Huntington’s disease (HD) is a rare and progressive genetic brain disease with a fatal prognosis, affecting between 4 and 7 people in every 100,000 in Western populations, with a lower prevalence rate in Asia. There is currently no cure and no means of delaying disease onset or significantly ameliorating the course of the disease. The ability to control movement, thinking, and emotional behavior is affected by HD, thus affecting the patient’s ability to function in the world, independence, lifespan, and quality of life. Throughout its course, HD has major repercussions for patients and their families, and for their partners in particular. As functional ability and capacities diminish, independence is compromised, and as a consequence, the roles of the patient and the patient’s partner evolve. ...

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