hospice Medicare benefit, which does not depend on age. Patients may qualify for other financial resources, such as Medicaid. Hospices also receive funding from grants and donations, fundraising activities, and other state, local, or federal sources. Most hospices have a policy of providing service to those in need even if the usual avenues of reimbursement are not available. Besides those already mentioned, such services typically include paying for any medications related to the patient's diagnosis and providing needed equipment, such as oxygen delivery systems, wheelchairs, hospital beds, and similar supplies.

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