Disability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society.

State, Society and Disability in India

State, society and disability in india

The state shall, within the limits of its economic capacity

and development, make effective provisions for securing

the right to work, to education, and to public assistance

in cases of unemployment, old age, sickness, and

disablement and in other cases of undeserving want.

(Article 41 of the Indian Constitution)

Within five decades of the conception and inception of

the welfare state in India, its boundaries have got blurred.

—Ali Baquer

The Indian Constitution established that people with disabilities are entitled to the same social, economic and political rights and privileges as other citizens of India in the Fundamental Rights and Directive Principles of State Policy. Article 41 of the Constitution is the only article that explicitly mentions disabled people but it appears ...

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