The SAGE Handbook of Healthcare Ethics is an influential collection of work by leading scholars on the fundamental and emerging themes which define healthcare ethics. This authoritative Handbook brings together experts with backgrounds in philosophy, sociology, law, public policy and the health professions and reflects the increasing impact of globalization and the dynamic advances in the fields of bioscience and genetics, which keep ethics at the centre of debates about the future direction of healthcare. Combining international and interdisciplinary perspectives, the Handbook provides a cutting-edge account of debates in five key areas: Health Care Ethics in an Era of Globalization; Beginning and End of Life; Vulnerable Populations; Research Ethics and Technologies; Public Health and Human Rights

Chapter 22: Medical Research Involving Children: A Review of International Policy Statements

Medical Research Involving Children: A Review of International Policy Statements

Medical research involving children: A review of international policy statements

Introduction

The participation of children in research is of great importance to child health and wellbeing, but has always been a source of controversy. Because of their incapacity to give informed consent, children have been either under- or over-protected in clinical research. History in the nineteenth and twentieth centuries is illustrative of the abuse of children in research (Grodin and Glantz, 1994). As a result, the protection of children has been equated by most researchers with their exclusion from research (Kodish, 2005). In spite of their vulnerability, research involving children is essential since physiologically and psychologically they differ from adults. They are not small adults and some ...

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