Some people have always had to find ways of living with long term conditions such as diabetes or celiac disease, but as people live longer, increasing numbers of us now experience long-term poor health. While some conditions that previously limited the length of life are manageable a growing number of people live with long-term conditions. Against this backdrop, Long-Term Conditions explores the complex issues surrounding the experience of long-term illness and the enormous pressure this puts on individuals, their families and careers and on health and social care services.

The perspectives of each of these groups are voiced within this book, with chapters written by people who use health and social care services, careers, policy-makers and practitioners.

Using a variety of research methods to get to the heart of the matter, the book probes assumptions about the experience of long-term poor health and what constitutes good care. Its aim is to challenge readers to think critically about existing policy and provision and to inspire change based on sound evidence and a drive towards greater multi-professional working.

Long-Term Conditions provides academics, practitioners and students with a thorough grounding in the complex issues surrounding the experience and management of long-term illness. It is an ideal text for courses on policy, management and practice in health and social care.

Me and ME: Therapeutic Landscapes in an Unfamiliar World

Me and ME: Therapeutic landscapes in an unfamiliar world


  • Living with ME
  • An experience of exclusion
  • Creating therapeutic landscapes
  • Using a spatial framework to understand and support illness experiences

This chapter, based on on-going research, explores the shifting worlds of long-term illness and the emergent landscapes, for people living with ME. There has been previous research on patient's constructions of ME (Guise et al., 2007), and their beliefs about the causes of their condition (Clements et al., 1997), but here I shift the emphasis and focus not on the construction of ME itself, but on the construction of the worlds people live in when living with ME. The landscapes that individuals experience, either physically or mentally, have a profound influence on ...

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