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Muscular Dystrophy and the Family
Muscular dystrophies are genetic diseases of muscle that are characterized by progressive muscle wasting and weakness. There are more than 40 distinct muscular dystrophies including Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), facioscapulohumeral muscular dystrophy (FSHD), the myotonic muscular dystrophies (MMD), and the limb-girdle muscular dystrophies (LGMD). This entry discusses the causes of muscular dystrophies and the burdens these disorders have on families, including adjusting to the diagnosis and optimizing care.
Etiology and Epidemiology of Muscular Dystrophies
DMD is inherited in an X-linked manner and has the highest incidence of the muscular dystrophies, affecting 1 in 3,600 to 6,000 male births. Mutation in the gene for dystrophin results in the absence of this protein, causing progressive muscle degeneration early in life. Typically, the signs of muscle ...
- Alcohol Addictions in the Family
- Bullying and the Family
- Child Emotional Abuse and the Family
- Child Neglect and the Family
- Child Physical Abuse and the Family
- Child Sexual Abuse and the Family
- Cigarettes, Smoking, and Secondhand Smoke and Family Health
- Community Violence Exposure and Family Health
- Conflict in Family Life, Role and Management of
- Death From Unnatural Causes: Drug Overdose
- Death From Unnatural Causes: Homicides, Drive-By Shootings
- Death From Unnatural Causes: Injuries
- Death From Unnatural Causes: Poisoning
- Dietary and Exercise Patterns in Families
- Drinking by Underage Family Members
- Drug Addictions in the Family
- Early Periodic Screening, Diagnosis, and Treatment Program for Low-Income Children
- Economic Downturn and Families
- Elder Emotional Abuse and the Family
- Elder Neglect and the Family
- Elder Physical Abuse and the Family
- Elder Sexual Abuse and the Family
- Foster Care for Minors
- Gambling Addictions in the Family
- Home Environments and their Relationship to Safety
- Incest in Families
- Lead Poisoning and the Family
- Rape and the Family
- Refugees and Family Health
- Risk Perception Based on Family Health History
- Shaken Baby Syndrome in Childbearing Families
- Sibling Physical Abuse
- Spouse/Domestic Partner Physical Abuse
- Suicide in the Family
- Verbal Abuse in Families
- War and Families
- Education of Child Life Providers in Family Health
- Education of Health Care Providers: WHO Family Health Nurses
- Education of Medical Health Care Providers in Family Health
- Education of Nursing Health Care Providers in Family Health
- Education of Occupational Health Providers in Family Health
- Education of Physical Therapists in Family Health
- Education of Recreational Therapy Providers in Family Health
- African American Families: Perspectives of Health
- American Indian Families: Perspectives of Health
- Asian Families: Perspectives of Health
- Buddhism's Influence on Health in the Family
- Christianity's Influence on Health in the Family
- Coping Management Styles in Families
- Cultural Attitudes Toward Help Seeking and Beliefs about Illness in Families
- Ethnic/Racial Influences in Families
- Factors Influencing Family Health Values, Beliefs, and Priorities
- Families: The Basic Unit of Societies
- Family Self-Management
- Hinduism's Influence on Health in the Family
- Hispanic/Latino Families: Perspectives of Health
- History of Families
- Influence of Close Relationships on Health
- Islam's Influence on Health in the Family
- Judaism's Influence on Health in the Family
- Poverty, Children in, and Health Care
- Recreation in Family Health
- Religious/Spiritual Influences on Health in the Family
- Resilience in Families With Health Challenges
- Rituals, Routines, and Their Influence on Health in Families
- Sibling Conflict
- Socioeconomic Status of Families
- Stress Management Theory and Techniques in Families
- Acute Health Problems and Interventions for the Childrearing Family
- Acute Health Problems and Interventions for the Midlife Family
- Affect Management and the Family
- Birth Defects and the Family
- Communicable Disease: Adult and Elderly
- Communicable Disease: Children
- Cord Blood Banking and the Childbearing Family
- Developmental Care of Preterm Infants and the Childbearing Family
- Families Experiencing a Child's Illness
- Life-Threatening Illness and the Family
- Men's Health
- Prenatal Surgery and the Family
- Sexually Transmitted Diseases and the Family
- Sport-Related Accidents and Injuries and the Family
- Sudden Infant Death Syndrome in Childrearing Families
- Women's Health
- Adult With Disability Living at Home
- Allergies and the Family
- Alzheimer's Disease: An Overview of Family Issues in
- Alzheimer's Disease: Caregiver Burden
- Alzheimer's Disease and Communication
- Anorexia and Family Dynamics
- Asthma Family Issues: Prevention and Control
- Attention Deficit/Hyperactivity Disorder: Family Involvement and Management
- Attention Deficit/Hyperactivity Disorder and the Family
- Bipolar Disorders and the Family
- Blindness and the Family
- Bulimia and Family Dynamics
- Cancer in the Family
- Cancer Survivorship and the Family
- Cerebral Palsy and the Family
- Chronic Health Problems and Interventions for the Childrearing Family
- Chronic Health Problems and Interventions for the Elderly Family
- Chronic Health Problems and Interventions for the Midlife Family
- Chronic Illness and Family Management Styles
- Cocaine Exposure and the Neonate
- Deaf and Hearing Families
- Depression in the Family
- Diabetes, Type 1, and the Family
- Diabetes, Type 2, and the Family
- Disabilities and Family Management
- Families Experiencing Chronic Physical and Mental Health Conditions
- Family Adherence to Health Care Regimen
- Family Emotional Climate and Mental Health
- Family Pediatric Adherence to Health Care Regimen
- Fetal Alcohol Exposure and Family Health
- Food Allergies and Family Experiences
- Health Management in Families
- Heart Disease and the Family
- HIV/AIDS and Influence on Family Structure and Roles
- Hypertension and the Family
- Intellectual Disability in the Family
- Learning Disabilities in the Family
- Life Span: Care Coordination for Chronic Illness/Disabilities and the Family
- Life-Threatening Experiences, Support for the Family
- Multiple Sclerosis and the Family
- Navigating the U.S. Educational System When a Child Has Special Needs
- Oncological Radiation Process in the Family
- Resources for Families During Life-Threatening Illnesses
- Schizophrenia and the Family
- Siblings of Ill Children
- Spina Bifida and the Family
- Abortion Experienced by Childbearing Couples
- Addition of Family Members Through Marriage
- Adoption Experiences for Infertile Couples
- Adult Child Returning Home
- Adult Child With Disability: Planning for by Parents
- Adult Children Living at Home
- Aging and Shifting Roles in Families
- Assisted Living Placement
- Asynchronous Development Between Partners
- Bereavement and Perinatal Loss in Childbearing Families
- Birth Order of Children in Families
- Changes in Family Structure
- Changes in Family Structure, Roles
- Changing Views of Marriage, Home Responsibilities, and Caregiving
- Child Beginning School
- Childbirth by Childbearing Couples: Reported Meanings
- Childlessness
- Children's Health: Dental Development
- College Transition for Families
- Complicated Grief
- Contraception in Childbearing Couples
- Coparenting: Children
- Death: Ambiguous Feelings Related to Loss
- Death and the Grieving Process in Families
- Death Rituals in Families
- Defining Family: An Overview of Family Definitions From a Historical Perspective
- Developmental Transitions in Families
- Divorce: Effect on Children or the Family
- Divorce: Loss of Family Members
- Divorce and Child Custody
- Employment/Unemployment and Family Health Insurance Coverage
- Family Experiencing Transitions
- Family Transitions and Ambiguous Loss
- Grandparenting
- Grandparents Parenting
- Grief Work Facilitation
- Health Needs of Childbearing Families
- Health Needs of Childrearing Families
- Homeless Families
- Illegal Alien Status and Family Health
- Immigrant Families
- Immigration Status and Family Health
- Job Loss Transition for Families
- Last Child Leaving Home
- Managing Work and Family Responsibilities in the Age of Increased Technology
- Maternal Lactation
- Moving, Effect on the Family
- Natural Disasters, Destruction of Family Home During
- Nonmarital Childbearing
- Parental Abandonment
- Parental Attachment
- Parenting
- Postpartum Depression
- Preconceptual Counseling for Childbearing Couples
- Premature Infant in the Childbearing Family
- Remarriage and Stepfamilies
- Retirement
- Roles and Functions of Families: Divorce
- Same-Sex Partner Rights
- Selecting Long-Term Care Placement for Family Members
- Sibling Death/Loss
- Teen Pregnancy
- United States Military Families, Disruptions
- Access to Health Care: Child Health
- Access to Health Care: Elderly
- Access to Health Care: Uninsured
- Acute Care/Hospitalization of Family Members
- Advance Directives and the Family
- Advocacy for Families
- Americans with Disabilities Act and the Family
- Chiropractic Care for Families
- Communication in Families Related to Health and Illness
- Community Resources for Families Related to Health
- Community Services Supporting Health
- Complementary and Alternative Medicine
- Computerized Records and Family Health Care Information
- Costs of Medical Care and Existing National, State, and Private Pay Avenues for Families
- Decision Making in the Context of Health and Illness
- Early Periodic Screening, Diagnosis, and Treatment Program for Low-Income Children
- Economics as It Relates to Family Health
- Electronic Health Record and Family Health Information
- Emergency Care Use by Families
- Factors Influencing Access to Health Care for Families
- Family Adherence to Health Care Regimen
- Health Care or Medical Home
- Health Care Reforms, Current and Projected Future Reforms and Their Benefits for Families
- Health System Options for Families
- Health-Seeking Behavior in Families
- HIPAA: Privacy Laws and the Family
- Influence of Policy on Health Care for Families
- Integrative Medicine and Health Care Settings
- Long-Term Care Facilities for Families
- Managed Care
- Marriage and Family Therapy for Families
- Medicaid and Family Health
- Medicare and Family Health
- Outpatient Mental Health Care for Families
- Partnering With Families: Family-Centered Care
- Pediatric Primary Care for the Family
- Power of Attorney
- Problem Solving in the Context of Health and Illness
- Psychiatric Medication for Families
- Rehabilitation Act
- Resuscitation, Family Presence During
- Role of Families in Health Promotion
- Roles of Health Care Providers for Families, Current
- Roles of Health Care Providers for Families, Emerging
- School Nursing and the Health of Families
- Selecting Health Care for Families With Children and Youth
- Social Security
- Social Support Systems for the Family
- Standardized Languages Use in the Health Care of Families
- Systems Supporting Family Health
- Types of Family Provider Relationships
- Welfare Benefits and Family Health
- Assessing Family Health
- Culturagram Use With Culturally Diverse Families
- Developmental Assessment Scales
- Ecomaps for Families
- Family Interviews
- Fictive Kin Relationships
- Home Environment Assessment for Families
- Mental Health Assessment for Families
- Newborn Screening for Families
- Nutrition and Nutrition Promotion for Families
- Obesity, Weight Problems, and Healthy Weight for Families
- Prediction of Genetic Health Problems in Family Members
- Biopsychosocial Theoretical Perspectives of Family Systems
- Changing Family and Health Demographics
- Clarifying Family as Context of Care and Family as Focus of Care in Family Health
- Constructionist Family Theoretical Perspectives
- Critical Theory and Family Health
- Family Health Perspectives
- Informed Consent Issues in Family Health Research
- Psychological Theories Related to Family Health
- Qualitative Methods and Data Analysis in Family Health Research
- Quantitative Methods and Data Analysis in Family Health Research
- Research Designs and Data Analysis Methods Used for Family Health Research
- Research Perspectives Used for the Study of Families
- Sociological Theories of Families
- Theoretical Perspectives Related to the Family
- Adolescent Counseling
- Adults With Childhood-Acquired Conditions
- Animal-Assisted Therapy and the Family
- Babysitting and the Family
- Caregivers of Adults With Developmental Disabilities
- Caregiving: Adults With Developmental Disabilities
- Caregiving: Elderly
- Caregiving: Infants
- Caregiving: Partners/Spouses
- Case Management for Chronic Illness/Disability and the Family
- Childproofing Medications and Dangerous Agents
- Discharge Teaching for Families Taking a Family Member Home From an Acute Care Setting
- Educating the Family Regarding Chronic Physical Illness
- Educating the Family Regarding Serious Mental Illness
- Elder Care Options for Families: Long-Term Care
- Exercise Promotion and Fitness
- Family Caregiving: Caring for Children, Adults, and Elders With Developmental Disabilities
- Family Conflict Related to Caregiving
- Family Health Maintenance
- Family Interventions across the Life Span
- Family Secrets in Family Therapy
- Family Therapy
- First Aid and the Family
- Foster Care Emancipation
- Guardianship/Conservatorship
- Health Care Transition Planning
- Health-Related Accommodations
- Home Care
- Home Remedies
- Hospice Care
- Hospitalization and Family Presence
- Immunizations and Vaccinations
- Injury Prevention for Infants and Children Family Members
- Injury Prevention for the Elderly Family Member
- Kinship Care
- Lifestyle Changes and Family Health
- Music and Family Health
- Optimal Healing Environments for Families
- Pain Management in the Home
- Palliative Care and the Family
- Pharmacotherapy in the Context of Family for Acute Mental Illness
- Pharmacotherapy in the Context of Family for Chronic Mental Illness
- Pharmacotherapy in the Context of Family for Chronic/Terminal Physical Illness
- Psychoeducational Interventions for Families
- Respite Care
- Selecting Adult Day Services
- Selecting Child Care for Children
- Therapeutic Play and the Family
- Youth Violence Prevention in the Family
- Autism Spectrum Disorder and the Family
- Cystic Fibrosis and the Family
- Down Syndrome and the Family
- Fragile X Syndrome and the Family
- Genetic Conditions, Communication in Families
- Genetic Conditions, Experience of Families During Prediagnosis and Diagnosis Phases of
- Genetic Discoveries, New: Health Information in Families Derived Through
- Genetic Family Histories
- Genetic Information and Family Interviews
- Genetic Research Findings and Disease Management for Families
- Genetic Research Findings and Family Health
- Genetics: The Family Pedigree
- Genetics and Family Health
- Genograms and the Family
- Huntington's Disease and the Family
- Muscular Dystrophy and the Family
- Sickle Cell Disease and the Family
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