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Kathleen A. Knafl

In: Children and Families in Health and Illness

Chapter 12: Meeting the Challenges of Chronic Illness for Children and Families: Research Implications and Future Directions

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Meeting the Challenges of Chronic Illness for Children and Families: Research Implications and Future Directions
Meeting the challenges of chronic illness for children and families: Research implications and future directions
Kathleen A.Knafl

The experience of chronic illness presents families and their individual members with multiple challenges that change over time in their nature and intensity. Making sense of the illness in terms of its meaning for the person's life, mastering treatment regimens, adapting the family routine and budget to the demands of the illness, creating a “normal” life for the child and family in spite of the illness, and negotiating with health care and school professionals are challenges typically cited in the literature. At the same time, the challenges presented by chronic illness for nurses are distinctly ...

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