This textbook brings together a wide range of expert voices from the field of disability studies and the disabled people's movement to tackle the essential topics relevant to this area of study. From the outset disability is discussed from a social model perspective, demonstrating how future practice and discourse could break down barriers and lead to more equal relationships for disabled people in everyday life.
An interdisciplinary and broad-ranging text, the book includes 50 chapters on topics relevant across health and social care. Reflective questions and suggestions for further reading throughout will help readers gain a critical appreciation of the subject and expand their knowledge.
This will be valuable reading for students and professionals across disability studies, health, nursing, social work, social care, social policy and sociology.
Chapter 42: Service Users' Organisations
Service Users' Organisations
Service user- (or disabled people-) led organisations (ULOs and DPULOs) represent a radical innovation in public policy, pressure group politics and disability action. They have their origins in the organisations of disabled people that began to emerge in the 1980s with the advent of the disabled people's movement. These drew a sharp distinction between themselves, where control lay with disabled people, and the traditional disability charities where control lay with non-disabled people. Since then, such user-led organisations have extended to a wider range of groups as they too have developed social movements, including mental health service users/survivors, people with learning difficulties, young people living in care, older people and others.
[Page 132]Some of these ‘self-organisations’ involve one particular group of people, for ...