Handbook of Families & Health: Interdisciplinary Perspectives
Publication Year: 2006
Handbook of Families and Health: Interdisciplinary Perspectives presents state-of-the-art summaries of research related to couple, marital, and family influences on health. Editors D. Russell Crane and Elaine S. Marshall, along with a distinguished group of contributors across various disciplines, bring complementary perspectives to a wide range of families and health issues. A major goal of this Handbook is to highlight common issues, concerns, and goals across diverse fields and the benefits of bringing multiple perspectives to these issues. A significant portion of the book is devoted to interventions to improve family health.
- Front Matter
- Back Matter
- Subject Index
Part I: Family and Health Issues
- Chapter 1: Family Development in the Face of Cancer
- Chapter 2: Hostility, Marriage, and the Heart: The Social Psychophysiology of Cardiovascular Risk in Close Relationships
- Chapter 3: Health Issues in Latino Families and Households
- Chapter 4: Identifying Patterns of Managing Chronic Conditions: Family Management Styles
- Chapter 5: Chronic Disease and African American Families
- Chapter 6: The Pain and the Promise of Unfilled Dreams: Infertile Couples
- Chapter 7: Eating Disorders and the Family: A Biopsychosocial Perspective
- Chapter 8: Families and Major Mental Illness
- Chapter 9: Families, Coping Styles, and Health
- Chapter 10: Families, Poverty, and Children's Health
- Chapter 11: Parental HIV/AIDS: An Empirical Model of the Impact on Children in the United States
- Chapter 12: Families, Health, and Genomics
Part II: Issues of Aging and Caregiving
- Chapter 13: Treatment Decisions When Death Is Near: The Family's Role
- Chapter 14: Assessing Eldercare Needs: An Application of Marketing Orientation Within the Nonprofit Sector
- Chapter 15: Death, Grief, and Bereavement in Families
Part III: Issues for Policy and Research
- Chapter 16: Family-Centered Health Policy Analysis
- Chapter 17: Using Agent-Based Modeling to Simulate the Influence of Family-Level Stress on Disease Progression
- Chapter 18: Research on the Historical Demography of Families and Health
- Chapter 19: Study of Family Health and the NIH: The Search for Research Support
- Chapter 20: Developing Partnerships in Commissioned Research: A Perspective From England
- Chapter 21: Swirling Waters: History and Current Choices for Families to Navigate Health Care Financing
Part IV: Interventions to Improve Family Health
- Chapter 22: Improving Health Through Family Interventions
- Chapter 23: Does DNA Determine Destiny? A Role for Medical Family Therapy with Genetic Screening/Testing for Breast Cancer and Other Genetic Illnesses
- Chapter 24: Interventions with Family Caregivers
- Chapter 25: Facing what can and cannot be Said: Working With Families, Parents, and Couples When a Parent Has a Serious Illness
- Chapter 26: Maximizing Patients' Health Through Engagement with Families
- Chapter 27: Interventions with Families of an Acutely or Critically Ill Child
Copyright © 2006 by Sage Publications, Inc.
All rights reserved. No part of this book may be reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the publisher.
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Library of Congress Cataloging-in-Publication data
Handbook of families and health: interdisciplinary perspectives / D. Russell Crane, Elaine S. Marshall, editors.
Includes bibliographical references and index.
ISBN 0-7619-3041-8 (cloth)
1. Family—Health and hygiene. I. Crane, D. Russell. II. Marshall, Elaine S.
05 06 07 08 09 10 9 8 7 6 5 4 3 2 1
Acquiring Editor: Jim Brace-Thompson
Editorial Assistant: Karen Ehrmann
Production Editor: Sanford Robinson
Typesetter: C&M Digitals (P) Ltd.
Copy Editor: Diana Breti and Dan Hays
Indexer: Julie Sherman Grayson
Cover Designer: Ravi Balasuriya
Handbook of Families and Health: Interdisciplinary Perspectives is designed to provoke discussion of academic research, clinical thinking, and practice about the reciprocal interactions of issues related to families and health. The goal is to begin the discussion about how to understand and then assist individuals, families, and societies as they struggle with these important issues. Just as the understanding of individuals cannot be separated from understanding of their families, so it is that families cannot be understood without addressing the broader societal and public policies that affect individuals and families.
Experts from many disciplines have come together in this volume to address the common topics related to health and families. Our hope is that these contributions will be shared across the disciplines represented here as well as with those from other academic and clinical traditions. It is hoped that common themes will be identified to help advance theory, research, and practice that will help families who are dealing with these areas.[Page x]
Our first debt of gratitude is to our contributors. Obviously, this project would not be possible without them. We sincerely appreciate their willingness to write for this book. They have given freely of their expertise that has been gained over years of commitment to issues of family health, as well as much personal effort and sacrifice.
We thank our many friends and colleagues at Brigham Young University (BYU). We appreciate the support of the administrative team of the School of Family Life at BYU: James Harper, director of the school, and Susanne Frost Olsen and Tom Holman, associate directors. We also thank the team at BYU College of Nursing: Holly Skelton, Janessa Johnson, Rose Ann Jarrett, and Denise Gibbons-Davis. We give special thanks to our staff, students, and friends who helped in the preparation of the manuscript: Nicolle Buckmiller, Kimberly Bond, Kirsten Lyons, Marie Roberts, Stacee Truman, and Madlyn Tanner.
Our deepest thanks to Sage Senior Editor Jim Brace-Thompson for his support for this work. His encouragement and guidance have been consistent and consistently appreciated.
Finally, we give our thanks and love to our respective spouses, Eileen and John, and our families, who made this effort possible.[Page xii]
Introduction: Interdisciplinary Perspectives on Families and Health: A Beginning[Page xiii]and
The Handbook of Families and Health: Interdisciplinary Perspectives is intended to explore the most recent topics in research, practice, and policy related to the important topic of helping families with health issues. It is truly interdisciplinary in nature, beginning with the collaboration of the coeditors, a marriage and family therapist and a nurse. The contributors represent scholars and practitioners from a wide range of disciplines, including marriage and family therapy, nursing, sociology, medicine, social work, law, human development, psychology, political science, and business.
The handbook began as an outgrowth of the 2002 biennial research conference at Brigham Young University (BYU), organized by the director of the Family Studies Center in the School of Family Life, D. Russell Crane. At these conferences, scholars from many areas of the world visit the BYU campus and discuss the latest issues in research and practice on topics that relate to families. The proceedings of the conference on “Families and Health” provided the nucleus of this book. Following literature reviews on various issues in health and families, we then invited additional scholars to broaden the perspective.
The purpose of the book is to open discussion to explore the road map for the next generation of scholars in areas related to families and health. The chapters represent the state-of-the-art thinking related to the reciprocal influences of couple, marital, and family issues on health. Some explore the specific areas of research, and others offer examples in practice. In addition, some chapters are instructional to professionals in areas of research funding and family health policy.Outline of the Book
In Part I, we discuss current specific health issues on the forefront of concerns among professionals and families, including cancer, heart disease, eating disorders, mental illness, genetically transmitted diseases, infertility, HIV/AIDS, and chronic illness. We also discuss some issues related to families of specific ethnic minorities, such as Hispanic/Latino families and African American families.
In Part II, we highlight issues of aging and caregiving. The chapters on end-of-life care and decision making are particularly relevant to families as they face the realities of aging, death, and bereavement.[Page xiv]
Part III is concerned with policy, research, and the economics of health care. Chapters focus on learning about health policy issues and process and research methodologies applicable to the study of families and health. We offer two different approaches to research funding—one from the federal government of the United States, written by an expert at the National Institutes of Health, and the other by a senior investigator from the United Kingdom, who describes experiences with local and regional agencies. Finally, we offer an overview of health care financing in the United States.
Part IV provides examples and explorations of specific interventions to improve family health. For example, we address the role of family therapy in working with families and professionals in cases of genetically transmitted conditions. We also discuss the importance of the relationships between providers and family members in treatment planning and implementation.
We conclude with a brief overview of our observations of the state of science and practice in family health, given interdisciplinary and international perspectives. Here, we note strengths and weaknesses of this work and look into the future for “next steps.” We explore what we know now and future directions for the next generation of researchers and practitioners in family health.Organization of the Contributions
The domains discussed here are not organized in order of importance. Such an effort would obviously be futile. We are concerned about all issues related to families and health, but we necessarily had to place one chapter in front of another. We hope our decisions in this regard are not taken as any signal of our regard for colleagues working in all these important areas.
No handbook can adequately cover all important issues related to families and health. We expect this book to be truly a beginning to provoke collegial discussion. In some cases, we were simply not able to secure authors in needed areas that met our time line. For example, an author on health issues of Native Americans was not able to make the expected contribution. We were also especially interested in the exploration of religion and spirituality on the health of families. Unfortunately, the author passed away just prior to completion of his manuscript. We send our condolences to the family of Dr. David B. Larson. We offer only a sampling of important topics in helping families with health issues. We did not require contributors to adhere to a standard format for the chapters. Instead, we encouraged authors to write in the way that best addressed their areas of expertise. We think this approach should enrich the ongoing discussion among the disciplines.Audience for the Work
This is a beginning effort to include the perspective from a broad range of disciplines. It is a compilation rather than integration. To adequately address important needs of families, the next step for scholars is to do the difficult work of integration and true collaboration. We look forward to works that bring scholars together in such efforts.
The handbook is intended for readers from all areas devoted to the health of families. Just as we sought a wide range of scholars to create this book, we hope that readers from all disciplines may be enriched by the work. We expect that researchers, practitioners, and students from many disciplines will find areas to entice their interests, provoke their thinking, and expand their practice. We hope that differences and commonalities of family issues will emerge in the study of this book.
End Note: Interdisciplinary Perspectives of Families and Health[Page 467]andTen Next Steps
This work represents a beginning effort to bring together the works of scholars and practitioners to consider issues related to families and health from a broad range of disciplines. Obviously, no such work can be comprehensive in its coverage of specific topics, methods, or implications. It does provoke thinking about the current state of knowledge and practice among professionals whose work is to help families. The preparation of the work has provided an enriching experience in dialogue among professionals from a variety of areas of expertise. The review of the work provides the opportunity to reflect on next steps for family health scholars. Here, we refer to the “ten next steps.”
- Family and health scholars, practitioners, and families must continue to come together in truly integrated and collaborative ways.
This work is an effort to bring together the work of thinkers from a broad range of disciplines. Even at its best, it is a compilation and not an integration. As scholars and practitioners interested in the health of families, we must continue to learn how to speak the language of each other, value the work and methods of each other, include families in our teams and communities, and forge new areas of scholarship and practice. At the same time, we must continue our efforts to include families in genuine partnerships in health care and policy. It is important that we document and share our efforts in both professional and public literature. This needs to be done not only across disciplines but across nations and cultures. A variety of authors of this work, as well as some other impressive groups, are already in these endeavors, but there is still much work to be done.
- Family and health scholars must continue our work in theory building and refinement of methods that meet the needs of the complex endeavor of family health scholarship.
This means expanding our thinking and practice in creative and evidence-based ways to develop knowledge. This means embracing qualitative and quantitative methods as well as discovering new methods to address the family unit. For example, in this work, William Griffin outlines agent-based modeling as an example of one method that may replace or expand our practice in structural equation modeling and other forms of sophisticated methodologies.
- Our study and practice among specific ethnic and cultural groups need to be intensified.
In this volume, we only sampled some work with a few cultural and ethnic groups. [Page 468]We need to know more about effective interventions, differences, and commonalities in a broad range of ethnic, cultural, and religious groups across the world.
- We need to be prepared to deal with health conditions of the future.
The advent of new infectious diseases in the last couple of decades has opened our awareness to a need to learn about effective care for families dealing with illnesses that we may have not even identified. There is much to learn about biohazards, new infectious diseases, and conditions related to public safety and national security. Recent world events in armed conflict to reports from the Institute of Medicine point to our need to address issues of safety and national security. These events and issues have an effect on families physically and emotionally. These are new arenas for study and practice.
- We need to continue efforts to practice according to evidence.
The current focus on evidence-based practice has implications for all areas of health care scholarship and practice with families. It also provides opportunities to work with families to understand, evaluate, and make effective decisions based on appropriate evidence.
- We need to be able to help families negotiate health care systems.
Health care systems continue to become more complex. Family scholars and practitioners have opportunities to study and implement ways to help families negotiate the complex and sometimes intimidating systems of care, finance, and policy. Families are often required to confront policy issues and health care systems at times when they are most vulnerable.
- We need to know more about home and family as the center of caregiving.
There is a need for clear understanding of the meaning of home and family as the center of health care. How do professionals recognize and practice according to this reality? How do professionals help families to provide the most effective and meaningful care within the home and family environment?
- We need to study and integrate issues of religion and spiritual implications of health challenges in families.
There is growing evidence for the powerful influence of religion and spirituality in the lives of families dealing with health and illness. There is a need for systematic examination of such issues and subsequent integration into practice. This has broad implications for the study of family roles and relationships; perspectives of partnerships, marriage, and children; meanings of cure and healing; family caregiving; the place for clergy in health care practice; and a variety of other topics.
- We need to systematically study and revise how we educate health care professionals.
There is a need for analysis, planning, and change in the educational preparation of health care professionals to include topics on the complexity of family study, practice in collaborative ways, understanding of interdisciplinary perspectives, and effective practice in new local and global environments.
- Family and health care scholars and practitioners need to contribute to decisions in health care policy and finance.
Decision makers in family health policy and financing of health care are in need of [Page 469]the best evidence and practice as we move into the future. It is important that family scholars and practitioners, as well as experts in health care practice, are included in this process. This has implications for the quality and usefulness of our research and capacity and facility in communication in areas not usually familiar to scholars.
We are confident that as soon as this volume comes off the press, we will think of other important steps toward the future of interdisciplinary scholarship, practice, and policy related to families and health. Like this entire book, these are beginning thoughts toward coming together for a better future for families.[Page 470]
About the Editors[Page 521]
D. Russell Crane, Ph.D., is Director of the Family Studies Center and Associate Director for Research in the School of Family Life and Professor of Marriage and Family Therapy at Brigham Young University. His research focuses on families and health issues, with a particular interest in the influence of marital and family therapy on health care use. His research team was the first to document decreases in health care use following marital and family therapy. He is on the editorial board of three journals and is the author of numerous articles and the book Fundamentals of Marital Therapy (1996), published by Taylor Francis (Brunner/Mazel). He and his wife Eileen are the parents of eight children.
Elaine S. Marshall, R.N., Ph.D., is Professor and Dean of the College of Nursing at Brigham Young University. Her research is on families and health, with particular recent focus on families with children with disabilities. She is the author of the book Children's Stress and Coping: A Family Perspective (1993), published by Guilford, for which she was awarded the New Professional Book Award by the National Council on Family Relations. She has been designated a Distinguished Writer by Sigma Theta Tau, the International Honor Society for Nursing, and is the winner of several awards for writing. She is the author of dozens of refereed journal articles and book chapters. She and her husband John are the parents of nine children.[Page 522]
About the Contributors[Page 523]
Melissa A. Alderfer, Ph.D., conducts research and works clinically with families of children with cancer. Dr. Alderfer's research centers on adjustment to childhood chronic illness, specifically post-traumatic stress responses and adjustment to childhood cancer. Her research is based on a social ecology model and examines multiple social systems of importance to child development, including families and peer networks. She is particularly interested in developing intervention protocols aimed at improving adjustment by intervening on multiple levels (e.g., individual child, parental couple, family system, peer system).
Jenny Altschuler is a systemic psychotherapist and consultant clinical psychologist whose work has focused on families facing illness and migration. The author of Working With Chronic Illness: A Family Approach (Macmillan, 1997), she has worked in inpatient and outpatient settings and has been involved in the training of systemic psychotherapists and clinical and educational psychologists at the Tavistock Clinic, where she established a multidisciplinary course for professionals working with illness. She helped establish counseling centers in Kosova and retains a consultative and training role in the Kosovan project, works as an independent psychotherapist, and is engaged in research on migration and racialization.
Jacqueline L. Angel, Ph.D. (Rutgers University, 1989) is an associate professor at the LBJ School of Public Affairs and Sociology at The University of Texas at Austin. Her research focuses on health policy with a special emphasis on minority populations. She has published numerous articles, as well as three books, Health and Living Arrangements of the Elderly (Garland Publishing, 1991), and with Ronald J. Angel, Painful Inheritance: Health and the New Generation of Fatherless Families (University of Wisconsin Press, 1993) and Who Will Care for Us? Aging and Long-Term Care in Multicultural America (New York University Press, 1997).
Ronald J. Angel, Ph.D. (Wisconsin, 1981), is professor of sociology at the The University of Texas at Austin. His research focuses on social welfare, health policy, and the health risks faced by Hispanic and other minority populations. He is the author of numerous articles and with Jacqueline Angel he is author of Painful Inheritance: Health and the New Generation of Fatherless Families (University of Wisconsin Press, 1993) and Who Will Care for Us? Aging and Long-Term Care in Multicultural America (New York University Press, 1997). He served as editor of the Journal of Health and Social Behavior from 1994 to 1997.
Lee L. Bean received his Ph.D. from Yale University in 1961. He is professor emeritus, Department of Sociology, University of Utah. He previously served as chair, Department of Sociology and director, The Middle East Center, University of Utah. His major research interest has focused on historical demography based on the development of and utilization of the Utah Population Database. The central thrust of much of his [Page 524]research has been fertility change of the Utah population during the later 19th and early 20th century. Much of this research is summarized in Fertility Change on the American Frontier (1992), published by the University of California Press and co-authored with Geraldine P. Mineau and Douglas L. Anderton. Recent journal articles (co-authored) include studies of infant mortality, mortality, and longevity.
Marion E. Broome, Ph.D., RN, is professor and University Dean at Indiana University School of Nursing. She received her master's in family nursing from the University of South Carolina, and her Ph.D. in Child and Family Development from the University of Georgia. Dr. Broome is best known for her research with ill children funded by the National Institutes of Health, the American Cancer Society, and Pfizer, Inc. She has published over 80 articles, chapters, and books. She is currently editor-in-chief of Nursing Outlook, the official journal of the American Academy of Nursing.
Lynn Clark Callister, RN, Ph.D., is a professor in the College of Nursing at Brigham Young University. Her research has focused on cross-cultural studies of women and the lived experiences of childbearing families. She is a Fellow in the American Academy of Nursing and was a 2004 Fulbright Scholar to the Russian Federation. She serves on the editorial board of four professional journals and has received several national research awards for her work. She is the author of dozens of refereed journal articles and book chapters.
Thomas L. Campbell, M.D., is the William Rocktaschel Professor and chair of Family Medicine at the University of Rochester School of Medicine and Dentistry and associate director of the University's Center for Primary Care. His expertise is in the role of the family in medical practice and the influence of the family on health. His NIMH monograph, Family's Impact on Health, has been an influential review of the research in this area. Other books he has co-authored include Families and Health and Family-Oriented Primary Care (2nd edition). He co-edits Families, Systems & Health: The Journal of Collaborative Family Healthcare.
John S. W. Carpenter, AcSS, holds the chair of Social Work and Applied Social Science at the University of Bristol, England. He was previously professor and director of the Centre for Applied Social and Community Studies, University of Durham. His research concerns the organization, outcomes, and costs of health and welfare services for people with severe mental illness, and for children and families. He is a registered social worker, chartered psychologist, and family therapist. In 1999 he was elected as a founding academician of the Academy of the Social Sciences in the United Kingdom.
Barbara J. Dale is a consultant systemic psychotherapist working in the Tavistock Clinic, where she has been a major contributor to the development of the multidisciplinary program of systemic training to doctoral level. Between 1989 and 2001, she worked with colleagues in Zimbabwe to establish the Zimbabwe Institute of Systemic Therapy, which provides systemic training at all levels. Her clinical interests and publications have focused on the impact of parents' serious addictions on family life and child development and the effect that a parent having a life-threatening illness has on parenting patterns, with particular interest in the role of gender.
Janet A. Deatrick, Ph.D., RN, teaches in the pediatric acute-chronic care nurse practitioner and the doctoral programs at the University of Pensylvania School of Nursing. [Page 525]Her areas of expertise are qualitative research and children with chronic conditions and their families. She completed a year's sabbatical study (2001) in pediatric oncology at The Children's Hospital of Philadelphia to refocus her research and clinical practice to families whose children have cancer.
Peggye Dilworth-Anderson, Ph.D., is professor of Health Policy and Administration/School of Public Health and director of the Center for Aging and Diversity in the Institute on Aging (NIA). She is the principal investigator of two projects on health disparities pertaining to Alzheimer's disease and related dementias. A KO7 leadership grant from the NIA allows her to develop a research and academic training structure on ethnic minority aging at the University of North Carolina at Chapel Hill. She also serves in a number of consulting and advisory positions related to health issues in later life, and she has served in a number of leadership roles in the field of aging.
Todd M. Edwards, Ph.D., is associate professor and director of the Marital and Family Therapy program at the University of San Diego. His research is on family interventions for diabetes management and medical family therapy supervision. He works with individuals, couples, and families at Metro Family Physicians in San Diego.
V. Jeffery Evans earned a Ph.D. in economics from Duke University in 1973 and a J.D. from the University of Maryland School of Law in 1978. Since 1975, he has been employed at the National Institutes of Health (NIH) in the National Institute of Child Health and Human Development (NICHD). He is part of the extramural program at NICHD and has long been associated with funding research dealing with issues involving families and children, health disparities, and mind-body influences on health.
Thomas E. Finucane, M.D., is professor of Medicine at Johns Hopkins and chair of the Ethics Committee at the Johns Hopkins Bayview Medical Center. He is a busy clinician and teacher and has published widely on problems concerning life-sustaining treatment late in life. His wife and he have five children.
Agatha M. Gallo, Ph.D., APN, CPNP, is a professor in the Department of Maternal-Child Nursing at the University of Illinois at Chicago. Dr. Gallo has focused her research on family response to childhood chronic illness, more recently families where there is a child with a genetic condition. She has been especially interested in parents' approaches to information management in the context of a childhood chronic genetic condition. Dr. Gallo has strong expertise in caring for children with chronic conditions and their families as a pediatric nurse practitioner and nurse educator.
Kelly M. Glazer, M.S., is a doctoral student in the Graduate Training Programs in Clinical and Health Psychology at the University of Utah.
Dannie Hoffman, M.A., has been directing research projects at UCLA since 1991. She currently manages several protocols for Dr. Debra Murphy, including two multisite projects through the Adolescent Trials Network, a national consortium of researchers exploring the impact of HIV on adolescent populations.
William A. Griffin, Ph.D., founded the marriage and family therapy program at Arizona State University (ASU) in 1988 and served as its director until 1997. He also directs ASU's Marital Interaction Lab, conducting studies of interaction patterns in couples and families. Dr. Griffin is the author of Family Therapy: Fundamentals of Theory and Practice. He also co-authored [Page 526]Models of Family Therapy: The Essential Guide. Research interests include the analysis of interaction patterns among distressed, non-distressed, and post-divorce couples, and the computer modeling and simulation of the micro-social interactions found in married dyads and in children forming playgroups.
Harvey H. Hillin, Ph.D., is a policy analyst for Kansas Medicaid and an instructor in statistics for Baker University. He has Ph.D. (Kansas State University) and MSW (University of Kansas) degrees. He is author of Better Living Through Chemistry? What You Should Know About Addiction (2002) and with his wife (Mary Hillin, Ph.D., Kansas Division of Children and Family Policy) he has a forthcoming book, Drugs and Youth: What Parents, Teachers, and Helping Professionals Can Do (2005).
Gene A. Kallenberg, M.D., serves as the chief of the Division of Family Medicine and vice-chair for Clinical Affairs, Dept. of Family and Preventive Medicine. He is currently working with colleagues from the Marriage and Family Therapy Program at University of California San Diego (UCSD) to establish a truly collaborative practice within his Division's family medicine offices that will serve as a teaching model for medical students and family medicine residents at UCSD.
George Knafl, Ph.D., serves as biostatistician, consulting with faculty and students on their research. He is also professor emeritus of computer science at DePaul University where he founded and directed the Software Engineering Program. He has a Ph.D. in mathematics, specializing in statistics, from Northwestern University (1978). His research interests include applications of statistics to nursing research, modeling and analysis of the impact of dioxin exposure, heuristic methods for statistical model selection, adaptive modeling of electronic monitoring data, statistical evaluation of survey instruments, and software reliability.
Kathleen Knafl, Ph.D., is a professor at Yale University School of Nursing where she teaches family and research design courses in the doctoral and pediatric nurse practitioner programs. Her research focuses on family management of childhood chronic illness. Her work sets the stage for developing and testing nursing interventions that meet the needs of diverse families and support optimal family and child functioning. She is widely published and her work has been funded by both private and public sources. Additionally, she serves as a consultant to the National Institutes of Health as well as to other universities and researchers.
Margo D. Maine, Ph.D., is a clinical psychologist specializing in eating disorders. She is author of Body Wars: Making Peace With Women's Bodies (2000), Father Hunger: Fathers, Daughters, and the Pursuit of Thinness (2004), and The Body Myth: The Pressure on Women to Be Perfect (Wiley, 2005), and senior editor of Eating Disorders: The Journal of Treatment and Prevention. A founding member and fellow of the Academy for Eating Disorders and a founder of the National Eating Disorders Association, she serves on the boards of the Eating Disorders Coalition for Research, Policy, and Action, and Dads and Daughters.
William D. Marelich, Ph.D., is an assistant professor of psychology at California State University, Fullerton. He is also a lecturer at the University of California at Los Angeles (UCLA), and a consulting statistician with the Health Risk Reduction Projects (affiliated with UCLA's Integrated Substance Abuse Programs). His research interests include decision-making strategies in health and organizational settings, patient/provider [Page 527]interactions, interpersonal relationships, and statistical/methodological approaches in experimental and applied research. His work has been published in journals such as AIDS Care, Journal of Personality and Social Psychology, and the Journal of Studies on Alcohol.
Susan H McDaniel, Ph.D., is professor of psychiatry and family medicine and director of family programs and the Wynne Center for Family Research in Psychiatry, and associate chair of family medicine at the University of Rochester School of Medicine & Dentistry. She is known for her publications in the areas of mental health and primary care, medical family therapy, and family systems medicine. Her special areas of interest are genetic testing, assisted reproductive technologies, somatization, and gender and health. She is a frequent speaker at meetings of both health and mental health professionals.
Geraldine P. Mineau, Ph.D., is a research professor in the Department of Oncological Sciences and director of population sciences for Huntsman Cancer Institute at the University of Utah. She has almost 30 years of experience with the Utah Population Database, a research resource with over 8 million records. Her research includes co-authoring a book, Fertility Change on the American Frontier: Adaptation and Innovation (1990), and publishing over 40 articles and chapters. In 2003 she co-authored an article titled “Biomedical Databases: Protecting Privacy and Promoting Research.” She holds research grants from the National Institutes of Health, “Rocky Mountain Cancer Genetics Network” and from the Centers for Disease Control, “Development of a Genealogical Database to Support Genetic Disease.”
Kim T. Mueser, Ph.D. is a licensed clinical psychologist and a professor in the Departments of Psychiatry and Community and Family Medicine at the Dartmouth Medical School in Hanover, New Hampshire. Dr. Mueser's clinical and research interests include the psychosocial treatment of severe mental illnesses, family therapy, dual diagnosis, and post-traumatic stress disorder. He has published extensively and given numerous lectures and workshops on psychiatric rehabilitation.
Debra A. Murphy, Ph.D., is a research psychologist and director of the Health Risk Reduction Projects, Department of Psychiatry, University of California, Los Angeles. She has conducted HIV/AIDS behavioral research with children, adolescents, adults, and families over the past 14 years. Her research areas include the effect of maternal HIV/AIDS on children and young adolescents, family-based HIV risk reduction programs, and secondary prevention for HIV-infected adolescents. She is a member of the NICHD Adolescent Trials Network, which is investigating behavioral, therapeutic, and vaccine strategies for adolescents. She has first-authored over 30 papers on HIV/AIDS, and co-authored over 60 other papers and chapters.
Lynn B. Myers, Ph.D., is a senior lecturer in Health Psychology and director of the master's program in health psychology at Surrey University in the United Kingdom. Her research interests include adherence/compliance to medical treatment, repressive coping style, inhibition of emotion and disease, risk perception for health-related events, stress and dentists, social cognition models and health-related behaviors, romantic adult attachment styles, and inhibitory processes in memory.
Robert J. Parsons, Ph.D., is a professor of economics in the George W. Romney Institute of Public Management at Brigham Young University (BYU) where he teaches [Page 528]managerial economics, economic development, and process management. Dr. Parsons' administrative duties at BYU have included director of the Master of Public Administration Program, chair of the Managerial Economics Department, assistant Dean of the Marriott School, and director of the Survey Research Center. His research interests have been in the areas of health care economics, strategic planning, and urban economic development.
Jo Ellen Patterson, Ph.D., is a professor in the marriage and family therapy (MFT) program at the University of San Diego. She is also a clinical instructor in psychiatry and family medicine at the University of California, San Diego (UCSD). She supervises MFT interns and family medicine residents in the UCSD Department of Family Medicine Residency Program. In addition, she is the author of three books, Essential Skills in Family Therapy (Guilford), Mental Health Professional in Medical Settings (Norton), and Psychopharmacology Simplified, Collaborative Care Clarified: Essential Skills for the Contemporary Therapist (forthcoming, Guilford Press).
Mary Politi, M. Phil., is a doctoral candidate in the Clinical Psychology program at The George Washington University. Her research is on individual and family coping in response to cancer and the effects of psychological distress on physiological functioning. She is particularly interested in evaluating acceptance-based clinical interventions for the treatment of psychological distress during the chronic illness experience.
Wilma Powell Stuart, RN, M.A., is the vice president, chief nursing officer of Shannon Medical Center, a doctoral student at the University of Alabama in Birmingham, and the assistant editor of the journal Nursing Outlook. Her research interest is adolescent weight management. She is a member of Sigma Theta Tau International, the North American Association for the Study of Obesity (NAASO), and the Southern Nursing Research Society. Her work with children with a chronic illness includes employment as an endocrinology research data coordinator, as a staff nurse in a children's hospital, and as a pediatric nurse manager.
Jonathan G. Sandberg, Ph.D., is an associate professor in the Department of Marriage and Family Therapy at Syracuse University. He completed his doctoral work in marriage and family therapy at Kansas State University in 1998. He is interested in the relationship between emotional and physical health problems and marital dynamics. Dr. Sandberg has authored or co-authored numerous papers on marital quality, depression, and health, particularly in later life. His recent collaborative work centers on spousal supportive behavior as a means of improving adherence to diabetes treatment.
Mark A. Schuster, M.D., Ph.D., is professor of Pediatrics and Public Health at the University of California at Los Angeles (UCLA), senior natural scientist at RAND, and co-director of the RAND Center for Maternal, Child, and Adolescent Health Research. He is the founder and director of the UCLA/RAND Center for Adolescent Health Promotion, a community-based participatory research center funded by the Centers for Disease Control. Dr. Schuster conducts research primarily on child, adolescent, and family issues. Currently, he is conducting a study funded by the National Institute of Child Health and Development examining HIV-infected parents and their children. He practices pediatrics at Mattel Children's Hospital at UCLA.
William J. Sieber, Ph.D., is an assistant clinical professor in the Department of Family and Preventive Medicine at the [Page 529]University of California, San Diego. Dr. Sieber earned his Ph.D. from Yale University and as a clinical health psychologist has focused his research on quality of life and outcomes assessment, chronic pain, and the impact of psychological well-being on both perceived and actual health status. Dr. Sieber also serves as a consultant to the biotechnology and pharmaceutical industry on research design and outcomes assessment issues, and speaks nationally to health care professionals on issues of stress, health, and optimizing performance.
Ken R. Smith, Ph.D., is professor of Human Development and Family Studies, co-leader, Program in Cancer Control and Population Sciences, Huntsman Cancer Institute, University of Utah. He is a demographer and social epidemiologist interested in familial aspects of health, aging, and longevity. He is investigating the socio-environmental and genetic origins of exceptional longevity in families. Another area of interest is the psychosocial and behavioral factors in cancer prevention and control as well as a longstanding interest in genetic testing for adult-onset illnesses and how genetic tests may affect the psychosocial well-being and demographic outcomes of families and their members.
Timothy W. Smith, Ph.D., is a professor of psychology at the University of Utah, a member of the faculty of the Graduate Training Program in Clinical Psychology, and coordinator of the Graduate Training Program in Health Psychology. He received his doctorate in clinical psychology from the University of Kansas, and completed a pre-doctoral internship and post-doctoral fellowship in clinical psychology and behavioral medicine at the Brown University Program in Medicine. He is a past president of the Division of Health Psychology of the American Psychological Association.
Marcia Van Riper, RN, Ph.D., is an associate professor at the University of North Carolina at Chapel Hill. She has a joint appointment in the School of Nursing and the Carolina Center for Genome Sciences. She received a B.S. in Nursing from De Pauw University, a M.S. in Nursing from the University of Wisconsin-Milwaukee, a M.A. in Bioethics (with an emphasis on genetic issues) from Case Western Reserve University, and a Ph.D. in Nursing and Psychology from the University of Wisconsin-Madison. Her research is on the family experience of being tested for and living with a genetic condition.
Beth Vaughan-Cole, Ph.D., APRN, is professor and chair of the Division of Acute and Chronic Care in the College of Nursing at the University of Utah. In addition, she is the director of Caring Connections: A Hope and Comfort in Grief Program, sponsored by the University of Utah Hospitals and Clinics and the University of Utah College of Nursing. Her primary research has been on children and families with her current interest in grieving children and families. She co-authored a textbook, Family Nursing Practice. Also, she co-authored Dealing with Sudden and Unexpected Death: A Handbook for Survivors.
Arlene L. Vetere, Ph.D., is deputy director of the Clinical Psychology Doctorate at Surrey University in the United Kingdom. She is a chartered clinical psychologist and systemic psychotherapist registered with the UKCP. Dr. Vetere was recently elected as president of the European Family Therapy Association, and is an academician of the UK Academy of the Learned Societies in the Social Sciences.
Sharon Wallace Williams, Ph.D., is an assistant professor in The Department of Allied Health Sciences, Division of Speech and Hearing Sciences, at the University of North Carolina at Chapel Hill (UNC-CH). She is [Page 530]also a research scientist with UNC-CH's Center on Aging and Diversity. Dr. Williams received a Ph.D. in Human Development and Family Studies and completed a gerontology postdoctoral fellowship. Her research examines disabilities, caregiving, and disease management at the family level. Current funding extends her research to include end-of-life experiences of older adults and family caregivers. Her work has appeared in The Journals of Gerontology, The Gerontologist, Aging and Mental Health, and Family Relations.
Karen Weihs, M.D., is associate professor of psychiatry and a comprehensive member of the National Cancer Center–designated Arizona Cancer Center in the College of Medicine in Tucson, Arizona. She graduated from the University of Iowa College of Medicine and is board certified in Family Practice and General Psychiatry. Her research is on family, social, and emotional factors that influence disease control in breast cancer patients. She has published and lectured widely in peer-reviewed venues, focusing on psycho-oncology, family adjustment to stressful events, and psychopharmacology.
Sven E. Wilson holds a Ph.D. in economics (1997) from the University of Chicago. He is currently an associate professor and director of the Graduate Program in Public Policy at Brigham Young University, visiting co-director of the Center for Population Economics at the University of Chicago, and research economist at the National Bureau of Economic Research. He has published several articles and a book on the economics and demography of health and the family, and he is a senior investigator on a project funded by the National Institutes of Health, titled Early Indicators of Later Work Levels, Disease, and Death.
Barbara A. Zsembik, Ph.D., is associate professor and associate chair of the Department of Sociology at the University of Florida. Her research interests lie at the intersection of race/ethnic studies and medical demography. Her current research focuses on Latino child health and health disparities among adult Latinos.