When a family faces a chronic illness or disability in one of its members, numerous challenges often present themselves and affect all areas of family life. Work or school attendance can be compromised by the condition or the need for ongoing health care. Unanticipated or burdensome health care expenses can compromise a family's financial situation. Usual caregiving roles may be disrupted if a caregiver is ill and other members of the family need to assume new responsibilities. In addition, each family member must adapt to the diagnosis and medical needs of the ill or disabled person and deal with their own sadness or worry. A significant challenge faced by many families is the need to learn about service systems and advocate for, and access care ...