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Muscular Dystrophy and the Family
Muscular dystrophies are genetic diseases of muscle that are characterized by progressive muscle wasting and weakness. There are more than 40 distinct muscular dystrophies including Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), facioscapulohumeral muscular dystrophy (FSHD), the myotonic muscular dystrophies (MMD), and the limb-girdle muscular dystrophies (LGMD). This entry discusses the causes of muscular dystrophies and the burdens these disorders have on families, including adjusting to the diagnosis and optimizing care.
Etiology and Epidemiology of Muscular Dystrophies
DMD is inherited in an X-linked manner and has the highest incidence of the muscular dystrophies, affecting 1 in 3,600 to 6,000 male births. Mutation in the gene for dystrophin results in the absence of this protein, causing progressive muscle degeneration early in life. Typically, the signs of muscle ...
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- Access to Health Care: Child Health
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- Death From Unnatural Causes: Injuries
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- Prediction of Genetic Health Problems in Family Members
- Research Perspectives Used for the Study of Families
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- History of Families
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- Changing Views of Marriage, Home Responsibilities, and Caregiving
- Costs of Medical Care and Existing National, State, and Private Pay Avenues for Families
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- Educating the Family Regarding Serious Mental Illness
- Genograms and the Family
- Drinking by Underage Family Members
- Influence of Close Relationships on Health
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- Child Beginning School
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- Childbirth by Childbearing Couples: Reported Meanings
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- Exercise Promotion and Fitness
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- Early Periodic Screening, Diagnosis, and Treatment Program for Low-Income Children
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- Chronic Health Problems and Interventions for the Elderly Family
- Childlessness
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- Complicated Grief
- Factors Influencing Access to Health Care for Families
- Family Interventions across the Life Span
- Elder Physical Abuse and the Family
- Resilience in Families With Health Challenges
- Deaf and Hearing Families
- Contraception in Childbearing Couples
- Family Adherence to Health Care Regimen
- Family Secrets in Family Therapy
- Elder Sexual Abuse and the Family
- Rituals, Routines, and Their Influence on Health in Families
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- Health Care or Medical Home
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- Foster Care Emancipation
- Home Environments and their Relationship to Safety
- Stress Management Theory and Techniques in Families
- Disabilities and Family Management
- Death Rituals in Families
- Health-Seeking Behavior in Families
- Guardianship/Conservatorship
- Incest in Families
- Families Experiencing Chronic Physical and Mental Health Conditions
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- Home Remedies
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- Divorce and Child Custody
- Managed Care
- Hospice Care
- Shaken Baby Syndrome in Childbearing Families
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- Hospitalization and Family Presence
- Sibling Physical Abuse
- Health Management in Families
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- Family Transitions and Ambiguous Loss
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- Verbal Abuse in Families
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- Partnering With Families: Family-Centered Care
- Kinship Care
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- Grief Work Facilitation
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- Health Needs of Childbearing Families
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- Roles of Health Care Providers for Families, Emerging
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- Types of Family Provider Relationships
- Parenting
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- Premature Infant in the Childbearing Family
- Remarriage and Stepfamilies
- Retirement
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- Sibling Death/Loss
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