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Adult Child with Disability: Planning for by Parents

  • By: Cecily Lynn Betz
  • In: Encyclopedia of Family Health
  • Edited by: Martha Craft-Rosenberg & Shelley-Rae Pehler
  • Subject:Family Health, Family Policy, Family Law

Parents whose children with disabilities enter adulthood face a number of challenges in responding to their children's ongoing individual and service needs in planning for the future. Their adult children's ongoing service needs include housing and community placement, job training and employment, the development of social and intimate relationships, ongoing and acute health concerns, recreational activities and interests, and transportation. Parents face the uncomfortable but likely inevitable issue of ensuring that their children continue to receive services and care in the event that parents are no longer able to provide due to their own deteriorating health status or death. Some of the difficult issues that parents face as their children age are related to (a) housing arrangements-where will they live and under what circumstances; (b) ...

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