Examining caregiving issues from a multigenerational, family life cycle perspective, this volume deals with the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and discusses responses to these challenges by both caregiving families and caregiving systems. Part One addresses the caregiving paradigm and the relationship of family caregiving research to family life studies. Part Two examines conceptual aspects of caregiving, ranging from the expansion of the caregiving paradigm, caregiving processes and tasks, to the positive aspects of caregiving. Part Three emphasizes how family caregivers are affected by the connection (or lack of it) to macro-level systems.
Chapter 5: Caregiving and Children
Caregiving and Children
Families caring for children with special medical needs are normal families in a nonnormal situation. Tension between normality (trying to achieve it, determining what it is) and nonnormality (the special challenges and extra demands that are chronic) is one of the many polarities creating a struggle for these families. And like life struggles generally faced by individuals and families, it strengthens and enhances some, and it overwhelms and undermines others. The challenge to health professionals is, first, to identify and describe those factors associated with competence and resilience in children with illness and in their parents and families. Second, there is a need to promote those factors through education of health providers, through prevention programs and clinical ...