Examining caregiving issues from a multigenerational, family life cycle perspective, this volume deals with the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and discusses responses to these challenges by both caregiving families and caregiving systems. Part One addresses the caregiving paradigm and the relationship of family caregiving research to family life studies. Part Two examines conceptual aspects of caregiving, ranging from the expansion of the caregiving paradigm, caregiving processes and tasks, to the positive aspects of caregiving. Part Three emphasizes how family caregivers are affected by the connection (or lack of it) to macro-level systems.

Care at Home: Family Caregivers and Home Care Workers

Care at Home: Family Caregivers and Home Care Workers

Care at home: Family caregivers and home care workers
Lucy RoseFischer, Nancy N.Eustis

This chapter examines the interrelationship of two important components of long-term care systems: family caregiving and paid home care. What are the linkages between these “informal” and “formal” systems of care? How different is home care by family members versus paid workers? What conditions lead to cooperation or conflict between family caregivers and paid home care workers? How are services coordinated?


A number of gerontologists and specialists on long-term health care have noted that more understanding is needed of the intermeshing of formal and informal care. Cantor and Little (1985), for example, commented: “With informal care such a crucial part of the social care system, ...

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