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Community-Based Participatory Research (CBPR)
Community-based participatory research (CBPR) is a collaborative research approach that directly and equitably links researchers and communities to jointly study an issue. A key feature of CBPR is the recognition that researchers and communities each bring unique strengths and perspectives to the research process, enabling a combination of knowledge and action to achieve social change. In the health services research arena, this achievement often leads to improved health outcomes and reduced health disparities.
The CBPR model serves to establish a structure within which community and academic participants work together to achieve a balanced set of research methods, tools, and priorities. When members of communities affected by the issue being studied are invited to participate in the research process, they are given unique opportunities to influence their surroundings. As a result, the CBPR approach is a powerful means of satisfying the rigors of scientific research and addressing the needs of the communities involved—communities that often consist of underserved and marginalized individuals.
History
CBPR is rooted within social psychologist Kurt Lewin's “action research” school, which rejected traditional notions that objectivity could only be achieved by removing oneself from the community of interest. In the 1940s, Lewin's research focused on creating mutually beneficial relationships between researcher and community and helping community leaders use research data to achieve social change. Lewin's approach emphasized a continuous cycle of planning, action, reflection, and decision making that resembles a spiral of cascading steps.
In the first step, a general issue is identified. Part of what makes the action research approach inherently unique is the belief that this initial issue should come from the community of interest itself, rather than from academia. The results of this community involvement from the start include a community's sense of empowerment, trust in the research team, and investment in the project itself.
The next step is a careful examination of the issue within the context of the community, from which comes an overall plan to guide the research. Action is taken in the next step, after which an evaluation occurs. Whether formal or informal, the evaluation usually results in a revision of the plan and additional action steps, and the cycle continues with the constant reciprocation between researcher and community.
In the 1970s, early examples of participatory research in action appeared in several developing nations, where scholars such as Brazilian educator Paolo Freire rejected “colonial” research methods in favor of more community-oriented ones. Freire's approach built on the critical pedagogy he put forward as a response to the traditional formal models of education in Latin America. Using the same continuous cycle of steps employed by Lewin, Freire examined the process of learning as a way to stimulate critical thinking and raise students' critical awareness of their environment. Inherently political in nature, his approach triggered social changes that reduced the divide between the powerful and the marginalized.
In 1984, the Centers for Disease Control and Prevention (CDC) established the Prevention Research Centers (PRC) Program, a network of academic researchers, public health agencies, and community members that conducts applied research in disease prevention and control. The CDC set forth four core values in keeping with the fundamental goals of the CBPR: respect, trust, integrity, and accountability. Key activities of the PRC Program include establishment of multidisciplinary research teams, creation of research networks for priority health issues, generation of long-term relationships for engaging communities as partners in research, and development of public health researchers' skills for working with communities. There are currently more than 30 PRCs located in schools of public health and medicine, enabling academic researchers to easily identify and partner with public health agencies and communities. In 1997, the Institute of Medicine (IOM) recommended CBPR as one of eight new areas in public health education.
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- Access to Care
- Access to Healthcare
- Access, Models of
- Critical Access Hospitals (CAHs)
- Cultural Competency
- Direct-to-Consumer Advertising (DTCA)
- E-Health
- E-Prescribing
- Ethnic and Racial Barriers to Healthcare
- Geographic Barriers to Healthcare
- Health Communication
- Health Literacy
- Health Professional Shortage Areas (HPSAs)
- Healthcare Web Sites
- Hospital Closures
- Inner-City Healthcare
- Medical Travel
- National Health Service Corps (NHSC)
- Patient Dumping
- Patient Transfers
- Rural Health
- Safety Net
- Telemedicine
- Transportation
- Accreditation, Associations, Foundations, and Research Organizations
- Accreditation
- Associations
- AARP
- AcademyHealth
- America's Health Insurance Plans (AHIP)
- American Academy of Family Physicians (AAFP)
- American Academy of Pediatrics (AAP)
- American Association of Colleges of Nursing (AACN)
- American Association of Preferred Provider Organizations (AAPPO)
- American College of Healthcare Executives (ACHE)
- American Health Care Association (AHCA)
- American Health Planning Association (AHPA)
- American Hospital Association (AHA)
- American Medical Association (AMA)
- American Nurses Association (ANA)
- American Osteopathic Association (AOA)
- American Public Health Association (APHA)
- American Society of Health Economics (ASHE)
- Association of American Medical Colleges (AAMC)
- Association of University Programs in Health Administration (AUPHA)
- Healthcare Financial Management Association (HFMA)
- Institute for Healthcare Improvement (IHI)
- International Health Economics Association (IHEA)
- National Alliance for the Mentally Ill (NAMI)
- National Association of Health Data Organizations (NAHDO)
- National Association of State Medicaid Directors (NASMD)
- National Center for Assisted Living (NCAL)
- National Citizens' Coalition for Nursing Home Reform (NCCNHR)
- National Coalition on Health Care (NCHC)
- National Commission for Quality Long-Term Care (NCQLTC)
- National Health Policy Forum (NHPF)
- National Medical Association (NMA)
- National Quality Forum (NQF)
- University HealthSystem Consortium (UHC)
- Business Coalitions
- Foundations
- Research Organizations
- Biographies of Current and Past Leaders - Current Leaders
- Current Leaders
- Aday, Lu Ann
- Aiken, Linda H.
- Altman, Drew E.
- Andersen, Ronald M.
- Arrow, Kenneth J.
- Berwick, Donald M.
- Brook, Robert H.
- Chassin, Mark R.
- Clancy, Carolyn M.
- Culyer, Anthony J.
- Davis, Karen
- Drummond, Michael
- Ellwood, Paul M.
- Enthoven, Alain C.
- Evans, Robert G.
- Feder, Judith
- Fuchs, Victor R.
- Ginsburg, Paul B.
- Grossman, Michael
- Kane, Robert L.
- Katz, Sidney
- Lee, Philip R.
- Lomas, Jonathan
- Luft, Harold S.
- Marmor, Theodore R.
- Maynard, Alan
- Mechanic, David
- Naylor, C. David
- Newhouse, Joseph P.
- O'Leary, Dennis S.
- Pauly, Mark V.
- Reinhardt, Uwe E.
- Relman, Arnold S.
- Rice, Dorothy P.
- Roos, Leslie L.
- Roos, Noralou P.
- Rosenbaum, Sara
- Sackett, David L.
- Scott, W. Richard
- Shortell, Stephen M.
- Starfield, Barbara
- Starr, Paul
- Stevens, Rosemary A.
- Tarlov, Alvin R.
- Ware, John E.
- Wennberg, John E.
- White, Kerr L.
- Wilensky, Gail R.
- Past Leaders
- Anderson, Odin W.
- Cochrane, Archibald L.
- Codman, Ernest Amory
- Cohen, Wilbur J.
- Davis, Michael M.
- Donabedian, Avedis
- Eisenberg, John M.
- Farr, William
- Flexner, Abraham
- Ginzberg, Eli
- Kimball, Justin Ford
- McNerney, Walter J.
- Nightingale, Florence
- Roemer, Milton I.
- Rorem, C. Rufus
- Shapiro, Sam
- Sheps, Cecil G.
- Thompson, John Devereaux
- Williams, Alan H.
- Current Leaders
- Cost of Care, Economics, Finance, and Payment Mechanisms
- Administrative Costs
- Capitation
- Charity Care
- Committee on the Costs of Medical Care (CCMC)
- Compensation Differentials
- Cost Containment Strategies
- Cost of Healthcare
- Cost Shifting
- Cost-Benefit and Cost-Effectiveness Analyses
- Current Procedural Terminology (CPT)
- Diagnosis Related Groups (DRGs)
- Economic Barriers to Healthcare
- Economic Recessions
- Economic Spillover
- Economies of Scale
- Fee-for-Service
- Flat-of-the-Curve Medicine
- Health Economics
- Healthcare Financial Management
- Healthcare Markets
- Inflation in Healthcare
- Long-Term Care Costs in the United States
- Market Failure
- Pay-for-Performance
- Payment Mechanisms
- Pharmacoeconomics
- Prospective Payment
- Resource-Based Relative Value Scale (RBRVS)
- Supplier-Induced Demand
- U.S. National Health Expenditures
- Uncompensated Healthcare
- Disease, Disability, Health, and Health Behavior
- Activities of Daily Living (ADL)
- Acute and Chronic Diseases
- Adverse Drug Events
- Chronic-Care Model
- Diabetes
- Disability
- Disease
- Emerging Diseases
- Genetics
- Health
- Health Indicators, Leading
- Iatrogenic Disease
- Infectious Diseases
- International Classification of Diseases (ICD)
- Life Expectancy
- Medical Sociology
- Medicalization
- Mental Health
- Morbidity
- Mortality
- Mortality, Major Causes in the United States
- Obesity
- Pain
- Prescription and Generic Drug Use
- Tobacco Use
- Government and International Healthcare Organizations
- International Organizations
- Canadian Association for Health Services and Policy Research (CAHSPR)
- Canadian Health Services Research Foundation (CHSRF)
- Canadian Institute of Health Services and Policy Research (IHSPR)
- Pan American Health Organization (PAHO)
- United Kingdom's National Health Service (NHS)
- United Kingdom's National Institute for Health and Clinical Excellence (NICE)
- World Health Organization (WHO)
- U.S. Government Organizations
- Agency for Healthcare Research and Quality (AHRQ)
- Centers for Disease Control and Prevention (CDC)
- Centers for Medicare and Medicaid Services (CMS)
- Congressional Budget Office (CBO)
- Health Resources and Services Administration (HRSA)
- Indian Health Service (IHS)
- Medicare Payment Advisory Commission (MedPAC)
- National Center for Health Statistics (NCHS)
- National Guideline Clearinghouse (NGC)
- National Information Center on Health Services Research and Health Care Technology (NICHSR)
- National Institutes of Health (NIH)
- Substance Abuse and Mental Health Services Administration (SAMHSA)
- TRICARE, Military Health System
- U.S. Department of Veterans Affairs (VA)
- U.S. Food and Drug Administration (FDA)
- U.S. Government Accountability Office (GAO)
- International Organizations
- Health Insurance
- Adverse Selection
- Blue Cross and Blue Shield
- Carve-Outs
- Coinsurance, Copays, and Deductibles
- Consumer-Directed Health Plans (CDHPs)
- Crowd-Out
- Employee Health Benefits
- Flexible Spending Accounts (FSAs)
- Health Insurance
- Health Insurance Coverage
- Health Savings Accounts (HSAs)
- Medicaid
- Medicare
- Medicare Part D Prescription Drug Benefit
- Moral Hazard
- RAND Health Insurance Experiment
- Selective Contracting
- Single-Payer System
- State Children's Health Insurance Program (SCHIP)
- State-Based Health Insurance Initiatives
- Tax Subsidy of Employer-Sponsored Health Insurance
- Health Professionals and Healthcare Organizations
- Academic Medical Centers
- Allied Health Professionals
- Ambulatory Care
- Case Management
- Chiropractors
- Community Health Centers (CHCs)
- Community Mental Health Centers (CMHCs)
- Complementary and Alternative Medicine
- Dentists and Dental Care
- Disease Management
- Diversity in Healthcare Management
- Emergency Medical Services (EMS)
- Eye Care Services
- Federally Qualified Health Centers (FQHCs)
- Free Clinics
- General Practice
- Health Maintenance Organizations (HMOs)
- Health Systems Agencies (HSAs)
- Health Workforce
- Healthcare Organization Theory
- Home Health Care
- Hospice
- Hospital Emergency Departments
- Hospitalists
- Hospitals
- Intensive-Care Units
- Intermediate-Care Facilities (ICFs)
- Long-Term Care
- Managed Care
- Medical Group Practice
- Multihospital Healthcare Systems
- Nonprofit Healthcare Organizations
- Nurse Practitioners (NPs)
- Nurses
- Nursing Homes
- Pharmaceutical Industry
- Pharmacy
- Physician Assistants
- Physician Workforce Issues
- Physicians
- Physicians, Osteopathic
- Preferred Provider Organizations (PPOs)
- Primary Care
- Primary-Care Case Management (PCCM)
- Primary-Care Physicians
- Skilled-Nursing Facilities
- Health Services Research
- Data Sources in Conducting Health Services Research
- Health Services Research at the Veterans Health Administration (VHA)
- Health Services Research in Australia
- Health Services Research in Canada
- Health Services Research in Dentistry and Oral Health
- Health Services Research in Eastern Europe
- Health Services Research in Germany
- Health Services Research in Sub-Saharan Africa
- Health Services Research in the People's Republic of China
- Health Services Research in the United Kingdom
- Health Services Research Journals
- Health Services Research, Definition
- Health Services Research, Origins
- Laws, Regulations, and Ethics
- Measurement, Data Sources and Coding, and Research Methods
- Case-Mix Adjustment
- Causal Analysis
- Clinical Decision Support
- Cohort Studies
- Community-Based Participatory Research (CBPR)
- Computers
- Cross-Sectional Studies
- Data Privacy
- Data Security
- Diagnostic and Statistical Manual of Mental Disorders (DSM)
- Electronic Clinical Records
- Evidence-Based Medicine (EBM)
- General Health Questionnaire
- Geographic Information Systems (GIS)
- Health Informatics
- Health Surveys
- Healthcare Cost and Utilization Project (HCUP)
- Healthcare Effectiveness Data and Information Set (HEDIS)
- Healthcare Informatics Research
- Measurement in Health Services Research
- Meta-Analysis
- Minimum Data Set (MDS) for Nursing Home Resident Assessment
- National Practitioner Data Bank (NPDB)
- ORYX Performance Measurement System
- Provider-Based Research Networks (PBRNs)
- Quality of Well-Being Scale (QWB)
- Randomized Controlled Trials (RCTs)
- Satisfaction Surveys
- Severity Adjustment
- Short-Form Health Surveys (SF-36, -12, -8)
- Outcomes of Care
- Policy Issues, Healthcare Reform, and International Comparisons
- Comparing Health Systems
- Competition in Healthcare
- Equity, Efficiency, and Effectiveness in Healthcare
- Focused Factories
- For-Profit Versus Not-for-Profit Healthcare
- Forces Changing Healthcare
- Health Disparities
- Healthcare Reform
- International Health Systems
- National Health Insurance
- National Healthcare Disparities Report (NHDR)
- Public Policy
- Rationing Healthcare
- Technology Assessment
- Public Health
- Quality and Safety of Care
- Accreditation
- Benchmarking
- Clinical Practice Guidelines
- Continuum of Care
- Credentialing
- Geographic Variations in Healthcare
- International Classification for Patient Safety (ICPS)
- Malpractice
- Medical Errors
- National Healthcare Quality Report (NHQR)
- National Patient Safety Goals (NPSG)
- Nursing Home Quality
- Patient Safety
- Patient-Centered Care
- Quality Enhancement Research Initiative (QUERI) of the Veterans Health Administration (VHA)
- Quality Improvement Organizations (QIOs)
- Quality Indicators
- Quality Management
- Quality of Healthcare
- Quality of Life, Health-Related (HRQOL)
- Quality-Adjusted Life Years (QALYs)
- Structure-Process-Outcome Quality Measures
- Timeliness of Healthcare
- Special and Vulnerable Groups
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