This is a primary, comprehensive textbook for people who are considering undertaking a piece of health-related research. It is an accessible companion with the aim of getting the reader to think broadly about all of the issues that need to be considered when embarking on a project. This is a pragmatic book, a step-by-step guide to research which mirrors the structure of a research project, taking you through the thought process for designing and conducting your study from formulating the right research question at idea inception, ascertaining what methodologies and analysis can answer what type of questions, right through to dissemination, all presented in an easy, digestible style. The book is full of case study illustrations and practical tips such as how to work out a research budget and obtaining funding for your project, discussion of what permissions need to obtained when conducting research with people, and how to involve public and patients. The authors are all experienced researchers and so this book is an accumulation of collective wisdom on common research challenges and issues.
Chapter 16: Patient and Public Involvement in your Research
Patient and Public Involvement in your Research
- To understand the theory behind patient and public involvement in research
- To be able to apply the public and patient involvement theory into your own research
- To understand what appropriate involvement is
- To gain some understanding about the impact of patient and public involvement in research
Patient and public involvement in research is research being carried out ‘with’ or ‘by’ patients or members of the public rather than ‘to’, ‘about’ or ‘for’ them. This includes, for example, working with research funders to prioritise research, offering advice as members of a project steering group, commenting on and developing research materials and undertaking interviews with research participants (INVOLVE website, 2012).
The move towards the ...