Some people have always had to find ways of living with long term conditions such as diabetes or celiac disease, but as people live longer, increasing numbers of us now experience long-term poor health. While some conditions that previously limited the length of life are manageable a growing number of people live with long-term conditions. Against this backdrop, Long-Term Conditions explores the complex issues surrounding the experience of long-term illness and the enormous pressure this puts on individuals, their families and careers and on health and social care services.

The perspectives of each of these groups are voiced within this book, with chapters written by people who use health and social care services, careers, policy-makers and practitioners.

Using a variety of research methods to get to the heart of the matter, the book probes assumptions about the experience of long-term poor health and what constitutes good care. Its aim is to challenge readers to think critically about existing policy and provision and to inspire change based on sound evidence and a drive towards greater multi-professional working.

Long-Term Conditions provides academics, practitioners and students with a thorough grounding in the complex issues surrounding the experience and management of long-term illness. It is an ideal text for courses on policy, management and practice in health and social care.

What About the Carers?

What about the carers?


  • Community care
  • The effects of caring on carers
  • The modernization agenda
  • The modernization agenda and carers
  • Conclusion

Discussion, debate and policy relating to the management of the complex needs of individuals with long-term conditions often focuses on the formal organization and delivery of health and social care. As a result, the more than significant contribution made by those caring for people with these conditions on an informal basis is often overlooked. The term ‘carer’ is used to refer to someone caring for a person who cannot care for himself/herself and, excluding benefits, carries this out on an unpaid basis. This chapter focuses on the carers of people with long-term conditions who cannot self-manage, and aims to provide an analysis of the role of ...

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