Some people have always had to find ways of living with long term conditions such as diabetes or celiac disease, but as people live longer, increasing numbers of us now experience long-term poor health. While some conditions that previously limited the length of life are manageable a growing number of people live with long-term conditions. Against this backdrop, Long-Term Conditions explores the complex issues surrounding the experience of long-term illness and the enormous pressure this puts on individuals, their families and careers and on health and social care services.
The perspectives of each of these groups are voiced within this book, with chapters written by people who use health and social care services, careers, policy-makers and practitioners.
Using a variety of research methods to get to the heart of the matter, the book probes assumptions about the experience of long-term poor health and what constitutes good care. Its aim is to challenge readers to think critically about existing policy and provision and to inspire change based on sound evidence and a drive towards greater multi-professional working.
Long-Term Conditions provides academics, practitioners and students with a thorough grounding in the complex issues surrounding the experience and management of long-term illness. It is an ideal text for courses on policy, management and practice in health and social care.
Chapter 6: How to Make Health and Social Care Research Radical and Really, Really Useful
How to Make Health and Social Care Research Radical and Really, Really Useful
- How can people with long-term conditions and other users of health and social services really be involved in relevant research?
- In what practical, ethical and principled ways can people make a meaningful contribution to, and have real influence on, research activities that may affect their lives?
- Redistribution of power will be required if people who use services are to become the main driver in the research process and not simply research subjects
Christmas time 2000, the millennium was dawning, but I was celebrating quite a different milestone. On the 18 December 2000 I, yes me – who had been advised to work as ...