Children and Families in Health and Illness

Books

Edited by: Marion E. Broome, Kathleen Knafl, Karen Pridham & Suzanne Feetham

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  • Chapters
  • Front Matter
  • Back Matter
  • Subject Index
  • Part I: Health Promotion of Children and Families

    Part II: Responses of Children and Families to Acute Illness

    Part III: Responses of Children and Families to Chronic Illness

    Part IV: Children and Families and the Health Care System

  • Copyright

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    Preface

    The publication of this book culminates several years of planning, dreaming, and hard work on the part of many scholars in nursing of children and their families. The body of knowledge relevant to this area of research had grown steadily over the past few decades and it was time to systematically assess what we know, what it all means, and chart a productive future course for scholarly productivity. With the maturing of the sub-specialty there was a critical need to synthesize and analyze where we've been, where we are, and where we need to go.

    The book is organized into four parts that we believe best organizes the diversity of research related to the experience of health and illness of children and their families. In each part is a chapter that provides a historical overview, so that readers have a sense of the context within which our investigations with children and their families have evolved. In the first three parts (health promotion, acute illness, and chronic conditions), the historical chapter is followed by two chapters that examine the research related to the nursing of children and their families, with an emphasis on research conducted in the past decade. In the second chapter (assessment models), the methods used to measure the responses of children and their families to health and illness are described. In the third chapter in each section, findings from studies examining the effectiveness of interventions are synthesized. Review of the second and third chapters makes clear the primary focus of nurse researchers on description of responses. There is yet much work to be done with interventions. Each of these three parts is then closed with a chapter by one of the editors, who reflect on the body of work in the area and share insights about where researchers need to focus in the future. The fourth and final section, health services research, reviews health policy and health and community systems for children and their families and analyzes areas and topics rarely addressed in the nursing literature of children and families.

    We believe this book will be of use to a variety of audiences including students, clinicians, nurse scientists, and those in other disciplines. Traditionally, investigators in other fields have informed much of nursing research. It is our hope that by providing a critical synthesis of research done in nursing by such an outstanding cadre of nurse scientists, this book will inform those in other disciplines as well.

    Dreams are never fulfilled without the hard work and contributions of many individuals. It was only through the efforts and patience of many scholars in pediatric and family nursing that this book became a reality. Authors applied their creativity and research expertise to the challenging task of examining existing literature and succeeded in making sense of it. Each of these chapters took the author(s) on an adventure. The task of synthesizing the body of knowledge in these various areas was quite new to most of us and we had little direction from our past.

    We dedicate this book to all our colleagues in pediatric nursing, including researchers, clinicians, educators, administrators, and students of nursing—tomorrow's scholars! And we owe a debt of gratitude to those children and families who so generously allowed nurse researchers to understand an important (and often very private) part of their world. Finally, we extend our deep appreciation to one individual in particular, Camille Kolotylo, MS, RN, who spent countless hours editing the final document. Without her dedication, publication of this book would have not been possible.

    All extant forces point to a strong mandate and opportunity for nurses to develop, extend, and test their investigations of assessment and intervention models and to construct research-based models that will serve the complexities and challenges of tomorrow's health care systems. Nowhere is this opportunity greater, or the need more compelling, than in the areas of pediatric and family nursing. It is our intent that the ideas expressed in this book will afford nurse scholars and clinicians points of departure, directions, and new domains for future investigations.

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    Name Index