Making an original contribution to debates on health policy, this accessible and engaging book critically examines the future of health care and public health policy from the perspective of users and citizens. Consumerism, partnerships with patients and user involvement are seen as key to future health care and healthy public policies. The book outlines how individuals as patients, healthy people and research subjects relate to health services and how the public, as citizens, influence health care and public policies at local, national and international levels.
Chapter 4: Research
It's always the patient who has to take the chance when an experiment is necessary. And we can find out nothing without experiment.
Research should be undertaken with women and not on women.
We rely on researchers to increase our understanding of diseases and develop more effective ways of treating them. In addition, achieving efficiency and effectiveness – major preoccupations of Western health policy – relies on research and audit to provide the evidence base for clinical practice. Research needs patients, but in spite of this, in science-led research, they are seen only as the host of the disease or the ‘human subjects’. In epidemiological research patients are only important ...