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Decision-Making Capacity

A preponderance of the research literature on decisional capacity among those with intellectual and developmental disabilities (ID/DD) relates to health care, participation in research, or legal proceedings. It is important to remember, however, that there are many areas for which the capacity of individuals with ID/DD to make or participate in decisions must be assessed. These include where and with whom an individual lives, how much support is needed for personal care, what type of vocation to pursue, and reproductive and health care decisions.

Best practices for professionals and caregivers are to take a person-centered approach by working toward full inclusion of the individual with ID/DD in the decision-making process. However, assumptions regarding decisional capacity and potential conflicts over what is deemed to be in the ...

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