Caring for People with Dementia: A Shared Approach

Books

Christine Brown Wilson

  • Citations
  • Add to My List
  • Text Size

  • Chapters
  • Front Matter
  • Back Matter
  • Subject Index
  • Copyright

    About the Author

    Christine is an Associate Professor at the University of Queensland, Australia currently holding the position of Director of Teaching and Learning in the School of Nursing, Midwifery and Social Work. Prior to this Christine was a Senior Lecturer at the University of Manchester in the UK, where she worked with a number of organisations interested in improving dementia care. Christine’s research is interdisciplinary as she works with social workers, psychologists and engineers to consider novel solutions to real world practice problems. Christine adopts a partnership model of research involving people with dementia, family caregivers and staff. Whilst in Manchester, Christine led a Care Homes Research Interest Group that brought together academics, care organisations, healthcare staff, people with dementia, family caregivers and direct care staff to determine the questions that needed to be asked in research proposals. Christine’s research focuses on relationship-based approaches to care and how to improve the experience of people with dementia, their families and staff. Since returning to Australia, Christine has been working with indigenous organisations to explore the cultural transferability of relationship-based approaches to care. Christine is also working with family caregivers and people living with dementia in the community to consider how families and communities may provide support and further resources in living well with dementia. Christine has published widely in academic journals and her first book, Caring for Older People: A Shared Approach, was published by Sage in 2013 with positive reviews. Caring for Older People: A Shared Approach explains in depth how to apply relationship-based approaches to care in a range of settings drawing on the perspective of older people, families, staff and students. This book: Caring For People With Dementia: A Shared Approach, applies the same principles within the context of organisations, demonstrating how we can all make a difference when caring for people with dementia by working together at every level of the organisation.

    Foreword

    This book is about enabling person-centred and relationship-centred care in practice and highlights the importance of culture in advancing this perspective. Dr Brown Wilson calls this perspective relationship-based approaches to care. An important message she shares in the introduction of the text is: ‘To achieve the best care possible, we need to prepare nurses and other health care practitioners with the skills and attitudes to provide effective culturally responsive care’. As a dementia researcher and health professional I am very supportive of this statement and I would like to promote this book as one way to help readers and students to prepare for the practice of evidence-based care of people with dementia. Dr Brown Wilson’s message encouraged me to reflect on several situations in my teaching, research and family where relationship-based approaches to care were espoused but often not connected within practice. I share some of these reflections below in the hope that they demonstrate the importance of culture and relationship-based approaches to care.

    Some years ago when I was teaching a postgraduate class about dementia I was confronted half way through the semester by a small group of students from a culture outside of Australia. These students argued with me that they didn’t know why I was teaching subjects such as person-centred care, relationship-centred care and non-pharmacological approaches to care as these practices went against what was accepted and current practice in their country. For example, in their culture if a person with dementia was agitated or aggressive the family or health professional would manage the person and situation by giving them psychotropic medication and tying the person to a chair or locking them in a room. They argued that this resulted in the problem being contained: there was no longer a problem for staff or family of an agitated or aggressive person, and this was acceptable in their practice. I felt the floor opening up to me as I realised my teaching was representing an Australian culture of care and I had neglected to allow students the opportunity to examine their beliefs and practices in relation to evidence-based relationship approaches to care. This was a perfect opportunity for me to reflect on my teaching practice and to consider alternative ways to assist students from any culture to discuss and to understand why some practices even though they are common are not best for the individual. I hope readers of this text will also be open to practices that may be new to them and to take note of the approaches outlined by Dr Brown Wilson in this text.

    A few years ago when asking staff from a residential aged care facility to tell me about their philosophy of care they all quickly expressed that the philosophy of care in their organisation was person-centred care (PCC). However, not one of these staff could tell me what they did in their practice to advance PCC. They knew the words but they didn’t know how to play out such a philosophy within the care situation, as PCC was not incorporated or truly embraced within their organisation. Unfortunately even today I continue to see similar examples where PCC sits in broad statements within an organisational mission statement but is not truly practised. This text will help readers to understand the importance of culture and the impact of culture on care provision.

    Furthermore, we know that health and care staff are told not to get too close to patients/residents, as this will implicate their care. Therefore everything must be conducted at an arms distance so that staff don’t get involved with the individual as this can also emotionally implicate their situation. As a result we find communication is more likely to take place between staff to staff and limited communication takes place between staff and an older person with dementia. It is very challenging to provide a relationship-based approach to care if we do not ‘know’ the person and yet so often the culture and policies within an organisation can prevent this happening.

    Finally, I would like to reflect on a positive care approach that was presented to one of my family members. The staff in this situation understood PCC and the importance of relationship-based approaches. Unfortunately like many readers of this book, my family too has been touched by dementia with two grandfathers, a father, and sister-in-law all receiving a diagnosis of dementia. My grandfathers both died while being given little respect or dignity in the care they received. The care was far from a relationship-based approach to care. The approach was one that ignored the person while concentrating on the tasks at hand. In recent years I found my father’s situation was quite the opposite of what I had witnessed previously. My father ignored his dementia diagnosis and continued to teach in his swimming school a squad of young people who were in my father’s eyes future champions. They accepted his memory problems and his sometimes erratic behaviour as they trusted and admired his strengths. He had formed a strong bond and closeness to the students over the many years he had taught them. Several months before the passing of my father he spent a horrible two months in an acute care hospital for a comorbid condition. He became angry and aggressive toward staff and his condition deteriorated significantly to the point where he was no longer able to return home. He was very agitated on admission to a nursing home and we talked at length about his impression of the facility and staff. He didn’t want to be there and as the facility was not secure he talked of walking out of the door to go home. Staff were given an extensive personal history and his prominence in the community meant that several staff had crossed paths with my father as a result of his long running business. Unbeknown to me staff told a ‘white lie’ – by informing him that the facility once a week took the residents to the local physiotherapy pool (true for a small group) and they would like to offer him the role of volunteer swimming coach for the residents. They brought a white board into his room and my father used the board to write training programmes for the residents. He was at last focused on something he knew and had spent his life developing. I smiled as he confessed to me that he was working hard on the training programmes, however he was concerned that some of the residents were old and he didn’t know if they would be up to his rigorous schedules. He was heartened that others saw his potential. This activity gave him back his dignity, staff and residents enjoyed talking with him about the training programmes and in his eyes he was once again an important member of society. I hope that readers can also see this as a fine example of staff being truly involved in patient care and with a focus on the person’s strengths.

    Furthermore, this book aims to help readers (students) to lead and manage change through the organisation as a Complex Adaptive System and relationship approaches to care. I am in awe of Dr Brown Wilson for this aim as too many authors focus only on PCC and ignore the important perspective of relationships, culture and partnerships in care. I trust that readers of this book will move into practice with a focus on the integration of relationship approaches in the care they provide. I also hope that they will be better equipped to navigate the challenges of the complexities of organisations that care for older people. It is imperative that an ageing population has advocates that can make positive changes to practice. Importantly I hope readers and teachers will benefit from the numerous activities offered in each chapter of this text and the opportunity to reflect on their reading.

    Professor Wendy MoyleMenzies Health Institute Queensland and School of Nursing and Midwifery, Griffith University, Brisbane, Australia

    Acknowledgements

    This book would not be possible without the people who live daily with dementia, their family caregivers and the organisations that support them who have given generously of their time to speak with me over the past ten years. I am indebted for the many stories shared with me that have been instrumental in demonstrating how multiple and shared perspectives underlie relationship-based approaches to care.

    I have been privileged to work with and alongside a number of people living well with dementia dealing with the everyday challenges the condition brings. In particular I would like to thank Peter Ashley for his expertise with the SensorMat project and Dr Ann Johnson for her support with research and teaching at the University of Manchester. I have also had the privilege of speaking alongside Christine Bryden in Australia. Thank you all very much for your time and energies and the inspiration provided by your life experience.

    It has also been my privilege to work with organisations that truly make a difference in the lives of people with dementia. Working with Community Integrated Care (C-I-C) in their development of the Each Step Dementia model demonstrated how an organisation could integrate relationship-based approaches to care at each level of the organisation. This experience forms the foundation of this book and I would like to thank Michelle Phillips, Manager of Each Step and the Executive Team for their support during my consultancy with C-I-C.

    There have also been colleagues upon whose experience I have drawn heavily, in particular, Professor Ruth Anderson and Associate Professor Kirsten Corrazini in their work on Complex Adaptive Systems in the USA and also Professor Marilyn Rantz and her team at Tiger Place in Missouri who are developing innovative technologies. In Australia, I would like to thank Professors Wendy Moyle, Nancy Pachana and Elizabeth Beattie for both their welcome and invaluable support as I returned back to Australia.

    This book would not have been possible without the support of the publishing team at Sage: Becky Taylor, Emma Milman, Charlène Burin and Katie Forsythe. Thank you for your patient support as you saw the many deadlines come and go. I also need to thank my great friends Jane and Rob for their very generous hospitality at their Blue Mountain retreat, without which, this book may never have been started. Although last, never least, are thanks to the tireless support of my husband Terry and daughter, Amee and son, Leigh as I juggle and chase the many deadlines that seem to define academic life. Terry as always has spent many hours proofreading these chapters and Amee has used her graphic design skills in producing the figures to near impossible timeframes. Thank you all for your patience and your love.

    Publisher’s Acknowledgements

    The publishers would like to thank the following individuals for their invaluable feedback on the proposal and chapters of the book:

    • Donna Doherty, Staffordshire University, UK
    • Angela Kydd, University of the West of Scotland, UK
    • Fiona Lundie, University of the West of Scotland, UK
    • Dr Sarah J. Rhynas, University of Edinburgh, UK
    • Genevieve Thompson, University of Manitoba, Canada
    • Sally Underwood, The University of Sheffield, UK

    The author and publishers are also grateful to the following for their kind permission to reproduce material:

    • Figure 1.1: Adapted and reproduced with kind permission from ‘World Alzheimer Report 2011: The benefits of early diagnosis and intervention’ Alzheimer’s Disease International
    • Table 6.2 : Alzheimer’s Society (2013). Building dementia-friendly communities: A priority for everyone. London: Alzheimer’s Society.
  • References

    Aalten, P. , de Vugt, M.E. , Lousberg, R. , et al. ( 2003 ) Behavioral problems in dementia: a factor analysis of the neuropsychiatric inventory. Dementia and Geriatric Cognitive Disorders, 15: 99105.
    Aalten, P. , de Vugt, M. , Jaspers, N. , Jolles, J. and Verhey, F. ( 2005a ) The course of neuropsychiatric symptoms in dementia. Part I: findings from the two-year longitudinal Maasbed study. International Journal of Geriatric Psychiatry, 20: 523530.
    Aalten, P. , de Vugt, M. , Jaspers, N. , Jolles, J. and Verhey, F. ( 2005b ) The course of neuropsychiatric symptoms in dementia. Part II: relationships among behavioural sub-syndromes and the influence of clinical variables. International Journal of Geriatric Psychiatry, 20: 531536.
    Albert, M.S. , DeKosky, S.T. , Dickson, D. , et al. ( 2011 ) The diagnosis of mild cognitive impairment due to Alzheimer’s disease: recommendations from the National Institute on Aging and Alzheimer’s Association workgroup. Alzheimer’s Dementia, 7(3): 270279.
    Alexander, G. , Rantz, M.J. , Skubic, M. , Koopman, R. , Phillips, L. , Guevara, R. and Miller, S. ( 2011 ) Evolution of an early illness warning system to monitor frail elders in independent living. Journal of Healthcare Engineering, 2: 259286.
    Algase, D.L. , Beck, C. , Kolanowski, A. , et al. ( 1966 ) Need-driven dementia compromised behavior: an alternative view of disruptive behavior. American Journal of Alzheimer’s Disease, 11: 1019.
    Allen, J. , Oyebode, J. and Allen, J. ( 2009 ) Having a father with young onset dementia. The impact on well-being of young people. Dementia, 8(4): 455480.
    Alzheimer’s Australia ( 2015 ) About Dementia, Fact sheet: Available at: https://fightdementia.org.au/national/about-dementia/types-of-dementia (accessed 09/01/2016 ).
    Alzheimer’s Disease International and World Health Organization ( 2012 ) Dementia: A Public Health Priority. Geneva, Switzerland: World Health Organization. Available at: www.who.int/mental_health/publications/dementia_report_2012/en/ (accessed 10/01/2016 ).
    Alzheimer’s Society ( 2013 ) End of Life Care, Fact sheet 531LP. Available at: www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=2709 (accessed 22/08/2016 ).
    Alzheimer’s Society ( 2014 ) Dementia UK,
    second
    edition. Available at: www.youngdementiauk.org/sites/default/files/Dementia_UK_Second_edition_-_Overview.pdf (accessed 22/08/2016 ).
    Alzheimer’s Society ( 2015 ) What is Mild Cognitive Impairment? Fact sheet. Available at: www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=120 (accessed 08/01/2016 ).
    Anderson, R.A. and McDaniel, Jr., R.R. ( 1998 ) Intensity of registered nurse participation in nursing home decision making. Gerontologist, 38(1): 90100.
    Anderson, R.A. , Issel, L.M. and McDaniel, Jr., R.R. ( 2003 ) Nursing homes as complex adaptive systems: relationship between management practice and resident outcomes. Nursing Research, 52(1): 1221.
    Anderson, R.A. , Ammarell, N. , et al. ( 2005a ) Quality improvement in long-term care: the power of relationships for high-quality long-term care. Journal of Nursing Care Quality, 20(2): 103106.
    Anderson, R.A. , Ammarell, N. , et al ( 2005b ) Nursing assistant mental models, sense making, care actions, and consequences for nursing home residents. Qualitative Health Research, 15(8): 10061021.
    Anderson, R.A. , Plowman, D. , Corazzini, K. , Hsieh, P.-C. , Su, H.-F. , Landerman, L.R. and McDaniel, R.R. ( 2013 ) Participation in decision making as a property of complex adaptive systems: developing and testing a measure. Nursing Research and Practice, 116.
    Association for Dementia Studies ( 2010 ) ‘It’s what you do and the way that you do it’. A report on Howbury Lodge Day Centre. Friends of the Elderly, Malvern Worcesrshire. Available at: www.worcester.ac.uk/documents/Howbury_Evaluation_Report.pdf (accessed 21/01/2016 ).
    Aud, M.A. ( 2004 ) Dangerous wandering: elopements of older adults with dementia from long-term care facilities. American Journal of Alzheimers Disease and Other Dementias, 19(6): 361368.
    Australian Institute of Health and Welfare ( 2012 ) Dementia in Australia. Available at: www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=10737422943 (accessed 10/01/2016 ).
    Baker, C.J. ( 2009 ) Introducing PEARL: rewarding good practice in dementia care. Journal of Dementia Care, 17(4): 3134.
    Baker, C.J. ( 2015 ) The PEARL programme: caring for adults living with dementia. Nursing Standard, 30(5): 4651.
    Bakker, C. , e Vugt, M. , an Vliet, D. , Verhey, F. , Pijnenburg, Y. , Vernooij-Dassen, M. and Koopmans, R. ( 2013 ) The use of formal and informal care in early onset dementia: results from the NeedYD Study. The American Journal of Geriatric Psychiatry, 21(1): 3745.
    Banaszak-Holl, J. , Castle, N.G. , Lin, M. and Spreitzer, G. ( 2013 ) An assessment of cultural values and resident-centred culture change in US nursing facilities. Health Care Management Review, 38(4): 295305.
    Bangar, S. , Mountain, G. and Cudd, P. ( 2015 ) Assistive Technology: creating and engaging collaborative communities. Studies in Health Technology and Informatics, 217: 730735.
    Barnes, D. and Yaffe, K. ( 2011 ) The projected impact of risk factor reduction on Alzheimer’s Disease prevalence. Lancet, Neurology, 10(9): 819828.
    Barrett, C. , Whyte, C. , Leonard, W. and Comfort, J. ( 2014 ) No need to straighten up: discrimination, depression and anxiety in older lesbian, gay, bisexual, transgender and intersex Australians. Australian Research Centre in Sex, Health and Society. Melbourne: La Trobe University. Available at: www.beyondblue.org.au/docs/default-source/research-project-files/bw0263-no-need-to-straighten-up---full-report---pdf.pdf?sfvrsn=2 (accessed 14/09/2016 ).
    Barrett, C. , Crameri, P. , Lambourne, S. and Latham, J.R. ( 2015 ) ‘We are still gay…’: the needs of LGBT Australians with dementia. Australasian Journal of Dementia Care. Available at: http://journalofdementiacare.com/we-are-still-gay-the-needs-of-lgbt-australians-with-dementia/ (accessed 1/11/2016 ).
    Basu, R. , Hochhalter, A. and Stevens, A. ( 2015 ) The impact of the REACH II intervention on caregivers’ perceived health. Journal of Applied Gerontology, 34(5): 590608.
    Bauer, M. ( 2006 ) Collaboration and control: nurses’ constructions of the role of family in nursing home care. Journal of Advanced Nursing, 54(1): 4552.
    Bauer, M. , Fetherstonhaugh, D. , Nay, R. , Tarzia, L. Nay, R. , Wellman, D. and Beattie, E. ( 2013a ) ‘I always look under the bed for a man’. Needs and barriers to the expression of sexuality in residential aged care: the views of residents with and without dementia. Psychology & Sexuality, 4(3): 296309.
    Bauer, M. , Fetherstonhaugh, D. , Nay, R. , Tarzia, L. and Beattie, E. ( 2013b ) Sexuality Assessment Tool (SexAT) for residential aged care facilities. Available at: www.agedcare.org.au/publications/agendas-docs-images/sexuality-assessment-tool-sexat-for-residential-aged-care-facilities (accessed 30/09/2016 ).
    Bauer, M. , Fetherstonhaugh, D. , Nay, R. , Tarzia, L. and Beattie, E. ( 2014a ) Supporting residents’ expression of sexuality: the initial construction of a sexuality assessment tool for residential aged care facilities. BMC Geriatrics, 14: 82.
    Bauer, M. , Fetherstonhaugh, D. , Nay, R. , Tarzia, L. , Nay, R. , Wellman, D. and Beattie, E. ( 2014b ) ‘We need to know what’s going on’: views of family members toward the sexual expression of people with dementia in residential aged care. Dementia, 13(5): 571585.
    Bell, G. ( 2014 ) Changing Care Culture: Exploring the Relationship between Employee Beliefs, Affective Commitment and Job Satisfaction Following a Change from Traditional to Person-Centred Care in Two Irish Nursing Homes. National College of Ireland.
    Belle, S.H. , Burgio, L. , Burns, R. , Coon, D. , Czaja, S.J. , Gallagher-Thompson, D. and Zhang, S. ( 2006 ) Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial. Annals of Internal Medicine, 145: 727738.
    Bellot, J.L. ( 2007 ) A descriptive study of nursing home organizational culture, work environment and culture change from the perspectives of licensed nurses. PhD thesis, University of Pennsylvania.
    Bemelmans, R. , Gelderblom, G.J. , Jonker, P. and de Witte, L. ( 2012 ) Socially assistive robots in elderly care: a systematic review into effects and effectiveness. Journal of the American Medical Directors Association, 13: 114120.
    Ben-Tovim, D. , Bassham, J. , Bennett, D. , Dougherty, M. , Martin, M. , O’Neill, S. , Sincock, J. and Szwarcbord, M. ( 2008 ) Redesigning care at the Flinders Medical Centre: clinical process redesign using ‘lean thinking’. Medical Journal Australia, 188(6): S27S31.
    Bezzant, K. ( 2008 ) Practice development: providing benefits for both managers and older patients with delirium and dementia. Journal of Nursing Management, 16: 141146.
    Bharucha, A. , Anand, V. , Forlizzi, J. et al. ( 2009 ) Intelligent assistive technology applications to dementia care: current capabilities, limitations, and future challenges. American Journal Geriatiric Psychiatry, 17(2): 88104.
    Biundo, S. , Höller, D. , Schattenberg, B. and Bercher, P. ( 2016 ) Companion-technology: an overview. Künstliche Intelligenz, 30: 1120.
    Boal, K. and Schultz, P. ( 2007 ) Storytelling, time, and evolution: the role of strategic leadership in complex adaptive systems. The Leadership Quarterly, 18: 411428.
    Borbasi, S. , Jones, J. , Lockwood, C. and Emden, C. ( 2006 ) Health professionals’ perspectives of providing care to people with dementia in the acute setting: toward better practice. Geriatric Nursing, 27(5): 300308.
    Brady Germain, P. and Cummings, G. ( 2010 ) The influence of nursing leadership on nurse performance: a systematic literature review. Journal of Nursing Management, 18: 425439.
    Bramble, M. , Moyle, W. and Shum, D. ( 2011 ) A quasi-experimental design trial exploring the effect of a partnership intervention on family and staff well-being in long-term dementia care. Aging & Mental Health, 15(8): 9951007.
    British Standard Institution (BSI) ( 2010 ) PAS 800 Use of Dementia Care Mapping for improved person-centred care in a care provider organisation. Available at: http://shop.bsigroup.com/en/ProductDetail/?pid=000000000030186216 (accessed 21/01/2016 ).
    Brodaty, H. and Arasaratnam, C. ( 2012 ) Meta-analysis of nonpharmacological interventions for neuropsychiatric symptoms of dementia. American Journal of Psychiatry, 169: 946953.
    Brodaty, H. and Donkin, M. ( 2009 ) Family caregivers of people with dementia. Dialogues of Clinical Neuroscience, 11: 217228.
    Brooker, D. ( 2004 ) What is Person-Centred Care for people with dementia? Reviews in Clinical Gerontology, 13: 215222.
    Brooker, D. and Latham, I. ( 2015 ) Person-Centred Dementia Care: Making Services Better with the VIPS Framework (
    second
    edition). London: Jessica Kingsley Publishers.
    Brooker, D. and Surr, C. ( 2006 ) Dementia Care Mapping (DCM): initial validation of DCM 8 in UK field trials. International Journal of Geriatric Psychiatry, 21(11): 10181025.
    Brooker, D. and Woolley, R. ( 2007 ) Enriching opportunities for people living with dementia: the development of a blueprint for a sustainable activity-based model of care. Aging and Mental Health, 11(4): 371383.
    Brooker, D. , Woolley, R. and Lee, D. ( 2007 ) Enriching opportunities for people living with dementia in nursing homes: an evaluation of a multi-level activity-based model of care. Aging and Mental Health, 11(4): 361370.
    Brooker, D. , La Fontaine, J. , Evans, S. , Bray, J. and Saad, K. ( 2014 ) Public health guidance to facilitate timely diagnosis of dementia: ALzheimer’s COoperative Valuation in Europe (ALCOVE) recommendations. International Journal of Geriatric Psychiatry, 29: 682693.
    Brown, J. , Davies, S. and Nolan, M. ( 2001 ) Who’s the expert? Redefining lay and professional relationships. In M. Nolan , S. Davies and G. Grant (eds), Working with Older People and their Families. Buckingham: Open University Press. pp.1932.
    Brown Wilson, C. ( 2007 ) Exploring relationships in care homes. Unpublished thesis, University of Sheffield.
    Brown Wilson, C. ( 2009 ) Developing community in care homes through a relationship-centred approach. Health and Social Care in the Community, 17(2): 177186.
    Brown Wilson, C. ( 2012 ) Caring for Older People: A Shared Approach. London: Sage.
    Brown Wilson, C. and Davies, S. ( 2009 ) Using relationships in care homes to develop relationship centred care: the contribution of staff. Journal of Clinical Nursing, 18: 17461755.
    Brown Wilson, C. , Davies, S. and Nolan, M.R. ( 2009 ) Developing relationships in care homes: the contribution of staff, residents and families. Ageing and Society, 29(7): 10411063.
    Brown Wilson, C. , Swarbrick, C. , Pilling, M. and Keady, J. ( 2013 ) The senses in practice: enhancing the quality of care for residents with dementia in care homes. Journal of Advanced Nursing, 69(1): 7077.
    Bruen, W. and Howe, A. ( 2009 ) Respite care for people living with dementia. ‘It’s more than just a short break’. Alzheimer’s Australia. Available at: www.fightdementia.org.au/files/20090500_Nat_NP_17RespCarePplLivDem.pdf (accessed 21/06/2016 ).
    Bryden, C. ( 2002 ) A person-centred approach to counselling, psychotherapy and rehabilitation of people diagnosed with dementia in the early stages. Dementia, 1(2): 141156.
    Bryden, C. ( 2015 ) Before I Forget: How I Survived Being Diagnosed with Younger-Onset Dementia at 46. Australia: Penguin.
    Bunn, F. , Goodman, C. , Pinkney, E. and Drennan, V. ( 2016 ) Specialist nursing and community support for the carers of people with dementia living at home: an evidence synthesis. Health and Social Care in the Community, 24(1): 4867.
    Burgio, L.D. , Collins, I.B. , Schmid, B. , Wharton, T. , McCallum, D. and Decoster, J. ( 2009 ) Translating the REACH caregiver intervention for use by area agency on aging personnel: the REACH OUT program. Gerontologist, 49(1): 10316.
    Burns, K. , Jayasinha, R. , Tsang, R. and Brodaty, H. ( 2012 ) Behaviour Management –A Guide to Good Practice. Dementia Collaborative Research Centre. NSW. Available at: http://dbmas.org.au/uploads/resources/DBMAS_Guide_21_05_12.for_USB_pdf.pdf (accessed 05/08/2016 ).
    Carbonneau, H. , Caron, C. and Desrosiers, J. ( 2010 ) Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia, 9(3): 327353.
    The Carer Recognition Act, 2010 . Available at: www.gov.uk/government/uploads/system/uploads/attachment_data/file/268684/Factsheet_8_update__tweak_.pdf (accessed 09/09/2016 ).
    Carteret, M. ( 2010 ) Dimensions of Culture: Culturally Responsive Care. Available at: www.dimensionsofculture.com/2010/10/576/ (accessed 14/09/2016 ).
    Cavallo, F. , Aquilano, M. and Arvati, M. ( 2015 ) An ambient assisted living approach in designing domiciliary services combined with innovative technologies for patients with Alzheimer’s Disease: a case study. American Journal of Alzheimer’s Disease & Other Dementias, 30(1): 6977.
    Cerejeira, J. , Lagarto, L. and Mukaetova-Ladinska, E. ( 2012 ) Behavioral and psychological symptoms of dementia. Frontiers in Neurology, 3(73): 121.
    Chaffee, M. and McNeill, M. ( 2007 ) A model of nursing as a complex adaptive system. Nurings Outlook, 55(5): 232241.
    Chalfont, G.E. ( 2006 ) Connection to nature at the building edge: towards a therapeutic architecture for dementia care environments. PhD thesis. Available at: www.chalfontdesign.com/media/CHALFONT%20PhD%20May%202006.pdf (accessed 1/11/2016 ).
    Chater, K. and Hughes, N. ( 2012 ) Strategies to deliver dementia training and education in the acute hospital setting. Journal of Research in Nursing, 18(6): 578593.
    Chen, D. , Ashok, J. , Bharucha, M.D. and Wactlar, H.D. ( 2007 ) Intelligent Video Monitoring to Improve Safety of Older Persons. 29th Annual International Conference of the IEEE Engineering in Medicine and Biology Series, 22–26 Aug.
    Chenoweth, L. , King, M.T. , Jeon, Y.H. , Brodaty, H. , Stein-Parbury, J. , Norman, R. , Has, M. and Luscombe, G. ( 2009 ) Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. Lancet Neurology, 8: 317325.
    Chenoweth, L. , Forbes, I. , Fleming, R. , King, M. , Stein-Parbury, J. , Luscombe, G. , Kenny, P. , Jeon, Y.-H. , Haas, M. and Brodaty, H. ( 2014 ) PerCEN: a cluster randomized controlled trial of person-centred residential care and environment for people with dementia. International Psychogeriatrics, 26(7): 11471160.
    Cheung, K. , Lau, B. , Wong, P. , Leung, A. , Lou, V. , Chan, G. and Schulz, R. ( 2015 ) Multicomponent intervention on enhancing dementia caregiver well-being and reducing behavioral problems among Hong Kong Chinese: a translational study based on REACH II. International Journal of Geriatric Psychiatry, 30: 460469.
    Cilliers, P. ( 1998 ) Complexity and Post Modernism: Understanding Complex Systems. London: Routledge.
    Clemerson, G. , Walsh, S. and Isaac, C. ( 2014 ) Towards living well with young onset dementia: an exploration of coping from the perspective of those diagnosed. Dementia, 13(4): 451466.
    Clissett, P. , Porock, D. , Harwood, R.H. and Gladman, J.R.F. ( 2013a ) The responses of healthcare professionals to the admission of people with cognitive impairment to acute hospital settings: an observational and interview study. Journal of Clinical Nursing, 23: 18201829.
    Clissett, P. , Porock, D. , Harwood, R.H. and Gladman, J.R.F. ( 2013b ) The challenges of achieving person-centred care in acute hospitals: a qualitative study of people with dementia and their families. International Journal of Nursing Studies, 50: 14951503.
    Colon-Emeric, C. , Lekan-Rutledge, D. , Utley-Smith, Q. , Ammarell, N. , Bailey, D. , Piven, M. , Corazzini, K. and Anderson, R.A ( 2006 ) Connection, regulation, and care. Health Care Management Review, 31(4): 337346.
    Connor, M. and Pakora, J. ( 2007 ) Coaching and Mentoring at Work: Developing Effective Practice. Berkshire: Open University Press.
    Cooke, M. , Moyle, W. , Venturato, L. , Walters, C. and Kinnane, J. ( 2014 ) Evaluation of an education intervention to implement a capability model of dementia care. Dementia, 13(5): 613625.
    Davies, S. ( 2003 ) Creating community: the basis for caring partnerships in nursing homes. In M.R. Nolan , U. Lundh , G. Grant and J. Keady (eds), Partnerships in Family Care. Maidenhead: Open University Press.
    Davies, S. and Nolan, M.R. ( 2004 ) ‘Making the move’: relatives’ experiences of the transition to a care home. Health and Social Care in the Community, 12(6): 517526.
    Davis, S. , Byers, S. , Nay, R. and Koch, S. ( 2009 ) Guiding design of dementia friendly environments in residential care settings. Dementia, 8: 185.
    Department of Health ( 2009 ) Living Well with Dementia. Available at: www.gov.uk/government/publications/living-well-with-dementia-a-national-dementia-strategy (accessed 10/01/2016 ).
    Department of Health ( 2011 ) Whole System Demonstrator Programme. Available at : www.gov.uk/government/uploads/system/uploads/attachment_data/file/215264/dh_131689.pdf (accessed 10/09/2016 ).
    Department of Health ( 2013 ) The Care Act, 2014. Available at: www.carersact.org.au/Assets/Files/fed_national-carers-strategy_2011.pdf (accessed 09/09/2016 ).
    Dewing, J. ( 2004 ) Concerns relating to the application of frameworks to promote person-centredness in nursing older people. International Journal of Older People Nursing, 13(3a): 3944.
    Dewing, J. and Dijk, S. ( 2016 ) What is the current state of care for older people with dementia in general hospitals? A literature review. Dementia, 15(1): 106124.
    Doll, G.M.A. ( 2003 ) An exploratory study of the process of culture change in three Kansas nursing homes. PhD thesis. Kansas State University.
    Dooley, K. ( 1997 ) A Complex Adaptive Systems model of organization change. Nonlinear Dynamics, Psychology, and Life Sciences, 1(1): 6997.
    Downs, M. and Bowers, B. ( 2014 ) Excellence in Dementia Care (
    second
    edition). Milton Keynes: Open University Press.
    Drentea, P. , Clay, O. , Roth, D. and Mittelman, M. ( 2006 ) Predictors of improvement in social support: five-year effects of a structured intervention for caregivers of spouses with Alzheimer’s disease. Social Science & Medicine, 63: 957967.
    Edvardsson, D. and Nay, R. ( 2009 ) Acute care and older people: challenges and ways forward. Australian Journal of Advanced Nursing, 27(2): 6369.
    Edvardsson, D. , Fetherstonhaugh, D. and Nay, R. ( 2010 ) Promoting a continuation of self and normality: person-centred care as described by people with dementia, their family members and aged care staff. Journal of Clinical Nursing, 19: 26112618.
    Edvardsson, D. , Fetherstonhaugh, D. and Nay, R. ( 2011 ) The Tool for Understanding Residents’ Needs as Individual Persons (TURNIP): construction and initial testing. Journal of Clinical Nursing, 20: 28902896.
    Edvardsson, D. , Nilsson, A. , Fetherstonhaugh, D. , Nay, R. and Crowe S. ( 2013 ) The person-centred care of older people with cognitive impairment in acute care scale (POPAC). Journal of Nursing Management, 21: 7986.
    Engstrom, M. , Lindqvist, R. , Ljunngren, B. and Carlsson, M. ( 2009 ) Staff members’ perceptions of an ICT support package in dementia care during the process of implementation. Journal of Nursing Management, 17: 781789.
    Evans, N. , Carey-Smith, B. and Orpwood, R. ( 2011 ) Using smart technology in an enabling way: a review of using technology to support daily life for a tenant with moderate dementia. British Journal of Occupational Therapy, 74(5): 249253.
    Exley, C. , Bamford, C. , Hughes, J. and Robinson, L. ( 2009 ) Advance care planning: an opportunity for person-centred care for people living with dementia. Dementia, 8(3): 419424.
    Fleming, R. , Goodenough, B. , Low, L.-F. , Chenoweth, L. and Brodaty, H. ( 2016 ) The relationship between the quality of the built environment and the quality of life of people with dementia in residential care. Dementia, 15(4): 663680.
    Frank, L. , Lloyd, A. , Flynn, J.A. , Kleinman, L. , Matza, L.S. , Margolis, M.K. , et al. ( 2006 ) Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants. International Psychogeriatrics, 18: 151162.
    Fujinami, T. , Miura, M. , Takatsuka, R. and Sugihara, T. ( 2011 ) A study of long term tendencies in residents’ activities of daily living at a group home for people with dementia using RFID slippers. Proceedings of the 9th International Conference on Smart Homes and Health Telematics, ICOST.
    Galambos, C. , Skubic, M. , Wang, S. and Rantz, M. ( 2013 ) Management of dementia and depression utilizing in-home passive sensor data. Gerontechnology: International Journal on the Fundamental Aspects of Technology to Serve the Ageing Society, 11: 457468.
    Garand, L. , Lingler, J. , O’Connor, K. and Dew, A. ( 2009 ) Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment. Research in Gerontological Nursing, 2(2): 112121.
    Gaugler, J.G. , Roth, D.L. , Haley, W.E. and Mittelman, M.S. ( 2008 ) Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer’s disease during the transition to institutionalization? Results from the New York University caregiver intervention study. Journal of the American Geriatrics Society, 56: 421428.
    Gerdner, L.A. , Buckwalter, K.C. and Reed, D. ( 2002 ) Impact of a psychoeducational intervention on caregiver response to behavioral problems. Nursing Research, 51: 363374.
    Gilliard, J. and Marshall, M. (eds) ( 2012 ) Transforming the Quality of Life for People with Dementia through Contact with the Natural World. London: Jessica Kingsley.
    Gladman, J. , Porock, D. , Griffiths, A. , Clissett, P. , Harwood, R. , Knight, A. , Jurgens, F. , Jones, R. , Schneider, J. and Kearney, F. ( 2012 ) Care of Older People with Cognitive Impairment in General Hospitals. Available at: www.netscc.ac.uk/hsdr/files/project/SDO_FR_08-1809-227_V01.pdf (accessed 20/07/2016 ).
    Godwin, B. ( 2012 ) The ethical evaluation of assistive technology for practitioners: a checklist arising from a participatory study with people with dementia, family and professionals. Journal of Assistive Technologies, 6(2): 123135.
    Goffman, E. ( 1963 ) Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice Hall.
    Goleman, D. ( 2000 ) Leadership that gets results. Harvard Business Review. March–April: 7990.
    Graham, N. , Lindesay, J. , Katona, C. , Bertolote, J.M. , Camus, V. , Copeland, J.R. , et al. ( 2003 ) Reducing stigma and discrimination against older people with mental disorders: a technical consensus statement. International Journal of Geriatric Psychiatry, 18: 670678.
    Greiner, C. , Makimoto, K. , Suzuki, M. , Yamakawa, M. and Ashida, N. ( 2007 ) Feasibility study of the integrated circuit tag monitoring system for dementia residents in Japan. American Journal of Alzheimer’s Disease and Other Dementias, 22: 129136.
    Griffin, J. , Meis, L. , Greer, N. , MacDonald, R. , Jensen, A. , Rutks, I. , Carlyle, M. and Wilt, T. ( 2015 ) Effectiveness of caregiver interventions on patient outcomes in adults with dementia or Alzheimer’s Disease: a systematic review. Gerontology & Geriatric Medicine, 117.
    Grünerbl, A. , Bahle, G. , Lukowicz, P. and Hanser, F. ( 2011 ) Using indoor location to assess the state of dementia patients: results and experience report from a long term, real world study. Seventh International Conference on Intelligent Environments. IEEE, 3239.
    Haley, W.E. , Bergman, E.J. , Roth, D.L. , McVie, T. , Gaugler, J.E. and Mittelman, M.S. ( 2008 ) Long-term effects of bereavement and caregiver intervention on dementia care. The Gerontologist, 48: 732740.
    Han, J.W. , Kim, T.H. , Lee, S.B. , et al. ( 2012 ) Predictive validity and diagnostic stability of mild cognitive impairment subtypes. Alzheimer’s Dementia, 8(6): 553559.
    Hanser, F. , Grünerbl, A. , Rodegast, C. and Lukowicz, P. ( 2008 ) Design and real life deployment of a pervasive monitoring system for dementia patients. In: Proceedings of the 2nd International Conference on Pervasive Computing Technologies for Healthcare.
    Heinrich, S. , Berwig, M. , Simon, S. , Jänichen, J. , Hallensleben, N. , Nickel, W. , Hinz, A. , Brähler, E. and Gertz, H. ( 2014 ) German adaptation of the Resources for Enhancing Alzheimer’s Caregiver Health II: study protocol of a single-centred, randomized controlled trial. BMC Geriatrics, 14: 21.
    Hersey, P. , Blanchard, K. and Johnson, D. ( 2001 ) Management of Organisational Behaviour: Leading Human Resources. New Jersey: Prentice Hall, Inc.
    Hertzberg, A. , Ekman, S.L. and Axelsson, K. ( 2003 ) ‘Relatives are a resource, but…’: Registered nurses’ views and experiences of relatives of residents in nursing homes. Journal of Clinical Nursing, 12(3): 431441.
    Hirschman, K.B. , Joyce, C.M. , James, B.D. , Xie, S.X. and Karlawish, J.H. ( 2005 ) Do Alzheimer’s disease patients want to participate in a treatment decision, and would their carers let them? The Gerontologist, 45(3): 381388.
    Holmes, D. , Teresi, J.A. , Ramirez, M. , Ellis, J. , Eimicke, J. , Jian, K. , et al. ( 2007 ) An evaluation of a monitoring system intervention: falls, injuries, and affect in nursing homes. Clinical Nursing Research, 16(4): 317335.
    Huang, H.L. , Shyu, Y.L. , Chen, M.C. , Chen, S.T. and Lin, L.C. ( 2003 ) A pilot study on a home-based caregiver training program for improving caregiver self-efficacy and decreasing behavioral problems of elders with dementia in Taiwan. International Journal of Geriatric Psychiatry, 18: 337345.
    Iliffe, S. , Wilcock, J. and Haworth, D. ( 2006 ) Obstacles to shared care for patients with dementia : a qualitative study. Family Practice, 23: 353362.
    Indigenous Allied Health Australia ( 2015 ) Cultural Responsiveness In Action: An IAHA Framework. Available at: http://iaha.com.au/wp-content/uploads/2015/08/2015-IAHA-Cultural-Responsiveness-Framework-WEB.pdf (accessed 14/09/2016 ).
    Inouye, S. , Westendorp, R. and Saczynski, J. ( 2014 ) Delirium in elderly people. Lancet, 383: 911922.
    Institute for Health Improvement ( 2016 ) How to Improve. Available at: www.ihi.org/resources/Pages/HowtoImprove/default.aspx (accessed 10/09/2016 ).
    Jeon, Y.-H. , Luscombe, G. , Chenoweth, L. , Stein-Parbury, J. , Brodaty, H. and Haas, M. ( 2012 ) Staff Outcomes from the Caring for Aged Dementia Care REsident Study (CADRES): a cluster randomised trial. International Journal of Nursing Studies, 49: 508518.
    Jordan, M.E. , Lanham, H.J. , Crabtree, B.F. , Nutting, P.A. , Miller, W.L. , Stange, K.C. and McDaniel, Jr., R.R. ( 2009 ) The role of conversation in healthcare interventions: enabling sensemaking and learning. Implementation Science, 4: 15.
    Jordan, M. , Lanham, H.J. , Anderson, R.A. and McDaniel, R.R. ( 2010 ) Implications of complex adaptive systems theory for interpreting research about healthcare organizations. Journal of Evaluation in Clinical Practice, 16: 228231.
    Kerssens, C. , Kumar, R. , Adams, A. , Knott, C. , Matalenas, L. , Sanford, J. and Rogers, W. ( 2015 ) Personalized technology to support older adults with and without cognitive impairment living at home. American Journal of Alzheimer’s Disease & Other Dementias, 30(1): 8597.
    Kidd, C. , Taggart, W. and Turkle, S. ( 2006 ) A sociable robot to encourage social interaction among the elderly. In Proceedings 2006 IEEE International Conference on Robotics and Automation. ICRA. pp.39723976.
    Killett, A. , Bowes, A. , Brooker, D. , Burns, D. , Kelly, F. , La Fontaine, J. , Latham, I. , O’Neill, M. , Poland, F. and Wilson, M. ( 2013 ) What makes a real difference to resident experience? Digging deep into care home culture: the CHOICE (Care Home Organisations Implementing Cultures of Excellence) research report. 025/0064. Available at: www.tsab.org.uk/wp-content/uploads/2015/11/CHOICE_final_report.pdf (accessed 21/01/2016 ).
    Killett, A. , Burns, D. , Kelly, F. , Brooker, D. , Bowes, A. , LaFontaine, J. , Latham, I. , Wilson, M. , and O’Nrill, M. ( 2016 ) Digging deep: how organisational culture affects care home residents’ experiences. Ageing and Society, 36(1): 160188.
    Kitwood, T. ( 1997 ) Dementia Reconsidered: The Person Comes First. Buckingham: Open University Press.
    Koren, M.J. ( 2010 ) Person-centered care for nursing home residents: the culture-change movement. Health Affairs, 29(2): 312317.
    Kotter, J. ( 2007 ) Leading change. Why transformation efforts fail. Harvard Business Review. The tests of a leader, January: 19.
    Kotter, J. and Whitehead, L. ( 2010 ) Buy-In: Saving Your Good Idea from Getting Shot Down. Harvard Business Press Books.
    Kotter International ( 2012 ) Change Leadership. Available at: www.kotterinternational.com/our-principles/change-leadership (accessed 17/07/2014 ).
    Landau, R. , Auslander, G. , Werner, S. , Shoval, N. and Heinik, J. ( 2010 ) Families’ and professional caregivers’ views of using advanced technology to track people with dementia. Qualitative Health Research, 20(3): 409419.
    Leinenga, G. and Götz, J ( 2015 ) Scanning ultrasound removes amyloid-β and restores memory in an Alzheimer’s disease mouse model. Science Translational Medicine, 7(278): 278ra33.
    Libin, A. and Cohen-Mansfield, J. ( 2004 ) Therapeutic robocat for nursing home residents ith dementia: preliminary inquiry. American Journal of Alzheimer’s Disease and other Dementias, 19(2): 111116.
    Liddle, J. , Bennett, S. , Allen, S. , Lie, D.C. , Standen, B. and Pachana, N.A. ( 2013 ) The stages of driving cessation for people with dementia: needs and challenges. International Psychogeriatrics, 25(12): 20332046.
    Liddle, J. , Reaston, T. , Pachana, N. , Mitchell, G. and Gustafsson, L. ( 2014 ) Is planning for driving cessation critical for the well-being and lifestyle of older drivers? International Psychogeriatrics, 26(7): 11111120.
    Lin, C.-C. , Lin, P.-Y. , Lu, P.-K. , Hsieh, G.-Y. , Lee, W.-L. and Lee, R.-G. ( 2008 ) A healthcare integration system for disease assessment and safety monitoring of dementia patients. Transactions on Information Technology in Biomedicine, 12(5): 579586.
    Lindauer, A. and Harvath, T. ( 2015 ) The meanings caregivers ascribe to dementia-related changes in care recipients: a meta-ethnography. Research in Gerontological Nursing, 8(1): 3948.
    Lloyd, J. , Patterson, T. and Muers, J. ( 2014 ) The positive aspects of caregiving in dementia: a critical review of the qualitative literature. Dementia, 16(6): 153461.
    Logsdon, R.G. , McCurry, S.M. and Teri, L. ( 2005 ) STAR-Caregivers: a community-based approach for teaching family caregivers to use behavioral strategies to reduce affective disturbances in persons with dementia. Alzheimer’s Care Quarterly, 6: 146153.
    Lykens, K. , Moayad, N. , Biswas, S. , Reyes-Ortiz, C. and Singh, K.P. ( 2014 ) Impact of a community based implementation of REACH II program for caregivers of Alzheimer’s patients. PLoS ONE, 9(2): e89290.
    Maas, M.L. , Reed, D. , Park, M. , Specht, J.P. , Schutte, D. , Kelly, L.S. , Swanson, E.A. , Tripp-Reimer, T. and Buckwalter, K.C. ( 2004 ) Outcomes of family involvement in care intervention for caregivers of individuals with dementia. Nursing Research, 53(2): 7686.
    Maayan, N. , Soares-Weiser, K. and Lee, H. ( 2014 ) Respite care for people with dementia and their carers. Cochrane Database of Systematic Reviews, Issue 1: Art. No. CD004396.
    Magnusson, L. , Sandman, L. , Rosén, K.G. and Hanson, E. ( 2014 ) Extended safety and support systems for people with dementia living at home. Journal of Assistive Technologies, 8(4): 188206.
    Manley, K. and McCormack, B. ( 2004 ) Practice development: purpose, methodology, facilitation and evaluation. In B. McCormack , K. Manley and R. Garbett (eds), Practice Development in Nursing. Oxford: Blackwell Publishing. pp. 3550.
    Margot-Cattin, I. and Nygard, L. ( 2006 ) Access technology and dementia care: influences on residents’ everyday lives in a secure unit. Scandinavian Journal of Occupational Therapy, 13: 113124.
    Mao, H.-F. , Chang, L.-H , Yao, G. , Chen, W.-Y. and Huang, W.-N. ( 2015 ) Indicators of perceived useful dementia care assistive technology: caregivers’ perspectives. Geriatrics Gerontology International, 15: 10491057.
    Marie Curie Cancer Care with Alzheimer’s Society ( 2013 ) Living and Dying with Dementia in England: Barriers to Care. Available at: http://www2.mariecurie.org.uk/Documents/policy/dementia-report.pdf (accessed 22/08/2016 ).
    McCormack, B. ( 2011 ) Engaged scholarship and research impact: integrating the doing and using of research in practice. Journal of Research in Nursing, 16(2): 111127.
    McDaniel, R.R. and Driebe, D.J. ( 2001 ) Complexity science and health care management. In J.D. Blair , M.D. Fottler and G.T. Savage (eds), Advances in Health Care Management. Vol. 2. Stamford, CT: JAI Press. pp. 1136.
    Memon, M. , Wagner, S. , Pedersen, C. , Hassan, F. , Beevi, A. and Hansen, F. ( 2014 ) Ambient assisted living healthcare frameworks, platforms, standards, and quality attributes. Sensors, 14: 43124341.
    Mental Capacity Act 2005 . Available at: www.legislation.gov.uk/ukpga/2005/9/contents (accessed 10/03/2017 ).
    Millenaar, J.K. , van Vliet, D. , Bakker, C. , Vernooij-Dassen, M.J.F.J. , Koopmans, R.T.C.M. , Verhey, F.R.J. , de Vugt, M.E. , Koopmans, R. and Rosness, T. ( 2014 ) The experiences and needs of children living with a parent with young onset dementia: results from the NeedYD study. International Psychogeriatrics, 26(12): 20012010.
    Miller, S. , Lepore, M. , Lima, J. , Shield, R. and Tyler, D. ( 2014a ) Does the introduction of nursing home culture change practices and improve quality? Journal of the American Geriatrics Society, 62: 16751682.
    Miller, S.C. , Looze, J. , Shield, R. et al. ( 2014b ) Culture change practice in U.S. nursing homes: prevalence and variation by state Medicaid reimbursement policies. Gerontologist, 54: 434445.
    Mitchell, L. , Burton, E. and Raman, S. ( 2004 ) Dementia friendly cities: designing intelligible neighbourhoods for life, Journal of Urban Design, 9(1): 89101.
    Mittelman, M.S. , Epstein, C. and Pierzchala, A. ( 2003 ) Counseling the Alzheimer’s Caregiver: A Resource for Healthcare Professionals. Chicago, Ill: AMA Press.
    Mittelman, M.S. , Roth, D.L. , Coon, D.W. and Haley, W.E. ( 2004a ) Sustained benefit of supportive intervention for depressive symptoms. American Journal of Psychiatry, 161: 850856.
    Mittelman, M.S. , Roth, D.L. , Haley, W.E. and Zarit, S.H. ( 2004b ) Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer’s disease: results of a randomized trial. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 59(1): 2734.
    Mittelman, M.S. , Haley, W.E. , Clay, O.J. and Roth, D.L. ( 2006 ) Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology, 67: 15921599.
    Mittelman, M.S. , Roth, D.L. , Clay, O.J. and Haley, W.E. ( 2007 ) Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention. American Journal of Geriatric Psychiatry, 15(9): 780789.
    Miura, M. , Ito, S. , Takatsuka, R. , Sugihara, T. and Kunifuji, S. ( 2009 ) An empirical study of an RFID mat sensor system in a group home. Journal of Networks, 4(2): 133139.
    Moye, J. and Marson, D.C. ( 2007 ) Assessment of decision-making capacity in older adults: an emerging area of practice and research. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 62(1): 311.
    Moyle, W. , Olorenshaw, R. , Wallis, M. and Borbasi, S. ( 2008 ) Best practice for the management of older people with dementia in the acute care setting: a review of the literature. International Journal of Older People Nursing, 3: 121130.
    Moyle, W. , Borbasi, S. , Walliss, M. , Olorenshaw, R. and Gracia, N. ( 2011 ) Acute care management of older people with dementia: a qualitative perspective. Journal of Clinical Nursing, 20: 420428.
    Moyle, W. , Cooke, M. , Beattie, E. , Jones, C. , Klein, B. , Cook, G. and Gray, C. ( 2013a ) Exploring the effect of companion robots on emotions in older people with dementia: a pilot RCT. Journal Gerontological Nursing, 39: 4653.
    Moyle, W. , Venturato, L. , Cooke, M. , Hughes, J. , Van Wyk, S. and Marshall, J. ( 2013b ) Promoting value in dementia care: staff, resident and family experience of the capabilities model of dementia care. Aging and Mental Health, 17(5): 587594.
    Moyle, W. , Beattie, E. , Draper, B. , Shum, D. , Lukman, T. , Jones, C. , O’Dwyer, S. and Mervin, C. ( 2015 ) Effect of an interactive therapeutic robotic animal on engagement, mood states, agitation and psychotropic drug use in people with dementia: a cluster-randomised controlled trial protocol. BMJ Open, 5.
    Moyle, W. , Venturato, L. , Cooke, M. , Murfield, J. , Griffiths, S. , Hughes, J. and Wolf, N. ( 2016 ) Evaluating the capabilities model of dementia care: a non-randomized controlled trial exploring resident quality of life and care staff attitudes and experiences. International Psychogeriatric Association, 110.
    National Center for Health Statistics ( 2015 ) Health, United States With special feature on racial and ethnic health disparities. Hyattsville, MD. Available at: www.cdc.gov/nchs/data/hus/hus15.pdf#019 (accessed 01/09/2016 ).
    National Collaborating Centre for Mental Health ( 2007 ) Dementia: A NICE–SCIE Guideline on Supporting People with Dementia and their Carers in Health and Social Care. National Clinical Practice Guideline Number 42. The British Psychological Society and Gaskell. Available at: www.scie.org.uk/publications/misc/dementia/dementia-fullguideline.pdf (accessed 27/11/2016 ).
    National LGBTI Health Alliance ( 2014 ) Working Therapeutically with LGBTI Clients: A Practice Wisdom Resource. Available at: www.lgbtihealth.org.au/sites/default/files/practice-wisdom-guide-online.pdf (accessed 14/09/2016 ).
    Nayton, K. , Fielding, E. , Brooks, D. , Graham, F. and Beattie, E. ( 2014 ) Development of an education program to improve care of patients with dementia in an acute care setting. The Journal of Continuing Education in Nursing, 45(12): 5528.
    Neville, C. , Beattie, E. , Fielding, E. and MacAndrew, M. ( 2015 ) Literature review: use of respite by carers of people with dementia. Health and Social Care in the Community, 23: 5163.
    Nichols, L. , Martindale-Adams, J. , Burns, R. , Graney, M.J. and Zuber, J. ( 2011 ) Translation of a dementia caregiver support program in a health care system – REACH VA. Archives Internal Medicine, 171(4): 353359.
    Niemeijer, A.R. , Frederiks, B.J. , Riphagen, I.I. , Legemaate, J. , Eefsting, J.A. and Hertogh, C.M. ( 2010 ) Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: an overview of the literature. International Psychogeriatrics, 22(7): 11291142.
    Nolan, L. ( 2006 ) Caring connections with older persons with dementia in an acute hospital setting: a hermeneutic interpretation of the staff nurse’s experience. International Journal of Older People Nursing, 1: 208215.
    Nolan, M.R. , Grant, G. and Keady, J. ( 1996 ) Understanding Family Care. Buckingham. Open University Press.
    Nolan, M.R. , Davies, S. and Grant, G. (eds) ( 2001 ) Working with Older People and their Families. Buckingham: Open University Press.
    Nolan, M.R. , Lundh, U. , Grant, G. and Keady, J. (eds) ( 2003 ) Partnerships in Family Care. Maidenhead: Open University Press.
    Nolan, M.R. , Davies, S. , et al. ( 2004 ) Beyond person-centred care: a new vision for gerontological nursing. International Journal of Older People Nursing, in association with the Journal of Clinical Nursing, 13(3a): 4553.
    Nolan, M.R. , Brown, J. et al. ( 2006a ) The Senses Framework: Improving Care for Older People through a Relationship Centred Approach. University of Sheffield. GRip Report.
    Nolan, M. , Davies, S. and Brown, J. ( 2006b ) Transitions in care homes: towards relationship-centred care using the ‘Senses Framework’. Quality in Ageing, 7(3): 515.
    Nomura, Y. and Yamaji, K. ( 2008 ) Autonomous-type tracking robot with network environment. Proceedings of 2008 IEEE International Conference on Mechatronics and Automation. 168173.
    Olazarán, J. , Reisberg, B. , Clare, L. et al. ( 2010 ) Nonpharmacological therapies in Alzheimer’s disease: a systematic review of efficacy. Dementia and Geriatric Cognitive Disorders, 30: 161178.
    Olsson, A. , Engström, M. , Asenlof, P. , Skovdahl, K. and Lampic, C. ( 2015 ) Effects of tracking technology on daily life of persons with dementia: three experimental single-case studies. American Journal of Alzheimer’s Disease & Other Dementias, 30(1): 2940.
    Olsson, A. , Engström, M. , Skovdahl, K. , and Lampic, C. ( 2012 ) My, your and our needs for safety and security: relatives’ reflections on using information and communication technology in dementia care. Scandinavian Journal Caring Science, 26: 104112.
    Orpwood, R. , Chadd, J. , Howcroft, D. , Sixsmith, A. , Torrington, J. , Gibson, G. and Chalfont, G. ( 2010 ) Designing technology to improve quality of life for people with dementia: user-led approaches. Universal Access in the Information Society, 9(3): 249259.
    Owen, T. ( 2006 ) My Home Life: Quality of Life in Care homes. Help the Aged. Available at: http://myhomelife.org.uk/wp-content/uploads/2014/11/mhl_report.pdf (accessed 21/01/2016 ).
    Parker, D. , Mills, S. and Abbey, R.N.J. ( 2008 ) Effectiveness of interventions that assist caregivers to support people with dementia living in the community: a systematic review. International Journal of Evidence Based Healthcare, 6: 137172.
    Pearlin, L.I. , Mullin, J.T. , Semple, S.J. and Skaff, M.M. ( 1990 ) Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist, 30(5): 583594.
    Petriwskyj, A. , Parker, D. , Brown Wilson, C. , and Gibson, A. ( 2016a ) What health and aged care culture change models mean for residents and their families: a systematic review. The Gerontologist, 56(2): e1220.
    Petriwskyj, A. , Parker, D. , Brown Wilson, C. and Gibson, A. ( 2016b ) Evaluation of subscription-based culture change models in care settings: findings from a systematic review. The Gerontologist, 56(2): 1220.
    Pinquart, M. and Sorensen, S. ( 2003 ) Predictors of caregiver burden and depressive mood: a meta-analysis. Journal of Gerontology, Psychological Sciences, 58: 112128.
    Pinquart, M. and Sorensen, S. ( 2004 ) Associations of caregivers’ stressors and uplifts with subjective well-being and depressive mood: a meta-analytic comparison. Aging & Mental Health, 8(5): 438449.
    Pinquart, M. and Sorensen, S. ( 2005 ) Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist, 45(1): 90106.
    Pinquart, M. and Sorensen, S. ( 2006a ) Helping caregivers of persons with dementia: which interventions work and how large are their effects? International Psychogeriatrics: 119.
    Pinquart, M. and Sorensen, S. ( 2006b ) Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. Journal of Gerontology: Psychological Sciences, 61B(1): 3345.
    Pinquart, M. and Sorensen, S. ( 2011 ) Spouses, adult children, and children-in-law as carers of older adults: a meta-analytic comparison. Psychology of Aging, 26(1): 114.
    Plsek, P. and Greenhalgh, T. ( 2001 ) Complexity science: the challenge of complexity in health care. British Medical Journal, 323: 6258.
    Plsek, P. ( 2003 ) Complexity and the adoption of innovation in health care: accelerating quality improvement in health care strategies to speed the diffusion of evidence-based innovations, Conference held in Washington, D.C. January 27–28 . Available at www.nihcm.org/pdf/Plsek.pdf (accessed 23/11/2016 ).
    Pol, P. , van Nes, F. , van Hartingsveldt, M. , Buurman, B. , de Rooij, S. and Kröse, B. ( 2016 ) Older people’s perspectives regarding the use of sensor monitoring in their home. Gerontologist, 56(3): 485493.
    Popescu, M. and Mahnot, A. ( 2012 ) Early illness recognition in older adults using in-home monitoring sensors and multiple instance learning. Methods of Informatics in Medicine, 51(4): 359367.
    Porock, D. , Clissett, P. , Harwood, R.H. and Gladman, J. ( 2015 ) Disruption, control and coping: responses of and to the person with dementia in hospital. Ageing & Society, 35(1): 3763.
    Prensky, M. ( 2001 ) Digital natives, digital immigrants. On the Horizon, 9(5): 16.
    Prince, M. , Bryce, R. and Ferri, C. ( 2011 ) Alzheimer’s Disease International – World Alzheimer Report 2011: The Benefits of Early Diagnosis and Intervention. Available at: www.alz.co.uk/research/WorldAlzheimerReport2011.pdf (accessed 08/01/2016 ).
    Prince, M. , Knapp, M. , Guerchet, M. , McCrone, P. , Prina, M. , Comas-Herrera, A. , Wittenberg, R. , Adelaja, B. , Hu, B. , King, D. , Rehill, A. and Salimkumar, D. ( 2014 ) Dementia UK (
    second
    edition). Alzheimer’s Society.
    Prince, M. , Wimo, A. , Guerchet, M. , Ali, G.C. , Wu, Y.-T. and Prina, M. ( 2015 ) World Alzheimers Report 2015: Global Impact of Dementia. An Analysis of Prevalence, Incidence, Costs and Trends. Alzheimer’s Disease International (ADI), London. Available at: www.worldalzreport2015.org/downloads/world-alzheimer-report-2015.pdf (accessed 10/01/2016 ).
    Rantz, M.J. , Dorman-Marek, K. , Aud, M. , Johnson, R.A. , Otto, D. and Porter, R. ( 2005 ) TigerPlace: a new future for older adults. Journal of Nursing Care Quality, 20: 14.
    Rantz, M.J. , Skubic, M. , Koopman, R. , Phillips, L. , Alexander, G. , Miller, S. and Guevara, R. ( 2011 ) Using sensor networks to detect urinary tract infections in older adults. Proceedings of the 13th IEEE International Conference on E-Health Networking and Applications. PID1858641.
    Rantz, M.J. , Skubic, M. , Koopman, R.J. , Alexander, G. , Phillips, L. , Musterman, K.I. , Back, J.R. , Aud, M.A. , Galambos, C. , Guevara, R.D. and Miller, S.J. ( 2012 ) Automated technology to speed recognition of signs of illness in older adults. Journal of Gerontological Nursing, 38(4): 1823.
    Rantz, M.J. , Skubic, M. , Miller, S. , Galambos, C. , Alexander, G.L. , Keller, J. and Popescu, M. ( 2013a ) Sensor technology to support aging in place. Journal of the American Medical Directors Association, 14: 386391.
    Rantz, M.J. , Zwygart-Stauffacher, M. , Flesner, M. et al. ( 2013b ) The influence of teams to sustain quality improvement in nursing homes that ‘need improvement’. Journal of the American Medical Directors Association, 14(1): 4852.
    Rantz, M. , Skubic, M. , Popescu, M. , Galambos, C. , Koopman, R.J. , Alexander, G.L. , Phillips, L.J. , Musterman, K. , Back, J. and Miller, S.J. ( 2015a ) A new paradigm of technology-enabled ‘vital signs’ for early detection of health change for older adults. Gerontology, 61(3): 281290.
    Rantz, M. , Lane, K. , Phillips, L.J. , Despins, L.A. , Galambos, C. , Alexander, G.L. , Koopman, R.J. , Hicks, L. , Skubic, M. and Miller, S.J. ( 2015b ) Enhanced RN care coordination with sensor technology: impact on length of stay and cost in aging in place housing. Nursing Outlook, 63: 650655.
    Raymond, M. , Warner, A. , Davies N. , Baishnab, E. , Manthorpe, J. and Iliffe, S. ( 2014a ) Evaluating educational initiatives to improve palliative care for people with dementia: a narrative review. Dementia, 13(3): 366381.
    Raymond, M. , Warner, A. , Davies, N. , Iliffe, S. , Manthorpe, J. and Ahmedzhai, S. ( 2014b ) Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia, 13(1): 96110.
    Reed, J. and Card, A. ( 2016 ) The problem with Plan-Do-Study-Act Cycles. BMJ Quality Safety, 25: 147152.
    Reilly, S. , Miranda-Castillo, C. , Malouf, R. , Hoe, J. , Toot, S. , Challis, D. and Orrell, M. ( 2015 ) Case management approaches to home support for people with dementia. Cochrane Database of Systematic Reviews, 1: Art. No. CD008345.
    Roberts, G. , Morley, C. , Walters, W. , Malta, S. and Doyle, C. ( 2015 ) Caring for people with dementia in residential aged care: successes with a composite person-centered care model featuring Montessori-based activities. Geriatric Nursing, 36(2): 106110.
    Robinson, L. , Hutchings, D. , Corner, L. , Finch, T. , Hughes, J. , Brittain, K. and Bond, J. ( 2007 ) Balancing rights and risks: conflicting perspectives in the management of wandering in dementia. Health, Risk & Society, 9(4): 389406.
    Robinson, L. , Dickinson, C. , Rousseau, N. , Beyer, F. , Clark, A. , Hughes, J. , Howel, D. and Exley, C. ( 2012 ) A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age and Ageing, 41: 263269.
    Rokstad, A. , R⊘svik, J. , Kirkevold, O. , Selbaek, G. , Benth, J. and Engedal, K. ( 2013 ) The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: a 10-month randomized controlled trial. Dementia and Geriatric Cognitive Disorders, 36: 340353.
    Rossor, M.N. , Fox, N.C. , Mummery, C.J. , Schott, J.M. and Warren, J.D. ( 2010 ) The diagnosis of young-onset dementia. Lancet Neurology, 9: 793806.
    Rosvik, J. , Kirkevold, M. , Engedal, K. , Brooker, D. and Kirkevold, O. ( 2011 ) A model for using the VIPS framework for person-centred care for persons with dementia in nursing homes: a qualitative evaluative study. International Journal of Older People Nursing, 6: 227236.
    Rosvik, J. , Broker, D. , Mjorud, M. and Kirkevold, O. ( 2013 ) What is person-centred care in dementia? Clinical review into practice: the development of the VIPS practice model. Reviews in Clinical Gerontology, 23: 155163.
    Roth, D. , Mittelman, M. , Clay, O. , Madan, A. and Haley, W. ( 2005 ) Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer’s disease. Psychology and Aging, 20(4): 634644.
    Rouse, K. ( 2008 ) Health care as a complex adaptive system: implications for design and management. The Bridge, 38(1): 1725.
    Royal College of Psychiatrists ( 2013 ) National Audit of Dementia Care in General Hospitals 2012–13: Second Round Audit Report and Update. Editors: J. Young , C. Hood , A. Gandesha and R. Souza . London: HQIP. Available at: www.rcpsych.ac.uk/pdf/NAD%20NATIONAL%20REPORT%202013%20reports%20page.pdf (accessed 30/08/2016 ).
    Ryan, T. , Nolan, M. , Reid, D. and Enderby, P. ( 2008 ) Using the senses framework to achieve relationship-centred dementia care services: a case example. Dementia: The International Journal of Social Research and Practice, 7(1):7193.
    Rycroft-Malone, J. ( 2004 ) The PARIHS framework – a framework for guiding the implementation of evidence-based practice. Journal of Nursing Care Quality, 19(4): 297304.
    Samsi, K. and Manthorpe, J. ( 2011 ) ‘I live for today’: a qualitative study investigating older people’s attitudes to advance planning. Health and Social Care in the Community, 19(1): 5259.
    Samsi, K. and Manthorpe, J. ( 2013 ) Everyday decision-making in dementia: findings from a longitudinal interview study of people with dementia and family carers. International Psychogeriatrics, 25(6): 949961.
    Savenstedt, S. , Sandma, P. and Zingmark, K. ( 2006 ) The duality in using information and communication technology in elder care. Journal of Advanced Nursing, 56(1): 1725.
    Schein, E. ( 2010 ) Organisational Culture and Leadership (
    fourth
    edition). California: Josey Bass.
    Schikhof, Y. and Mulder, I. ( 2008 ) Under watch and ward at night: design and evaluation of a remote monitoring system for dementia care. Symposium of the Austrian HCI and Usability Engineering Group USAB 2008: HCI and Usability for Education and Work. pp. 475486, Volume 5298 of the book series Lecture Notes in Computer Science (LNCS).
    Schikhof, Y. , Mulder, I. and Choenni, S. ( 2010 ) Who will watch(over)me? Humane monitoring in dementia care. International Journal of Human–Computer Studies, 68: 410422.
    Schneidert, M. , Hurst, R. , Miller, J. and Bedirhan Ustun, T. ( 2003 ) The role of environment in the international classification of functioning. Disability and Health (ICF) Disability and Rehabilitation, 25(11–12): 588595.
    Schoenmakers, B. , Buntinx, F. and Delepeleire, J. ( 2010 ) Supporting the dementia family caregiver: the effect of home care intervention on general well-being. Aging and Mental Health, 14(1): 4456.
    Schulz, R. , Burgio, L. , Burns, R. , Eisdorfer, C. and Gallagher-Thompson, D. ( 2003 ) Resources for enhancing Alzheimer’s caregiver health (REACH): overview, site-specific outcomes, and future directions. The Gerontologist, 43(4): 514520.
    Scott, T. , Mannion, R. , Davies, H. and Marshall, M. ( 2003 ) Implementing culture change in health care: theory and practice. International Journal for Quality in Health Care, 15(2): 111118.
    Scott, T. , Mittelman, M. , Beattie, E. , Parker, D. and Neville, C. ( 2015 ) Translating training in the NYU Caregiver Intervention in Australia: maintaining fidelity and meeting graduate standards in an online continuing professional education setting. Educational Gerontology, 41(10): 710722.
    Sellgren, S.F. , Ekvall, G. and Tomson, G. ( 2008 ) Leadership behaviour of nurse managers in relation to job satisfaction and work climate. Journal of Nursing Management, 16: 578587.
    Semiatin, A. and O’Connor, M. ( 2012 ) The relationship between self-efficacy and positive aspects of caregiving in Alzheimer’s disease caregivers. Aging & Mental Health, 16(6): 683688.
    Setterlund, D. , Tilse, C. and Wilson, J. ( 2002 ) Older people and substitute decision making legislation: limits to informed choice. Australasian Journal on Ageing, 21(3): 128133.
    Sheard, D. ( 2014 ) Achieving culture change: a whole organisation approach. Nursing and Residential Care, 16(6): 329332.
    Siddiqi, N. , Harrison, J.K. , Clegg, A. , Teale, E.A. , Young, J. , Taylor, J. and Simpkins, S.A. ( 2016 ) Interventions for preventing delirium in hospitalised non-ICU patients. Cochrane Database of Systematic Reviews 2016, Issue 3: Art. No. CD005563.
    Simpson, P. , Horne, M. , Brown, L.E.J. , Brown Wilson, C. , Dickinson, T. and Torkington, K. ( 2015 ) ‘We’ve had our sex life way back’: older care home residents in Northwest England and sexuality, intimacy and erotophobia. Ageing and Society, doi: http://dx.doi.org/10.1017/S0144686X15001105.
    Simpson, P. , Brown Wilson, C. , Horne, M. , Brown, L.E.J. and Dickinson, T. ( 2016 ) The challenges and opportunities in researching intimacy and sexuality in care homes accommodating older people: a feasibility study. Journal of Advanced Nursing, doi: http://dx.doi.org/10.1111/jan.13080.
    Smith, M. , Gerdner, L. , Hall, G. and Buckwalter, K. ( 2004 ) History, development, and future of the progressively lowered stress threshold: a conceptual model for dementia care. Journal of the American Geriatrics Society, 52: 17551760.
    Snowden, D. and Boone, M. ( 2007 ) A leaders’ framework for decision making. Harvard Business Review, November: 6976.
    Snowdon, D. ( 1997 ) Aging and Alzheimer’s Disease: lessons from the Nun Study. Gerontologist, 37(2): 150156.
    Soderstrom, I.M. , Benzein, E. and Saveman, B.I. ( 2003 ) Nurses’ experiences of interactions with family members in intensive care units. Scandinavian Journal of Caring Sciences, 17(2): 185192.
    Sorensen, S. and Pinquart, M. ( 2005 ) Racial and ethnic differences in the relationship of caregiving stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health. Aging & Mental Health, 9(5): 482495.
    Stroebel, C. , McDaniel, Jr., R. , Crabtree, B.F. , Miller, W.L. , Nutting, P.A. and Stange, K.C. ( 2005 ) Using complexity science to inform a reflective practice improvement process. Joint Commission Journal on Quality and Safety, 31: 43846.
    Subramaniam, P. , Woods, B. and Whitaker, C. ( 2014 ) Life review and life story books for people with mild to moderate dementia: a randomised controlled trial. Aging & Mental Health, 18(3): 363375.
    Sugihara, T. and Fujinami, T. ( 2011 ) Emerging triage support environment for dementia care with camera system. International Conference on Ergonomics and Health Aspects of Work with Computers, Lecture Notes in Computer Science (LNCS), 6779: 149158.
    Sugihara, T. , Nakagawa, K. , Fujinami, T. and Takatsuka, R. ( 2008 ) Evaluation of a prototype of the mimamori-care system for persons with dementia. 12th International Conference on Knowledge-Based Intelligent Information and Engineering Systems, Knowledge-Based Intelligent Information and Engineering Systems 2008, Part II, LNAI 5178: 839846.
    Surr, C.A. ( 2006 ) Preservation of self in people with dementia living in residential care: a socio-biographical approach. Social Science and Medicine, 62: 17201730.
    Takatsuka, R. and Fujinami, T. ( 2005 ) Aware group home: person-centered care as creative problem solving knowledge-based intelligent information and engineering systems. 9th International Conference. Lecture Notes in Computer Science (LNCS), 3684: 451457.
    Taylor, M.J. , McNicholas, C. , Nicolay, C. , Darzi, A. , Bell, D. and Reed, J. ( 2013 ) Systematic review of the application of the plan–do–study–act method to improve quality in healthcare. BMJ Quality and Safety, 0: 19.
    Teri, L. , Logsdon, R.G. , Uomoto, J. and McCurry, S. ( 1997 ) Behavioral treatment of depression in dementia patients: a controlled clinical trial. Journal of Gerontology Series B: Psychological Sciences, 52: 159166.
    Teri, L. , Gibbons, L.E. , McCurry, S.M. , Logsdon, R.G. , Buchner, D.M. , Barlow, W.E. and Larson, E.B. ( 2003 ) Exercise plus behavioral management in patients with Alzheimer disease: a randomized controlled trial. Journal of the American Medical Association, 290: 20152022.
    Teri, L. , McCurry, S.M. , Logsdon, R.G. and Gibbons, L.E. ( 2005 ) Training community consultants to help family members improve dementia care: a randomized controlled trial. The Gerontologist, 45: 802811.
    Teri, L. , McKenzie, G. , Logsdon, R. , McCurry, S. , Bollin, S. , Mead, J. and Menne, H. ( 2012 ) Translation of two evidence-based programs for training families to improve care of persons with dementia. Gerontologist, 52(4): 452459.
    Thompson, C. , Spilsbury, K. , Hall, J. , Birks, Y. , Barnes, C. and Adamson, J. ( 2007 ) Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7(18): 112.
    Tilse, C. , Setterlund, D. , Wilson, J. and Rosenman, L. ( 2005 ) Minding the money: a growing responsibility for informal carers. Ageing and Society, 25(2): 215227.
    Todd, S. , Barr, S. and Passmore, A.P. ( 2013 ) Cause of death in Alzheimer’s disease: a cohort study. QJM: An International Journal of Medicine, 106(8): 74753.
    Travers, C. , Byrne, G. , Pachana, N. , Klein, K. and Gray, L. ( 2012 ) Prospective observational study of dementia and delirium in the acute hospital setting. Internal Medicine Journal, 43: 262269.
    Travers, C. , Beattie, E. , Martin-Khan, M. and Fielding, E. ( 2013 ) A survey of the Queensland healthcare workforce: attitudes towards dementia care and training. BMC Geriatrics, 13: 101.
    Tresolini C.P. and the Pew-Fetzer Task Force ( 1994 ) Health Professions Education and Relationship-Centred Care. San Francisco, CA: Pew Health Professions Commission.
    Tuszynski, Mh. , Yang, Jh. , Barba, D. , Hoi-Sang, U. , Bakay, R. , Pay, M.M. , Masliah, E. , Conner, Jm. , Kobalka, P. , Roy, S. and Nagahara, A.H. ( 2015 ) Nerve growth factor gene therapy: activation of neuronal responses in Alzheimer Disease. JAMA Neurology, 72(10): 11391147.
    Utley-Smith, Q. , Colón-Emeric, C. , Lekan-Rutledge, D. , Ammarell, N. , Bailey, D. , Corazzini, K. , Piven, M. and Anderson, R.A. ( 2009 ) The nature of staff – family interactions in nursing homes: staff perceptions. Journal of Aging Studies, 23(3): 168177.
    van der Steen, J. , Radbruch, L. , Hertogh, C. , de Boer, M. , Hughes, J. , Larkin, P. , Francke, A. , Jünger, S. , Gove, D. , Firth, P. , Koopmans, R. and Volicer, L. on behalf of the European Association for Palliative Care (EAPC) ( 2014 ) White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine, 28(3): 197209.
    van Hoof, J. , Kort, H. , van Waarde, H. and Blom, M.M. ( 2007 ) Environmental interventions and the design of homes for older adults with dementia: an overview. American Journal of Alzheimers Disease and Other Dementias, 25: 202.
    van Vliet, D. , de Vugt, M.E. , Bakker, C. , Koopmans, R.T. and Verhey, F.R. ( 2010 ) Impact of early onset dementia on caregivers: a review. International Journal of Geriatric Psychiatry, 25(11): 1091100.
    van Vliet, D. , de Vugt, M.E. , Bakker, C. , Pijnenburg, Y.A. , Vernooij-Dassen, M.J. , Koopmans, R.T. et al. ( 2013 ) Time to diagnosis in young-onset dementia as compared with late-onset dementia. Psychological Medicine, 43(2): 423432.
    Volicer, L. and Hurley, A.C. ( 2003 ) Management of behavioral symptoms in progressive degenerative dementias. Journal of Gerontology: Medical Sciences, 58A(9): 837845.
    Wada, K. and Shibata, T. ( 2007 ) Social effects of robot therapy in a care house: change of social network of the residents for two months. In International Conference on Robotics and Automation. pp. 12501255. IEEE.
    Wada, K. , Shibata, T. , Saito, T. and Tanie, K. ( 2004 ) Effects of robot assisted activity for elderly people and nurses at a day service center. Proceedings of the IEEE, 92(11): 17801788.
    Wada, K. , Shibata, T. , Musha, T. and Kimura, S. ( 2008 ) Robot therapy for elders affected by dementia. IEEE Engineering Medicine and Biology, 27(4): 5360.
    Wada, K. , Shibata, T. and Kawaguchi, Y. ( 2009 ) Long-term robot therapy in a health service facility for the aged: a case study for 5 years. IEEE International Conference on Rehabilitation Robotics, June 2009 , pp. 930933.
    Waller, S. , Masterson, A. and Finn, H. ( 2013 ) Improving the patient experience: developing supportive design for people with dementia. The King’s Fund’s Enhancing the Healing Environment Programme 2009–2012. London: The King’s Fund. London. Available at: www.kingsfund.org.uk/sites/files/kf/field/field_publication_file/developing-supportive-design-for-people-with-dementia-kingsfund-jan13_0.pdf (accessed 30/06/2016 ).
    Want, R. ( 2006 ) An introduction to RFID technology. IEEE Pervasive Computing, 5(1): 2533.
    Wigg J.M. ( 2010 ) Liberating the wanderers: using technology to unlock doors for those living with dementia. Sociology of Health & Illness, 32(2): 288303.
    Wimo, A. and Prince, M. ( 2010 ) World Alzheimer Report 2010: The Global Economic Impact of Dementia. London, Alzheimer’s Disease International.
    World Health Organisation ( 2015 ) First WHO ministerial conference on global action against dementia: meeting report, WHO Headquarters, Geneva, Switzerland, 16–17 March 2015 . Available at: www.who.int/mental_health/neurology/dementia/ministerial_conference_2015_report/en/ (accessed 10/01/2016 ).
    Zwijsen, S. , Alistair, R. , Niemeijer, A. , Cees, M.P.M. and Hertogh, C. ( 2011 ) Ethics of using assistive technology in the care for community-dwelling elderly people: an overview of the literature. Aging & Mental Health, 15(4): 419427.
    Zwijsen, S.A. , Depla, M. , Francke, A. , Niemeijer, A. and Hertogh, C. ( 2012 ) Surveillance technology: an alternative to physical restraints? A qualitative study among professionals working in nursing homes for people with dementia. International Journal of Nursing Studies, 49: 212219.

    • Loading...
Back to Top

Copy and paste the following HTML into your website